Patients Should Define Value in Health Care: A Conceptual Framework

Kamal, Robin N.; Lindsay, Sarah E.; Eppler, Sara L.

doi:10.1016/j.jhsa.2018.03.036

Cited by 28 publications

(13 citation statements)

References 14 publications

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“…It is limited in its ability to improve value from the patient perspective. According to Kamal et al (2018), “shared decision making is a collaborative decision-making approach that can be broadly defined as a process by which a patient and a physician collaborate to mutually reach a health care decision that is best aligned with patient preferences.” By changing the paradigm from disease treatment to saving and staying healthy, patients are interested in their own health; thus, they are a participant in improving health. Collaborative decision-making is becoming a key focus for achieving a sustainable health system and a decent service.…”

Section: Resultsmentioning

confidence: 99%

Mediating knowledge across health ecosystems: a qualitative field study

Maženytė

Petraitė

2019

MBE

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Purpose Knowledge sharing across health ecosystems is extremely fuzzy because of knowledge asymmetries, barriers and diverse types and sources of knowledge, all of which together affect patient decision making and value creation. The purpose of this study is to identify core knowledge mediators across ecosystem with the focus on a patient as a central decision maker in their own health management to ensure smooth knowledge flows across actors. Design/methodology/approach To understand the knowledge flows in the health ecosystem, a phenomenological approach was applied in this study. Based on case study research. The analysis is based on the patient-centric approach and draws on qualitative, semi-structured interviews. Moreover, a knowledge-creating community approach (Paavola et al., 2004) is applied in which various stakeholders create and share knowledge of clinical and social domain, which together contribute to patient value creation. Findings Knowledge socialization and development starts within very close and trusted community members. Trust, validity, reliability and responsibility of knowledge have emerged as full mediators for knowledge absorption. Thus, health communities and knowledge ecosystems need safe places for “unverified” knowledge to ensure that the important trends and unresolved questions are not missed. Originality/value This study proposes a new health knowledge management approach for communities, which is more than clinical decisions and formal medical knowledge and embraces varieties of knowledge and information sources and types. At the end, the identified barriers and mediators can be used for serving the main goal of patient value increase because it responds to the need for a systematic approach in encouraging patients to play a more active role in their own health management.

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Section: Resultsmentioning

confidence: 99%

Mediating knowledge across health ecosystems: a qualitative field study

Maženytė

Petraitė

2019

MBE

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“…Even with sophisticated measures such as PROMIS, challenges remain to ensure meaningful and equitable clinical measurement. Measuring what matters to patients is not interchangeable at the aggregate and individual levels because value in individual patient care must explicitly consider personal preferences (Kamal et al, 2018). Patient-specific preferences for outcomes and how they are measured need to be balanced with the benefits of standardized PROM collection (Shapiro et al, 2021).…”

Section: Meaningful and Equitable Measurementmentioning

confidence: 99%

Clinical Potential of Patient-Reported Outcome Measures in Occupational Therapy

Stern

2022

The American Journal of Occupational Therapy

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This column advocates the clinical potential of patient-reported outcome measures (PROMs) to advance value for occupational therapy patients and the profession. It positions PROMs in the context of value-based health care, provides an overview of emerging applications of PROMs for individual patient care, and introduces clinical advantages of the Patient-Reported Outcomes Measurement Information System. Occupational therapy practitioners should leverage the opportunities afforded by regulatory initiatives that include PROMs to meaningfully and equitably amplify the patient’s voice in clinical contexts. What This Article Adds: This column highlights why occupational therapy practitioners should consider using patient-reported outcome measures in their everyday clinical practice.

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“…Identifying the best patient-reported outcome measure that can be used with many different types of injuries or disorders would provide benefit in terms of generalizability and ease of interpretation of the results. The concept of patient preferences is an important factor that could potentially improve patient–doctor collaboration for decision making in many aspects of a patient’s care [ 3 ]. However, there have been only a limited number of studies focusing on the comparison of patient preferences among PROMs.…”

Section: Introductionmentioning

confidence: 99%

Comparison of patient preferences and responsiveness among common patient-reported outcome measures for hand/wrist injuries or disorders

et al. 2023

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Background Patient-reported outcome measures (PROMs) were developed to examine patients’ perceptions of functional health. Most studies compare the responsiveness of each type of questionnaire. However, reports of patient preferences among PROMs commonly used with patients with hand/wrist injuries or disorders are limited. This study aimed to compare patient preferences, factors associated with those preferences and responsiveness among the Disability of the Arm, Shoulder, and Hand (DASH), Michigan Hand Outcomes Questionnaire (MHQ), Patient-Rated Wrist/Hand Evaluation (PRWHE) and EQ-5D in patients with hand/wrist injuries or disorders. Material and methods This retrospective cohort study collected data on 183 patients with hand/wrist injuries or diseases who had visited a hand/wrist outpatient clinic or were hospitalized for surgery between 2017 and 2020. Patients had to be at least 18 years old and able to complete the four questionnaires included in the study. The four PROMs (DASH, MHQ, PRWHE and EQ-5D) were administered to the patients prior to treatment. After completing the questionnaires, patients were asked to answer two open-ended questions regarding their preferences. Multinomial logistic regression was used to identify factors related to patient preferences. Results are presented as the relative risk ratio (RRR). The standardized response mean (SRM) was used to evaluate questionnaire responsiveness. Results Of the 183 patients, most preferred the PRWHE questionnaire (n = 74, 41%), with the main reasons cited being “specific to injuries/diseases and reflects hand/wrist function (n = 23, 31%)” and “easy to complete (n = 22, 30%).” Sex was found to be associated with patient preference after adjusting for demographic data and reasons for choosing a PROM as confounders (RRR = 0.46, P value = 0.049). The PRWHE had the highest SRM, followed by DASH (0.92 and 0.88, respectively). Conclusions The PRWHE is the most preferred by patients and is the most responsive questionnaire. It is recommended for use in clinical practice in situations where a clinician would like to use only one PROM for evaluating patients with various types of hand/wrist problems. Level of evidence: Prognostic III.

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Patients Should Define Value in Health Care: A Conceptual Framework

Cited by 28 publications

References 14 publications

Mediating knowledge across health ecosystems: a qualitative field study

Mediating knowledge across health ecosystems: a qualitative field study

Clinical Potential of Patient-Reported Outcome Measures in Occupational Therapy

Comparison of patient preferences and responsiveness among common patient-reported outcome measures for hand/wrist injuries or disorders

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