Patients’ Perceptions of the Value of Current Vision

Abstract

Objective-To improve understanding and awareness of the impact of subfoveal choroidal neovascularization (CNV) on health-related quality of life, we sought to measure the preference value that patients with subfoveal CNV assigned to their health and vision status. Patients and Methods-Patients with subfoveal CNV completed telephone interviews about theirquality of life prior to enrollment and random treatment assignment in the Submacular Surgery Trials, a set of multi-center randomized controlled trials evaluating outcomes of submacular surgery compared with observation. The interviewers asked patients to rate their current vision on a scale from 0 (completely blind) to 100 (perfect vision). The interviewers also asked them to rate complete blindness and then perfect vision, assuming their health otherwise was the same as it was at the time of the interview, on a scale from 0 (dead) to 100 (perfect health with perfect vision). Scores were converted to a 0 to 1 preference value scale for health and vision status, where 0 represents death and 1 represents perfect health and vision.Results-Of 1015 participants enrolled in the Submacular Surgery Trials, 996 completed interviews that included the rating questions, and 792 (80%) answered all 3 rating questions in a manner permitting calculation of a single overall preference value for their current health and vision status on a scale from 0 (dead) to 1 (perfect). The mean preference value was 0.64 (median, 0.68; interquartile range, 0.51-0.80). The preference values correlated with age (Pearson correlation coefficient, −0.11; P=.002), patients' self-rated perception of overall health (Spearman correlation coefficient, 0.36; P<.001), and self-reported perception of vision (Spearman correlation coefficient, 0.47; P<.001). The preference values were significantly lower with poorer visual acuity in the better eye and greater evidence of dysfunction on either the Hospital Anxiety and Depression Scale or the

What Is the Value of Preference Values for Patient-Centered Eye Care?

“…1 To do so, they employed the Vision Preference Value Scale, which was first validated in 2004 in the Submacular Surgery Trial to measure the value that patients place on their vision. 2 Interestingly, the current study found similar results among patients from Thailand, the United Kingdom and United States. The authors justifiably conclude that their study has important implications for future research and for the delivery of patient-centered eye care.…”

How does age-related macular degeneration affect real-world visual ability and quality of life? A systematic review

“…Average values for AMD range from 0.60 to 0.81;105–107 patients with worse vision loss from AMD score lower than those with mild loss 105. A different utility value scale yielded mean preference values for nAMD patients of 0.62 to 0.64 108. Utility values allow comparisons between different health conditions.…”

<p>The use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice</p>

“…Some investigators, seeking instruments more sensitive to vision-related preference, have recommended use of the Vision Preference Value Scale, first validated in 2004, in which a score of 0 is equivalent to an outcome as bad as death, and a score of 1.0 is equivalent to perfect vision 42. However, caution is needed in interpreting the findings of studies using a “vision-truncated scale,” and scales anchored by vision are not generally used in cost-effectiveness analysis 43…”