Patients requiring pediatric palliative care for advanced heart disease in France: A descriptive study

Fay, C. La; Moine, Pierre; Blanc, Luana Otoni; Chahla, Wadih Abou; Hoang, N. Phan; Vial-Cholley, E.; Cojean, Nadine; Suc, Agnès; Saultier, Paul; Aries, E.; Ovaert, Caroline; Revon‐Rivière, Gabriel

doi:10.1016/j.arcped.2021.06.007

Cited by 2 publications

(9 citation statements)

References 26 publications

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“…32,35–38,40,49,56,63,64 Additionally, several articles referenced treatment goals 32,34,47,55,57,61,63 and one article cited ethical considerations. 48…”

Section: Resultsmentioning

confidence: 99%

“…Several articles ( n = 9, 24.3%) identified referral criteria categorized as care management. These criteria broadly stated needs for care coordination or planning, 43,48,55,61 home-based care, 47,48,63 and discharge planning. 65 A few articles cited pediatric palliative care referrals to support medication management 34,51 and the introduction of new medical technology.…”

Section: Resultsmentioning

confidence: 99%

“…These criteria included generalized end-of-life care, 31,34,40,43,49,56,57,61 hospice care, 32,40,47,49,56,57,61 and advanced care planning conversations. 43,48,55,64 Several articles also referenced conversations regarding allow natural death and/or do not resuscitate orders. 40,49,56,61, 63 The research led by Twamley 61 recognized emergency planning discussions and the cessation of mechanical ventilation as reasons for referral.…”

Section: Resultsmentioning

confidence: 99%

“…Two studies acknowledged family bereavement needs. 47,48 Alternatively, Liberman et al 52 used the absence of an advanced directive for a child with a complex chronic condition to engage with a pediatric palliative care team.…”

Section: Resultsmentioning

confidence: 99%

“…37,38 There were two additional articles focused on children with advanced cardiac disease who used different criteria. 48,55 Application of pediatric palliative care referral criteria…”

Section: Comparison Across Pediatric Illness Groupsmentioning

confidence: 99%

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Palliative care referral criteria and application in pediatric illness care: A scoping review

et al. 2023

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Background: Specialty pediatric palliative care services can help to address unmet care needs for children with complex and serious illness. Current guidelines support the identification of unmet palliative care needs; however, it is unknown how these guidelines or other clinical characteristics influence pediatric palliative care referral in research and practice. Aim: To evaluate the identification and application of palliative care referral criteria in pediatric illness care and research. Design: A scoping review with a content analysis approach to summarize results. Data sources: Five electronic databases (PubMed, CINAHL, PsycINFO, SCOPUS, and Academic Search Premier) were used to identify peer-reviewed literature published in English between January 2010 and September 2021. Results: We included 37 articles focused on the referral of pediatric patients to palliative care teams. The identified categories of referral criteria were: disease-related; symptom-related; treatment communication; psychosocial, emotional, and spiritual support; acute care needs; end-of-life care needs; care management needs; and self-referrals for pediatric palliative care services. We identified two validated instruments to facilitate palliative care referral and seven articles which described population-specific interventions to improve palliative care access. Nineteen articles implemented a retrospective health record review approach that consistently identified palliative care needs with varying rates of service use. Conclusions: The literature demonstrates inconsistent methods for identifying and referring children and adolescents with unmet palliative care needs. Prospective cohort studies and clinical trials would inform more consistent pediatric palliative care referral practices. More research is needed on palliative care referral and outcomes in community-focused pediatrics.

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“…32,35–38,40,49,56,63,64 Additionally, several articles referenced treatment goals 32,34,47,55,57,61,63 and one article cited ethical considerations. 48…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…37,38 There were two additional articles focused on children with advanced cardiac disease who used different criteria. 48,55 Application of pediatric palliative care referral criteria…”

Section: Comparison Across Pediatric Illness Groupsmentioning

confidence: 99%

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Palliative care referral criteria and application in pediatric illness care: A scoping review

et al. 2023

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Intervenções Do Enfermeiro Especialista Em Saúde Infantil E Pediátrica: Referenciação Da Criança Em Cuidados Paliativos

Couto,

Silva,

Fernandes

et al. 2023

JIM

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Introdução: Os Cuidados Paliativos Pediátricos objetivam melhorar a qualidade de vida da criança, jovem e família, portadora de doenças crónicas complexas, limitantes ou ameaçadoras de vida. No entanto, várias são as que, mesmo com critérios, nunca chegam a ser referenciadas, e as que são, tendem a ocorrer tardiamente na trajetória da doença. Objetivos: Identificar produção científica relativa à temática da Referenciação em Cuidados Paliativos Pediátricos. Metodologia: Revisão Integrativa da Literatura efetuada nas bases de dados: CINAHL Complete; MEDLINE Complete; Nursing & Allied Health Collection: Comprehensive e Cochrane Central Register of Controlled Trials, disponíveis motor de busca EBSCO, publicados entre 2012 e 2022. A seleção e análise de relevância dos artigos foi efetuada pelos revisores de forma independente. Resultados: Dos 231 artigos iniciais foram selecionados 13 artigos, segundo critérios previamente definidos. Verifica-se a necessidade de identificar o mais precocemente possível, as oportunidades de referenciação da criança e família para Cuidados Paliativos Pediátricos, reconhecendo os seus benefícios. As crenças e atitudes dos profissionais de saúde, e a ausência de conhecimento relativa aos Cuidados Paliativos Pediátricos, poderão ser barreiras à referenciação. Conclusão: Foi evidenciada a importância e os benefícios da precoce e adequada referenciação para Cuidados Paliativos Pediátricos, e de que forma o Enfermeiro Especialista em Saúde Infantil e Pediátrica pode intervir no sentido de facilitar o processo.

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Patients requiring pediatric palliative care for advanced heart disease in France: A descriptive study

Cited by 2 publications

References 26 publications

Palliative care referral criteria and application in pediatric illness care: A scoping review

Palliative care referral criteria and application in pediatric illness care: A scoping review

Intervenções Do Enfermeiro Especialista Em Saúde Infantil E Pediátrica: Referenciação Da Criança Em Cuidados Paliativos

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