Patient Use of Electronic Methods to Self-Report Symptoms: An Integrative Literature Review

Carrasco, Sharyn; Symes, Lene

doi:10.1188/18.onf.399-416

Cited by 16 publications

(12 citation statements)

References 66 publications

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“…31 Items are rated on a 4-point Likert-type scale, ranging from 0 (not at all) to 3 (nearly every day). Items were summed to create a total score that represents no depression symptoms (0-4), mild (5-9), moderate (10)(11)(12)(13)(14), moderately severe (15)(16)(17)(18)(19), or severe (20)(21)(22)(23)(24)(25)(26)(27).…”

Section: Patient Health Questionnaire-9 (Phq-9)mentioning

confidence: 99%

“…32 Each item is scored on a 4-point Likert scale indicating symptom frequency, ranging from 0 (not at all) to 3 (nearly every day). The GAD-7 total score can range from 0 to 21, further categorized as no anxiety (0-5), mild (6-10), moderate (11)(12)(13)(14)(15), or severe (16)(17)(18)(19)(20)(21) anxiety.…”

Section: Generalized Anxiety Disorder 7 Item Survey (Gad-7)mentioning

confidence: 99%

“…18 Previous studies have indicated that implementation of ePROMs is feasible. [19][20][21][22] For example, Schick-Makaoff et al demonstrated that using tablet computers to assess the KDQOL-36 along with Edmonton Symptom Assessment Scale was feasible among home dialysis patients. 23 However, additional work is needed to determine feasibility of using ePROMs specifically in older patients with ESRD on HD.…”

Section: Introductionmentioning

confidence: 99%

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Rapid Electronic Capturing of Patient-Reported Outcome Measures in Older Adults With End-Stage Renal Disease: A Feasibility Study

Gabbard

McLouth

Brenes

et al. 2020

Am J Hosp Palliat Care

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Background: Patients with end-stage renal disease (ESRD) have a high burden of physical and psychological symptoms. Many remain unrecognized for long periods of time, particularly in older adults. The best strategy to monitor patient-reported outcome measures (PROMs) has not been identified. Objective: To assess the feasibility of implementing an iPad-based symptom assessment tool in older adults with ESRD on hemodialysis (HD). Methods: We designed an iPad application-delivery system for collecting electronic PROMs (ePROMs). Patient’s ≥60 years of age with ESRD on HD were recruited from a single outpatient dialysis unit. Feasibility was evaluated based on recruitment, retention, and the system usability score (SUS). Assessments were completed at baseline, 3 months, and 6 months after enrollment. ANOVA was used to assess longitudinal symptom variability. Results: Twenty-two patients (49% recruitment rate) were enrolled, with an 82% retention at 6 months. Mean age was 69.4 years (SD 6.6), 63.6% were female, and 81.8% were African American. Participants reported minimal difficulty in using the app, with an overall SUS score of 77.6. There were no significant relationships between demographic characteristics (age, race, or education) and SUS. Baseline SF-12 physical score and SF-12 mental score were 40.4 (SD 9.1) and 33.9 (SD 6.7), respectively. No significant changes were seen in longitudinal ePROMs of pain, depression, or anxiety; but was seen in the dialysis symptom index. Conclusion: In older patients with ESRD, collection of iPad-based ePROMs is feasible. This process can overcome inefficiencies associated with paper questionnaires and enable systematic monitoring of symptom burden.

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Section: Patient Health Questionnaire-9 (Phq-9)mentioning

confidence: 99%

Section: Generalized Anxiety Disorder 7 Item Survey (Gad-7)mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Rapid Electronic Capturing of Patient-Reported Outcome Measures in Older Adults With End-Stage Renal Disease: A Feasibility Study

Gabbard

McLouth

Brenes

et al. 2020

Am J Hosp Palliat Care

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“…In addition, clinic-based reporting systems may not be optimal for patients receiving oral anticancer therapies, who often have less frequent clinical follow-up visits. e-SRS has been shown to improve symptoms and survival in patients with cancer [12,18,19]. However, to achieve these benefits, patients' acceptance and voluntary use of home-based e-SRS are essential for establishing long-term benefits of symptom self-reporting [8,20].…”

