Patients' perception of hope in palliative care: A systematic review and narrative synthesis

Velić, Sanda; Qama, Enxhi; Diviani, Nicola; Rubinelli, Sara

doi:10.1016/j.pec.2023.107879

Cited by 3 publications

(1 citation statement)

References 76 publications

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“…It would be very helpful to develop an interdisciplinary bio-psycho-social–spiritual care strategy to learn how hope is understood and characterized in all aspects of thought of patients with terminal cancer [ 46 ]. By understanding and analyzing the causes that decrease stress levels and increase the level of positively directed hope, healthcare providers can plan integral care that alleviates symptoms characteristic of the terminal stage of cancer and better prepare the patient approaching the end of their life [ 47 ].…”

Section: Discussionmentioning

confidence: 99%

The Meaning of Hope for Polish Male Patients Dying from Cancer Depending on Their Age: An Interdisciplinary Study with the Use of Osgood’s Semantic Differential Method

Baczewska,

Antoszewska,

Siwko

et al. 2024

JCM

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Background/Objectives: The subject of this article is the reflection on hope—one of the most important predictors and motivators of human actions. Hope is our response to a threat, and it is also the emotion that allows us to overcome hopelessness and to reduce suffering. Hoping is a human capacity with varying cognitive, emotional, and functional dimensions. Psychological, pedagogical (particularly in the framework of special-needs pedagogy and thanatological pedagogy), and theological reflection on hope can be helpful for dying people. The objective of this study was to characterize hope in the semantic space of individuals in the terminal stage of cancer and to verify whether age is a variable that determines this hope. Methods: To complete the study, the Osgood semantic differential method was applied, as modified by Polish psychologist Dr. Boguslaw Block (the DSN-3 test). The research technique consisted of a therapeutic conversation. Results: Research results show that, in general, those in the terminal stage have positive associations with hope. In all three aspects of the used test, namely the cognitive, emotional, and functional aspects, the highest scores assigned to the perception of hope were obtained from men up to 35 years of age. Depending on the ages of patients, one could observe certain semantic shifts, but they did not prove to be statistically significant. Conclusions: Polish males surveyed at the end of life due to cancer generally perceived hope as a supportive force. Therefore, hope can provide emotional support to patients in the terminal stage of cancer and improve their quality of life.

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Section: Discussionmentioning

confidence: 99%

The Meaning of Hope for Polish Male Patients Dying from Cancer Depending on Their Age: An Interdisciplinary Study with the Use of Osgood’s Semantic Differential Method

Baczewska,

Antoszewska,

Siwko

et al. 2024

JCM

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The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study

Befecadu,

Gonçalves,

Fernandes

et al. 2024

BMC Palliat Care

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Background Hope is an important resource that helps patients and families thrive during difficult times. Although several studies have highlighted the importance of hope in different contexts, its specific manifestations in the realm of advanced chronic illness need further exploration. In this study, we sought to elucidate the intricate interplay between the construct of hope and the lived experience of advanced chronic illness within patient-caregiver dyads. Our objectives were (a) to explore the dyadic experience of hope as a changing dynamic over time for patients living with advanced chronic illness and their informal caregivers and (b) to evaluate variations of hope and symptom burden across time. Methods We conducted a longitudinal mixed-methods study with a convergent design between December 2020 and April 2021. Patients living with advanced chronic illness and informal caregivers participated as a dyad (n = 8). The Herth Hope Index scale was used to measure dyads' level of hope and the Edmonton Symptom Assessment System was used to measure patients’ symptom burden. Descriptive statistics were undertaken. A thematic analysis as described by Braun and Clarke was conducted to analyze dyadic interview data. Dyads' experience of hope was described by using the six dimensions of hope in the Model of Hope of Dufault and Martocchio. Results Dyadic scores of hope and patients' symptom burden were stable over time. The constructs of hope in dyads included “Living one day at the time,” “Having inner force/strength,” and “Maintaining good health.” Changes in patterns of hope were captured for each dyad in their transition over time. Data converged for all dyads except one. Conclusions The findings of our study show a constant presence of hope even in the face of adversity. Healthcare professionals must find ways to promote hope in dyads of patients living with advanced chronic diseases. Nurses play a pivotal role; dyadic interviews should be promoted to create a safe space for both patients and informal caregivers in order to share experiences. More research is needed to address patients' and informal caregivers' hope in chronic illness because current hope-based interventions primarily target cancer diagnoses.

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The effect of MBCT mindfulness-based cognitive therapy techniques on increasing hope in cancer patients undergoing radiotherapy

Yazdani,

Sarafraz

2024

IJHES

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The present study was conducted to investigate the effect of mindfulness techniques on increasing hope in cancer patients undergoing radiotherapy. For this purpose, 30 cancer patients in two control and experimental groups were available by sampling. This research method was semi-experimental, and in this regard, Freiberg (2001) and Snyder (1991) hope test questionnaires were used to collect data. The subjects of the experimental group participated in 8 sessions of 35 minutes of individual psychological therapy of mindfulness. The Freiberg test was performed in the experimental group to mentally prepare the patients for the research before the mindfulness sessions. Also, the subjects responded to Snyder's hope questionnaire as a pre-test and post-test. For data analysis, mean difference and analysis of covariance test (ANCOVA) were used in SPSS software version 22. The findings showed that mindfulness techniques have a positive effect on increasing hope in cancer patients. These findings can provide a new platform for optimal psychological interventions along with medical treatments, to help cancer patients undergoing treatment.

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Patients' perception of hope in palliative care: A systematic review and narrative synthesis

Cited by 3 publications

References 76 publications

The Meaning of Hope for Polish Male Patients Dying from Cancer Depending on Their Age: An Interdisciplinary Study with the Use of Osgood’s Semantic Differential Method

The Meaning of Hope for Polish Male Patients Dying from Cancer Depending on Their Age: An Interdisciplinary Study with the Use of Osgood’s Semantic Differential Method

The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study

The effect of MBCT mindfulness-based cognitive therapy techniques on increasing hope in cancer patients undergoing radiotherapy

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