Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey

Abstract

Objectives Increasing emphasis is given on involving patients in health technology assessment (HTA). While this is mainly done at the level of regional and national HTA agencies, this tendency is also emerging in local HTA units. In this study, we provide the results of a survey conducted in local HTA units in the province of Quebec, Canada. The aim of the survey was to provide an overview of local HTA unit practices to involve patients, users, caregivers, and citizens in their process, their interest in doing so, and their information needs for this. Methods The survey was conducted in 2017 with a response rate of eleven units over a possibility of twelve. Results Three units out of eleven (27.3 percent) never involved patients or members of the public in their processes and all indicated that they will involve them in the next few years. The three most important needs for support identified in the HTA units were in: recruiting and selecting patients; integrating experiential knowledge; and knowing and implementing the best methods and practices for partnership. Conclusion Patient involvement in local HTA units is quickly evolving and that is why they urgently need tools to involve more effectively patients and members of the public in their process.

Patient and public involvement in health technology assessment: update of a systematic review of international experiences

“…As we found previously, patients and the public are still mostly consulted than directly involved in the HTA process. As underlined in our previous work, this may be due to a lack of guidance for HTA producers to integrate patients and members of the public into their work processes (38;62). Additionally, the commitment of different stakeholders, among which governments and community organizations, is needed in order to facilitate PPI in HTA.…”

“…Involving patients and the public in HTA is now recognized as a way to ensure that the evaluation is made on issues of importance to patients, thus improving the relevance and the quality of decisions (62). We found several experiences of PPI in HTA documented in the literature over the last decade (7).…”