Patients’ knowledge, preferences, and perspectives about data protection and data control: an exploratory survey
Teodora Lalova-Spinks,
Robbe Saesen,
Mitchell Silva
et al.
Abstract:Background: In the European Union, the General Data Protection Regulation (GDPR) plays a central role in the complex health research legal framework. It aims to protect the fundamental right to the protection of individuals’ personal data, while allowing the free movement of such data. However, it has been criticized for challenging the conduct of research. Existing scholarship has paid little attention to the experiences and views of the patient community. The aim of the study was to investigate 1) the awaren… Show more
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