Patients with traumatic spinal cord injuries and their satisfaction with their general practitioner

Hagen, Ellen Merete; Grimstad, K E; Bovim, Lars Peder; Grønning, Marit

doi:10.1038/sc.2011.187

Cited by 12 publications

(38 citation statements)

References 13 publications

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“…21 A previous study from Norway found that patients with incomplete SCI were least satisfied probably because their physicians do not acknowledge their complicated medical complaints and do not meet the patient's expectations. 22 This survey was, however, not powered to answer whether it makes a difference from where the patients get their information, and there is a lack of published studies on this topic.…”

Section: Hagen and Rekand Management Of Bladder Dysfunction In Sci Pamentioning

confidence: 99%

Management of bladder dysfunction and satisfaction of life after spinal cord injury in Norway

Hagen

Rekand²

2013

The Journal of Spinal Cord Medicine

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Background: There is limited knowledge about bladder dysfunction and bladder management in persons with spinal cord injury (SCI) after discharge from the hospital in Norway. The impact of bladder dysfunction on satisfaction of life has been rarely explored. Setting: Community-based survey from Norway. Methods: An anonymous cross-sectional postal survey. A questionnaire was sent to the registered members of the Norwegian Spinal Cord Injuries Association. A total of 400 participants, with traumatic or non-traumatic SCI, received the questionnaire. Results: A total of 248 subjects (62%), 180 men and 68 women, answered the questionnaire. Mean age was 54 years and mean time since injury 13.4 years. A total of 164 participants (66.1%) used intermittent catheterization for bladder emptying (48.5% women versus 72.8% men); more paraplegics than tetraplegics (77.2% versus 55.7%). Recommendations given at the Spinal Cord Units were thoroughly followed by persons who had used catheters more than 5 years. Use of incontinence pads were associated with reduced satisfaction of life. Conclusions: The most common method of management of bladder dysfunction is clean intermittent catheterization in Norway. Recommendations were followed more thoroughly by persons who have used intermittent catheterization for more than 5 years. Spinal Cord Units are important source for information and guidance.

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Section: Hagen and Rekand Management Of Bladder Dysfunction In Sci Pamentioning

confidence: 99%

Management of bladder dysfunction and satisfaction of life after spinal cord injury in Norway

Hagen

Rekand²

2013

The Journal of Spinal Cord Medicine

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“…If we use our sample as representative of Prekmurje Roma, almost all (96.4%) are registered with an FP. Patients with chronic diseases are frequent attendees at FP clinics and are satisfied with them ( 11 , 48 , 49 ). They have increased anxiety and depression with lower perceived HRQoL ( 49 ).…”

Section: Discussionmentioning

confidence: 99%

“…This means that the increasing CVD, diabetes mellitus, COPD and mental health problems are a big burden on the Roma communities ( 5 – 9 ). Only a few studies have assessed the impact of ethnicity on HRQoL in non-communicable diseases, but these studies indicated that Roma ethnicity is associated with a lower mental as well as physical HRQoL ( 5 , 10 – 11 ).…”

Section: Introductionmentioning

confidence: 99%

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Quality of Life And Patient Satisfaction with Family Practice Care in a Roma Population With Chronic Conditions in Northeast Slovenia / Kakovost Življenja V Povezavi S Kroničnimi Boleznimi In Z Zadovoljstvom Z Oskrbo Zdravnika Družinske Medicine Med Romskim Prebivalstvom V Sv Sloveniji

Zelko

Švab

Pavlič

2014

Slovenian Journal of Public Health

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ObjectivesHealth-related quality of life (HRQoL) measures a patient’s subjective experience of his or her health status. We aimed to show how the presence of chronic diseases and satisfaction with family physicians (FPs) were associated with the HRQoL of a Roma population.MethodsA cross-sectional study was carried out in May 2011 on a representative sample of 650 Roma living in Prekmurje, Slovenia. The EQ-5D questionnaire was used for measuring the HRQoL of the Roma. Demographical data, 12 groups of diseases diagnosed in the last 12 months and satisfaction with FPs were included in the questionnaire.ResultsThe response rate was 88.3% 574), of which 56.4% were female, and the average age of the participants had a mean value of 40.2±12.7 years. The presence of cardiovascular problems with risk factors for them or presence of musculoskeletal disorders were strongly associated with the presence of pain (Cramer’s V = 0.40 and 0.46 respectively). There was a strong association between the presence of mental disorders and anxiety and depression (Cramer’s V = 0.58). The average satisfaction with the family physician was 3.9 (mean±1.10) on a five-point Likert scale. There was no significant association between HRQoL and satisfaction with the family physician.ConclusionsRoma with chronic mental health problems had the lowest HRQoL in the Roma population. More attention should be paid to this subgroup of Roma in family medicine, and interventions should be provided. High satisfaction with their FPs is not associated with the observed quality of life variables.

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“…People with SCI, however, often find that their family doctor does not fully appreciate the complexity of their situation, or the limitations their disability imposes on the options for health promotion and care [ 4 ]. Family physicians themselves report that managing patients with disabilities like spinal cord injury is challenging [ 5 , 6 , 7 ].…”

Section: Introductionmentioning

confidence: 99%

Promoting Long-Term Health among People with Spinal Cord Injury: What’s New?

McColl

Gupta

Smith

et al. 2017

IJERPH

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A key ingredient to successful health promotion is a primary care provider who can offer an informed first response to lifestyle issues, emerging problems and chronic challenges. This article aims to assist family physicians to play their role in promoting the health of people with SCI, by summarizing the latest evidence in the management of spinal cord injury in primary care. This study used a scoping review methodology to survey peer-reviewed journal articles and clinical guidelines published between January 2012 to June 2016. This search strategy identified 153 articles across 20 topics. A prevention framework is used to identify five primary, nine secondary, four tertiary, and two quaternary prevention issues about which family physicians require current information. Major changes in the management of SCI in primary care were noted for 8 of the 20 topics, specifically in the areas of pharmacological management of neuropathic pain and urinary tract infection; screening for bowel and bladder cancer; improvements in wound care; and clarification of dietary fibre recommendations. All of these changes are represented in the 3rd edition of Actionable Nuggets—an innovative tool to assist family physicians to be aware of the best practices in primary care for spinal cord injury.

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Patients with traumatic spinal cord injuries and their satisfaction with their general practitioner

Abstract: Patients with incomplete SCI were least satisfied probably because their physicians do not acknowledge their complicated medical complaints and do not meet the patient's expectations. Patients with anxiety and/or depression were more likely to report low satisfaction with their GP.

Cited by 12 publications

References 13 publications

Management of bladder dysfunction and satisfaction of life after spinal cord injury in Norway

Management of bladder dysfunction and satisfaction of life after spinal cord injury in Norway

Quality of Life And Patient Satisfaction with Family Practice Care in a Roma Population With Chronic Conditions in Northeast Slovenia / Kakovost Življenja V Povezavi S Kroničnimi Boleznimi In Z Zadovoljstvom Z Oskrbo Zdravnika Družinske Medicine Med Romskim Prebivalstvom V Sv Sloveniji

Promoting Long-Term Health among People with Spinal Cord Injury: What’s New?

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