Patient‐reported outcomes and personalised cancer care

Koczwara, Bogda; Bonnamy, James; Briggs, Peggy; Brown, Bena; Butow, Phyllis; Chan, Raymond Javan; Cohn, Richard J.; Girgis, Afaf; Jefford, Michael; Joske, David; Licqurish, Sharon; Mackay, Gillian; Saunders, Christobel; Webber, Kate

doi:10.5694/mja2.50893

Cited by 10 publications

(13 citation statements)

References 13 publications

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“…It is well embedded in the workflow if the ePRO collection is not considered an additional task but is rather a workload reallocation. In addition, it needs to be perceived that it meets a patient’s need, reduces (undesirable) care variation, and optimizes the use of resources and multidisciplinary care [ 1 ]. In the clinic, managers, information technology specialists, data managers, and security officers also need to be involved in implementation.…”

Section: Epro Methodology and Implementationmentioning

confidence: 99%

“…Self-management advice is not yet a common feature of ePRO-infrastructures for routine care [ 15 ]. As far as we know, OncoKompas is the only monitoring system that uses reasoning pathways to generate personalized self-management advice for cancer survivors based on ePRO data and cancer type [ 1 ]. Moreover, the eRAPID infrastructure includes self-management advice for mild or moderate symptoms and showed improved patient self-efficacy [ 25 ].…”

Section: Epro-symptom Monitoringmentioning

confidence: 99%

“…This narrative review aims to describe the collection and use of electronic patient-reported outcomes (ePROs) for cancer survivorship care, with an emphasis on ePRO-symptom monitoring. Worldwide, ePRO data collection is now gradually being implemented in survivorship care [ 1 , 2 ], and related literature is still limited. We therefore mainly present results from research settings.…”

Section: Introductionmentioning

confidence: 99%

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A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

et al. 2022

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Electronic patient-reported outcome (ePRO) applications promise great added value for improving symptom management and health-related quality of life. The aim of this narrative review is to describe the collection and use of ePROs for cancer survivorship care, with an emphasis on ePRO-symptom monitoring. It offers many different perspectives from research settings, while current implementation in routine care is ongoing. ePRO collection optimizes survivorship care by providing insight into the patients’ well-being and prioritizing their unmet needs during the whole trajectory from diagnosis to end-of-life. ePRO-symptom monitoring can contribute to timely health risk detection and subsequently allow earlier intervention. Detection is optimized by automatically generated alerts that vary from simple to complex and multilayered. Using ePRO-symptoms during in-hospital consultation enhances the patients’ conversation with the health care provider before making informed decisions about treatments, other interventions, or self-management. ePRO(-symptoms) entail specific implementation issues and complementary ethics considerations. The latter is due to privacy concerns, digital divide, and scarcity of adequately representative data for particular groups of patients.

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Section: Epro Methodology and Implementationmentioning

confidence: 99%

Section: Epro-symptom Monitoringmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

et al. 2022

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“…Following a COSA think tank on PRO use in Australia in 2018, a working group of interested clinicians, researchers, and consumers was formed through an open invitation to members and other interested individuals, to further advance the PRO implementation agenda in Australia. The group published a ‘call to action’ in the Medical Journal of Australia, which advocated for the advancement of personalised cancer care through the collection of PROs [ 1 ]. The need for the Delphi study on implementation was identified as the next step.…”

Section: Methodsmentioning

confidence: 99%

“…The direct input from cancer patients and survivors on their needs, symptoms, and experiences of care is fundamental to the delivery of high quality, personalised cancer care [ 1 , 2 ]. A standardised way to obtain such input is through the collection of patient-reported outcomes (PROs) that provide a ‘status report’ derived directly from patients [ 3 ].…”

Section: Introductionmentioning

confidence: 99%

Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study

et al. 2022

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Purpose The aim of this study was to develop priority recommendations for the service level implementation of patient-reported outcomes (PROs) into clinical cancer care. Methods Development of draft guidance statements was informed by a literature review, the Knowledge to Action (KTA) implementation framework, and discussion with PRO experts and cancer survivors. A two-round modified Delphi survey with key stakeholders including cancer survivors, clinical and research experts, and Information Technology specialists was undertaken. Round 1 rated the importance of the statements and round 2 ranked statements in order of priority. Results Round 1 was completed by 70 participants with round 2 completed by 45 participants. Forty-seven statements were rated in round 2. In round 1, the highest agreement items (>90% agreement) included those that focused on the formation of strong stakeholder partnerships, ensuring ongoing communication within these partnerships, and the use of PROs for improvement and guidance in clinical care. Items ranked as the highest priorities in round 2 included assessment of current staff capabilities and service requirements, mapping of workflows and processes to enable collection, and using collected PROs to guide improved health outcomes. Conclusions This stakeholder consultation process has identified key priorities in PRO implementation into clinical cancer care that include clinical relevance, stakeholder engagement, communication, and integration within the existing processes and capabilities. Implication for Cancer Survivors Routine adoption of PRO collection by clinical cancer services requires multiple implementation steps; of highest priority is strong engagement and communication with key stakeholders including cancer survivors.

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Special Population: Care of Cancer Survivors

Koczwara

2023

Chronic Illness Care

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Patient‐reported outcomes and personalised cancer care

Cited by 10 publications

References 13 publications

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study

Special Population: Care of Cancer Survivors

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