Patients’ preference for involvement in medical decision making: A narrative review

Say, Richard; Murtagh, Madeleine J.; Thomson, Richard

doi:10.1016/j.pec.2005.02.003

Cited by 524 publications

(482 citation statements)

References 50 publications

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“…The higher preference for patient participation and higher perceived participation among Turkish-Dutch patients compared to Dutch patients are surprising findings, because most studies report a lower preference for participation and lower participation levels among ethnic minority patients (e.g., Schouten & Meeuwesen, 2006). The higher scores in our sample could be explained by measurement differences (Say, Murtagh, & Thomson, 2006). We asked patients to indicate (the importance of) their communicative contribution during the encounter, whereas most other studies focused on different aspects of patient participation, such as shared decision making or communication symmetry.…”

Section: Discussioncontrasting

confidence: 56%

Enhancing Health Communication Outcomes Among Ethnic Minority Patients: The Effects of the Match Between Participation Preferences and Perceptions and Doctor–Patient Concordance

Schinkel

Schouten

Street

et al. 2016

Journal of Health Communication

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Section: Discussioncontrasting

confidence: 56%

Enhancing Health Communication Outcomes Among Ethnic Minority Patients: The Effects of the Match Between Participation Preferences and Perceptions and Doctor–Patient Concordance

Schinkel

Schouten

Street

et al. 2016

Journal of Health Communication

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“…Whereas none of the younger patients who had gone through passive decision making were 'very satisfied' with TDM, more than half of the older patients with a passive role were 'very satisfied' with the decision making process. The association between patients' preference for participation in TDM and younger age has been found in several studies [24]. One possible explanation for this finding is a socio-cultural change in the patient-physician interaction.…”

Section: Discussionmentioning

confidence: 78%

Treatment decision making in prostate cancer: Patients’ participation in complex decisions

Fischer

Visser

Voerman

et al. 2006

Patient Education and Counseling

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Objective: (1) To explore to what degree prostate cancer (PC) patients felt they had participated in treatment decision making (TDM). (2) To determine whether perceived roles during TDM were associated with medical and sociodemographic variables. (3) To examine to what extent satisfaction with TDM was related to perceived role or medical and sociodemographic variables. Methods: Patients (n = 126) were recruited in hospitals and from the Dutch PC patient organization. The relationship between patients' role and stage of disease, treatment modality, age, social status and education was determined, as well as patients' satisfaction with TDM. Results: Most patients felt they had participated in TDM (autonomous 18%, collaborative 60%). Older patients and those with advanced disease more frequently reported not having been involved in decision making. Satisfaction with TDM was related to age and role in TDM but not to stage of disease or treatment modality. Younger men were least content when they had not been involved in decision making. Conclusion: Patients' level of participation and satisfaction with TDM appears to be related to medical and sociodemographic variables. Practice implications: Satisfaction with TDM may be related to patients' age and assumed role. It is recommended to take this into account when planning treatment for prostate cancer patients. #

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“…The preferences of cancer patients in this area have been widely studied (Say et al, 2006) but information is limited on the attitudes and practise of cancer clinicians when discussing treatments.…”

mentioning

confidence: 99%

The context influences doctors' support of shared decision-making in cancer care

2007

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Most cancer patients in westernised countries now want all information about their situation, good or bad, and many wish to be involved in decision-making. The attitudes to and use of shared decision-making (SDM) by cancer doctors is not well known. Australian cancer clinicians treating breast, colorectal, gynaecological, haematological, or urological cancer were surveyed to identify their usual approach to decision-making and their comfort with different decision-making styles when discussing treatment with patients. A response rate of 59% resulted in 624 complete surveys, which explored usual practice in discussing participation in decision-making, providing information, and perception of the role patients want to play. Univariate and multivariate analyses were performed to identify predictors of use of SDM. Most cancer doctors (62.4%) reported using SDM and being most comfortable with this approach. Differences were apparent between reported high comfort with SDM and less frequent usual practice. Multivariate analysis showed that specialisation in breast or urological cancers compared to other cancers (AOR 3.02), high caseload of new patients per month (AOR 2.81) and female gender (AOR 1.87) were each independently associated with increased likelihood of use of SDM. Barriers exist to the application of SDM by doctors according to clinical situation and clinician characteristics.

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Patients’ preference for involvement in medical decision making: A narrative review

Cited by 524 publications

References 50 publications

Enhancing Health Communication Outcomes Among Ethnic Minority Patients: The Effects of the Match Between Participation Preferences and Perceptions and Doctor–Patient Concordance

Enhancing Health Communication Outcomes Among Ethnic Minority Patients: The Effects of the Match Between Participation Preferences and Perceptions and Doctor–Patient Concordance

Treatment decision making in prostate cancer: Patients’ participation in complex decisions

The context influences doctors' support of shared decision-making in cancer care

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