Patients’ roles and rights in research

Abstract

Full partnership with patients is essential to any modern research enterprise

Better together: patient partnership in medical journals

“…A study of the “value” added by patient and public review is planned. One particular concern from a survey of clinical trialists was the minimal effort and resources devoted to disseminating study results to participants and related communities14 We are committed to making improvements in this important area 6…”

Patients’ roles in research: where is Africa?

“…Patients’ roles and rights in research are vital 1. In Africa, the challenges are greater than in other parts of the world owing to the large educational and societal gap between researchers and patients.…”

Patients in research: one step in a long path

“…As Wicks and colleagues say, funding agencies often include patients on grant review committees 1. These patients, however, have little input into funding decisions.…”