Patients’ Knowledge of Prenatal Screening for Trisomy 21

Sheinis, Michal; Bensimon, Kira; Selk, Amanda

doi:10.1007/s10897-017-0126-3

Cited by 18 publications

(11 citation statements)

References 31 publications

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“…Higher health literacy scores correlated positively and significantly with knowledge of age-related pregnancy risks in the study by Sheinis et al [26]. However, in a different study by Sheinis et al health literacy was not associated with knowledge of trisomy 21 [24].…”

Section: Objective Two: Effect Of Health Literacy On Outcomes During Pregnancymentioning

confidence: 68%

Health Literacy in Pregnant Women: A Systematic Review

Nawabi

Krebs

Vennedey

et al. 2021

IJERPH

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Health literacy plays a crucial role during pregnancy, as the mother’s health behavior influences both her own health and that of her child. To the authors’ best knowledge, no comprehensive overview on evidence of the health literacy of pregnant women and its impact on health outcomes during pregnancy exists. Therefore, this review aims to assess health literacy levels in pregnant women, whether health literacy is associated with outcomes during pregnancy and whether effective interventions exist to improve the health literacy of pregnant women. A systematic literature search was conducted in PubMed and EBSCO, resulting in 14 studies. The results show mixed levels of health literacy in pregnant women. Limited health literacy is associated with unhealthy behaviors during pregnancy. Mixed health literacy levels can be attributed to the recruitment site, the number of participants and the measurement tool used. Quality assessment reveals that the quality of the included studies is moderate to good. The review revealed that randomized controlled trials and interventions to improve health literacy in pregnant women are rare or do not exist. This is crucial in the light of the mixed health literacy levels found among pregnant women. Healthcare providers play a key role in this context, as pregnant women with limited health literacy rely on them as sources of health information.

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Section: Objective Two: Effect Of Health Literacy On Outcomes During Pregnancymentioning

confidence: 68%

Health Literacy in Pregnant Women: A Systematic Review

Nawabi

Krebs

Vennedey

et al. 2021

IJERPH

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“…6,16,17 Our study highlights the need to revisit how prenatal care is genetic screening. 5,6 Our study found that participants had outdated notions of risk centered on the notion of advanced maternal age as a prime determinant of genetic risk. This stands in contrast to the prevailing stance to do away with maternal age as an indication for screening or testing.…”

Section: Discussionmentioning

confidence: 80%

“…This is due to the varying health literacy levels and numeracy skills that patients bring to the visit, as well as the personal and value-laden nature of prenatal genetic-testing decisions. [3][4][5][6]7 Other information necessary to convey at this first prenatal visit may include management of preexisting medical conditions, medication use, vaccination, and other emerging concerns for the pregnancy (eg, Zika virus, COVID-19). 8 As a result, the first prenatal visit is unique in that a large volume of information must be effectively conveyed and discussed between the patient and her provider.…”

Section: Introductionmentioning

confidence: 99%

Making the most of the first prenatal visit: The challenge of expanding prenatal genetic testing options and limited clinical encounter time

et al. 2020

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Objective Advances in prenatal genetics place additional challenges as patients must receive information about a growing array of screening and testing options. This raises concerns about how to achieve a shared decision‐making process that prepares patients to make an informed decision about their choices about prenatal genetic screening and testing options, calling for a reconsideration of how healthcare providers approach the first prenatal visit. Methods We conducted interviews with 40 pregnant women to identify components of decision‐making regarding prenatal genetic screens and tests at this visit. Analysis was approached using grounded theory. Results Participants brought distinct notions of risk to the visit, including skewed perceptions of baseline risk for a fetal genetic condition and the implications of screening and testing. Participants were very concerned about financial considerations associated with these options, ranking out‐of‐pocket costs on par with medical considerations. Participants noted diverging priorities at the first visit from those of their healthcare provider, leading to barriers to shared decision‐making regarding screening and testing during this visit. Conclusion Research is needed to determine how to restructure the initiation of prenatal care in a way that best positions patients to make informed decisions about prenatal genetic screens and tests.

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“…Existing studies have explored anxiety levels (Çakar et al, 2016; Kaasen et al, 2017; Nakić Radoš et al, 2013), decisional conflicts (Arimori, 2006), informed decisions and knowledge levels (Cloutier et al, 2017; Sheinis et al, 2018; Thompson et al, 2015) and decision satisfaction levels (Cloutier et al, 2017; Doan et al, 2017; Thompson et al, 2015) of pregnant women related to prenatal genetic screening and diagnostic testing. These studies mostly considered one or a few variables.…”

Section: Discussionmentioning

confidence: 99%

“…Existing studies on prenatal genetic screening and diagnostic testing found that counselling pregnant women about these tests increased their knowledge and decreased anxiety and decisional conflicts (Cloutier et al, 2017; Nakić Radoš et al, 2013; Schoonen et al, 2012). Various studies on prenatal genetic screening and diagnostic testing have explored the anxiety levels (Çakar et al, 2016; Kaasen et al, 2017; Nakić Radoš et al, 2013), decisional conflicts (Arimori, 2006), informed decision making and decision‐relevant knowledge (Cloutier et al, 2017; Sheinis et al, 2018; Thompson et al, 2015) and the decision satisfaction of pregnant women (Cloutier et al, 2017; Doan et al, 2017; Thompson et al, 2015). However, we have not found a study that addresses the effects of prenatal genetic screening and diagnostic test counselling from a holistic perspective.…”

Section: Introductionmentioning

confidence: 99%

Counselling and education for prenatal screening and diagnostic tests for pregnant women: Randomized controlled trial

Yeşilçınar

Güvenç

2021

Int J of Nursing Practice

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Aim The aim of this study is to evaluate the effect of education and counselling on prenatal screening and diagnostic tests on pregnant women's decisional conflict, anxiety levels and attitudes towards the tests. Background Clinical practice guidelines recommend prenatal genetic counselling for pregnant women before participation in the tests. Methods A total of 210 pregnant women participated in the study by completing the State–Trait Anxiety Inventory‐I, Decisional Conflict Scale, SURE Scale, Knowledge Assessment Forms, Decision Satisfaction Form and Attitudes Scale between June 2017 and March 2018. In the first stage, pregnant women were evaluated who had only prenatal genetic screening tests and in the second stage, pregnant women who had been recommended to receive diagnostic tests. The intervention group received face‐to‐face individual education and counselling about prenatal genetic tests. Independent samples t test, t tests and Pearson correlation tests were used. Results Education and counselling for prenatal screening tests and diagnostic tests from the first weeks of pregnancy were effective in decreasing anxiety, decisional conflict, increasing attitudes towards tests and had positive effects on pregnant women's knowledge level and decision satisfaction (P < 0.005). Conclusion Prenatal genetic counselling and education are more effective if provided from the first weeks of pregnancy. Decreasing anxiety, decisional conflict and increasing knowledge levels of pregnant women are important to make informed decisions.

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Patients’ Knowledge of Prenatal Screening for Trisomy 21

Cited by 18 publications

References 31 publications

Health Literacy in Pregnant Women: A Systematic Review

Health Literacy in Pregnant Women: A Systematic Review

Making the most of the first prenatal visit: The challenge of expanding prenatal genetic testing options and limited clinical encounter time

Counselling and education for prenatal screening and diagnostic tests for pregnant women: Randomized controlled trial

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