Patients’ needs assessment in cancer care: a review of assessment tools

Richardson, Alison; Medina, Jibby; Brown, Vivienne; Sitzia, John

doi:10.1007/s00520-006-0205-8

Cited by 195 publications

(208 citation statements)

References 46 publications

(37 reference statements)

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“…Additionally, the findings revealed a lack of strategy for a common database for registering the effects of the assessments of rehabilitation needs across the sectors and regions that had been set in motion. This finding is supported by Richardson et al (2007) in a British review showing that there is a dearth of evaluations of the viability of measurement tools, professional clinical applicability and the effects on patient outcomes [24]. Rehabilitation of cancer patients should be set up to include evaluation and organized on an evidence base.…”

Section: Dt Not Integrated In From Patients' Treatment Protocolmentioning

confidence: 96%

Assessment of rehabilitation needs in colorectal cancer treatment: Results from a mixed audit and qualitative study in Denmark

et al. 2016

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Background Systematic assessments of cancer patients' rehabilitation needs are a prerequisite for devising appropriate survivorship programs. Little is known about the fit between needs assessment outlined in national rehabilitation policies and clinical practice. This study aimed to explore clinical practices related to identification and documentation of rehabilitation needs among patients with colorectal cancer at Danish hospitals. Material and methods A retrospective clinical audit was conducted utilizing data from patient files randomly selected at surgical and oncology hospital departments treating colorectal cancer patients. Forty patients were included, 10 from each department. Semi-structured interviews were carried out among clinical nurse specialists. Audit data was analyzed using descriptive statistics, qualitative data using thematic analysis. Results Documentation of physical, psychological and social rehabilitation needs initially and at end of treatment was evident in 10% (n ¼ 2) of surgical patient trajectories and 35% (n ¼ 7) of oncology trajectories. Physical rehabilitation needs were documented among 90% (n ¼ 36) of all patients. Referral to municipal rehabilitation services was documented among 5% (n ¼ 2) of all patients. Assessments at surgical departments were shaped by the inherent continuous assessment of rehabilitation needs within standardized fast-track colorectal cancer surgery. In contrast, the implementation of locally developed assessment tools inspired by the distress thermometer (DT) in oncology departments was challenged by a lack of competencies and funding, impeding integration of data into patient files. Conclusion Consensus must be reached on how to ensure more systematic, comprehensive assessments of rehabilitation needs throughout clinical cancer care. Fast-track surgery ensures systematic documentation of physical needs, but the lack of inclusion of data collected by the DT in oncological departments questions the efficacy of assessment tools and points to a need for distinguishing between surgical and oncological settings in national rehabilitation policies.

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Section: Dt Not Integrated In From Patients' Treatment Protocolmentioning

confidence: 96%

Assessment of rehabilitation needs in colorectal cancer treatment: Results from a mixed audit and qualitative study in Denmark

et al. 2016

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“…Needs of patients with various cancer diagnoses are often assessed with a variety of questionnaires constructed for people with cancer [7]. Most instruments include a wide range of items covering various need domains, with respondents being asked to rate their level of need for each item.…”

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confidence: 99%

Fear of cancer recurrence and unmet needs among breast cancer survivors in the first five years. A cross-sectional study

et al. 2017

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Background: It is unclear to which degree the services available after end of treatment are sufficient to meet the needs of women treated for breast cancer. The aim of the present study was to identify patient-reported supportive care needs and the prevalence of fear of cancer recurrence (FCR) following end of treatment in women treated for breast cancer. Material and methods: Using a cross-sectional design, women treated for breast cancer (n ¼ 155; mean age 63) completed questionnaires concerning supportive care needs and FCR. Inclusion criteria were: !18 years of age and treated for primary breast cancer at Aarhus University Hospital, Aarhus, Denmark and between three months and five years after diagnosis. Associations between demographic characteristics, clinical factors, side effects, late effects and the two dependent variables, unmet needs (examined with linear regression model), and FCR (examined with logistic regression model) were analyzed. Results: The response rate was 79.9%. Almost all (82.6%) women reported at least one unmet need (mean number 9.3; range 0-34). More than half (59.3%) of the unmet needs were rated as strong unmet needs. The most frequent unmet needs were concerned with doctors collaborate to coordinate care; the need for having ongoing dialog with healthcare providers to receive available local health care services, understandable and up-to-date information, to manage side effects and feeling reassured that the best medical care are given. Having unmet needs were associated with young age, short time since primary surgery, and having clinical FCR. FCR was reported by 54.8% of the women and was associated with short time since primary surgery, having chemotherapy, having unmet needs, and moderate to severe muscle and joint pain and fatigue. Conclusions: Breast cancer survivors experience substantial unmet needs years after end of treatment, particularly among younger women and women having clinical FCR. Furthermore, FCR is frequent among women, particularly when closer in time to primary surgery.

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“…To guide the assessment process and to operationalize its content, several authors have suggested structuring the information collection with the help of various tools such as questionnaires or interview guides (Richardson, Medina, Brown, & Sitzia, 2007;Wen & Gustafson, 2004). In Quebec, PNOs have been using since 2013 a standardized form entitled "Évaluation initiale du client suivi en oncologie" [Oncology Patient Assessment] to guide their interviews and collate their information (Fournier et al, 2013).…”

Section: Resultsmentioning

confidence: 99%

“…As none of these tools are able to pinpoint the population's needs on their own, an approach combining self-administered questionnaires, a semi-structured interview and tools speci c for certain conditions is recommended (Richardson et al, 2007;Wen & Gustafson, 2004). Thus, the assessment process is primarily based on a person-centred approach to establish a therapeutic relationship and draws upon knowledge, clinical skills and the use of speci c tools.…”

Section: Discussionmentioning

confidence: 99%

An integrative framework to support the assessment function of Quebec’s pivot nurses in oncology

Fournier¹,

Simard²,

Veillette³

et al. 2015

CONJ

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Patients’ needs assessment in cancer care: a review of assessment tools

Abstract: There is a need to continue to develop and test tools that have the attributes necessary for effective practice and to research their effects on the quality of supportive cancer care.

Cited by 195 publications

References 46 publications

Assessment of rehabilitation needs in colorectal cancer treatment: Results from a mixed audit and qualitative study in Denmark

Assessment of rehabilitation needs in colorectal cancer treatment: Results from a mixed audit and qualitative study in Denmark

Fear of cancer recurrence and unmet needs among breast cancer survivors in the first five years. A cross-sectional study

An integrative framework to support the assessment function of Quebec’s pivot nurses in oncology

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