Patients’ experience of oxygen therapy and dyspnea: a qualitative study in home palliative care

Jaturapatporn, Darin; Moran, Erica L.; Obwanga, Chris; Husain, Amna

doi:10.1007/s00520-010-0860-7

Cited by 27 publications

(14 citation statements)

References 24 publications

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“…2 Supplemental oxygen (SOx) represents one such treatment modality and is utilized widely in institutional settings as well as at home. 3 Possible benefits include symptomatic and functional improvement, as well as the perception that oxygen is life-sustaining. Patients with underlying hypoxia are more likely to benefit 4 ; however, in certain settings there is no significant dyspnea reduction between hypoxic and nonhypoxic patients.…”

Section: Introductionmentioning

confidence: 99%

Humidified High-Flow Nasal Oxygen Utilization in Patients with Cancer at Memorial Sloan-Kettering Cancer Center

Epstein

Hartridge-Lambert

Ramaker

et al. 2011

Journal of Palliative Medicine

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Dyspnea is a common and important symptom in cancer patients for which SOx traditionally has had no clear basis except in select cases of hypoxia and patient preference. Our institutional experience with HHFNOx contributes to the understanding of the applications and challenges surrounding the use of new medical devices in the cancer population. Physiologic and quality-of-life benefits of HHFNOx compared with traditional oxygen delivery methods should be studied prospectively.

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Section: Introductionmentioning

confidence: 99%

Humidified High-Flow Nasal Oxygen Utilization in Patients with Cancer at Memorial Sloan-Kettering Cancer Center

Epstein

Hartridge-Lambert

Ramaker

et al. 2011

Journal of Palliative Medicine

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“…The attitude of the patient and family in the Malaysian context toward oxygen therapy is that it is a vital life-saving equipment. [23] It is difficult to not prescribe oxygen in dyspneic patients. However, continuous oxygen is not without its adverse effects on quality of life.…”

Section: Discussionmentioning

confidence: 99%

Dyspnea management in palliative home care: A case series in Malaysia

Thongkhamcharoen¹,

Breaden²,

Agar³

et al. 2012

Indian J Palliat Care

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Managing dyspnea at home is a challenging task. Although a competent palliative home care team can assist a patient to live at home with better pain control, dyspnea is usually not as well managed. In the Asian context, there are few research studies in dyspnea management in palliative home care. This paper aims to illustrate the cultural context that has an impact on dyspnea management at home and the assessment and management of dyspnea in a community palliative care setting in Malaysia. This paper reports on a study of 5 dyspneic patients suffering from both cancer-related and non–cancer-related dyspnea. Its focus is on a unique Asian cultural belief system that affects communication about prognosis and the role of family in palliative home care. In addition, this paper also describes dyspnea assessment, the barriers to morphine use, benzodiazepine prescription, oxygen therapy, and nonpharmacologic intervention in this center.

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“…Furthermore, the prescription of domiciliary oxygen may compromise patients' autonomy and mobility [10]. For example, an earlier study showed that people with caregivers were more likely to receive home oxygen; and people who lived alone had twice as many visits by a clinician before oxygen was prescribed than those who did not.…”

Section: Introductionmentioning

confidence: 99%

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

Collier

Breaden

Phillips

et al. 2017

Journal of Pain and Symptom Management

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word count: 242Reference count: 24 Table and ObjectivesThe aim of this study was to understand caregiver factors associated with caring for someone with LTOT from the perspectives and experiences of caregivers themselves. MethodsThe qualitative study used semi-structured interviews. The study was conducted in two states in Australia. Participants (n=20) were self-nominated caregivers of people receiving LTOT for refractory breathlessness in the palliative setting. ResultsData analyses established one overarching theme titled: 'Oxygen giveth (something to help caregivers relieve breathlessness) and oxygen taketh away (from patients who lose some autonomy)'. The theme captured caregivers' feelings of extreme distress in response to witnessing refractory breathlessness, and oxygen fulfilling several critical and beneficial roles in this context. In parallel caregivers also explicitly and implicitly articulated several downsides to the use of LTOT. ConclusionCaregivers find caring for someone with refractory breathlessness extremely distressing. The benefits of LTOT are often over-estimated while its potential harms are under-estimated. As significant stakeholders in care of people receiving LTOT caregivers should be provided with opportunities to collaborate with clinicians in evidence based decision making and efforts should be made to provide them with information and education about the most effective pharmacological and nonpharmacological strategies to manage refractory breathlessness in a palliative care setting including the appropriate use of LTOT to enable them to do so. 4Introduction and background

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Patients’ experience of oxygen therapy and dyspnea: a qualitative study in home palliative care

Abstract: The advantages of oxygen usage outweighed the disadvantages for this sample of patients in the home palliative setting.

Cited by 27 publications

References 24 publications

Humidified High-Flow Nasal Oxygen Utilization in Patients with Cancer at Memorial Sloan-Kettering Cancer Center

Humidified High-Flow Nasal Oxygen Utilization in Patients with Cancer at Memorial Sloan-Kettering Cancer Center

Dyspnea management in palliative home care: A case series in Malaysia

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

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