Section: Introductionmentioning

confidence: 99%

Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review

Cho¹,

Zhang²,

Harris³

et al. 2021

J Med Internet Res

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Background Electronic symptom self-reporting systems (e-SRS) have been shown to improve symptoms and survival in patients with cancer. However, patient engagement in using e-SRS for voluntary symptom self-reporting is less optimal. Multiple factors can potentially affect patients’ acceptance and engagement in using home-based e-SRS. However, such factors have not been fully explored in cancer populations. Objective The aim of this study is to understand the acceptance and use of home-based e-SRS by patients with cancer and identify associated facilitators and barriers. Methods PubMed, CINAHL, Scopus, and PsycINFO (January 2010 to March 2020) were searched using a combination of Medical Subject Headings (MeSH) terms and keywords such as symptom self-reporting, electronic/technology, cancer, and their synonyms. Included studies focused on the use of home-based e-SRS by patients with cancer and their families. Studies on patients’ use of e-SRS in clinical settings only were excluded. Of the 3740 papers retrieved, 33 were included in the final review. Factors associated with patient acceptance and use of e-SRS were extracted and synthesized. Results Most e-SRS were web based (22/33, 66%) or mobile app based (9/33, 27%). The e-SRS initial acceptance, represented by patient enrollment rates, ranged from 40% (22/55) to 100% (100/100). High e-SRS acceptance was rated by 69% (59/85) to 77.6% (337/434) of the patients after they used the system. The e-SRS use, measured by patients’ response rates to questionnaires (ranging from 1596/3521, 45.33% to 92%) or system log-on rates (ranging from 4/12, 33% to 99/100, 99%), declined over time in general patterns. Few studies (n=7) reported e-SRS use beyond 6 months, with the response rates ranging from 62% (40/64) to 85.1% (541/636) and the log-on rates ranging from 63.6% (103/162) to 77% (49/64). The availability of compatible devices and technical support, interactive system features, information accessibility, privacy, questionnaire quality, patient physical/psychosocial status, and age were associated with patient acceptance and use of home-based e-SRS. Conclusions Acceptance and use of home-based e-SRS by patients with cancer varied significantly across studies, as assessed by a variety of approaches. The lack of access to technology has remained a barrier to e-SRS adoption. Interactive system features and personalized questionnaires may increase patient engagement. More studies are needed to further understand patients’ long-term use of home-based e-SRS behavior patterns to develop personalized interventions to support symptom self-management and self-reporting of patients with cancer for optimal health outcomes.

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“…Remote symptom reporting using electronic technology systems outside cancer clinic settings, that is, using telehealth, play an increasingly significant role in this partnership [11]. Using home-based e-SRS, patients can report their signs and symptoms earlier than waiting for their next clinical visits, facilitating more efficient and effective symptom management [5,12]. Home-based e-SRS can be cost-effective because of the low cost of data collection using electronic surveys and timely identification and management of early symptoms before becoming severe [11,13].…”

Section: Introductionmentioning

confidence: 99%

Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review (Preprint)

Cho¹,

Zhang²,

Harris³

et al. 2020

Preprint

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BACKGROUND Electronic symptom self-reporting systems (e-SRS) have been shown to improve symptoms and survival in patients with cancer. However, patient engagement in using e-SRS for voluntary symptom self-reporting is less optimal. Multiple factors can potentially affect patients’ acceptance and engagement in using home-based e-SRS. However, such factors have not been fully explored in cancer populations. OBJECTIVE The aim of this study is to understand the acceptance and use of home-based e-SRS by patients with cancer and identify associated facilitators and barriers. METHODS PubMed, CINAHL, Scopus, and PsycINFO (January 2010 to March 2020) were searched using a combination of Medical Subject Headings (MeSH) terms and keywords such as symptom self-reporting, electronic/technology, cancer, and their synonyms. Included studies focused on the use of home-based e-SRS by patients with cancer and their families. Studies on patients’ use of e-SRS in clinical settings only were excluded. Of the 3740 papers retrieved, 33 were included in the final review. Factors associated with patient acceptance and use of e-SRS were extracted and synthesized. RESULTS Most e-SRS were web based (22/33, 66%) or mobile app based (9/33, 27%). The e-SRS initial acceptance, represented by patient enrollment rates, ranged from 40% (22/55) to 100% (100/100). High e-SRS acceptance was rated by 69% (59/85) to 77.6% (337/434) of the patients after they used the system. The e-SRS use, measured by patients’ response rates to questionnaires (ranging from 1596/3521, 45.33% to 92%) or system log-on rates (ranging from 4/12, 33% to 99/100, 99%), declined over time in general patterns. Few studies (n=7) reported e-SRS use beyond 6 months, with the response rates ranging from 62% (40/64) to 85.1% (541/636) and the log-on rates ranging from 63.6% (103/162) to 77% (49/64). The availability of compatible devices and technical support, interactive system features, information accessibility, privacy, questionnaire quality, patient physical/psychosocial status, and age were associated with patient acceptance and use of home-based e-SRS. CONCLUSIONS Acceptance and use of home-based e-SRS by patients with cancer varied significantly across studies, as assessed by a variety of approaches. The lack of access to technology has remained a barrier to e-SRS adoption. Interactive system features and personalized questionnaires may increase patient engagement. More studies are needed to further understand patients’ long-term use of home-based e-SRS behavior patterns to develop personalized interventions to support symptom self-management and self-reporting of patients with cancer for optimal health outcomes.

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Patient Use of Electronic Methods to Self-Report Symptoms: An Integrative Literature Review

Abstract: In the studies that included an interactive communication component, oncology nurses were central in receiving, reviewing, and reporting changes to the provider. Patients expressed themselves more when consulting with nurses than with physicians.

Cited by 16 publications

References 66 publications

Rapid Electronic Capturing of Patient-Reported Outcome Measures in Older Adults With End-Stage Renal Disease: A Feasibility Study

Rapid Electronic Capturing of Patient-Reported Outcome Measures in Older Adults With End-Stage Renal Disease: A Feasibility Study

Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review

Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review (Preprint)

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