Patient-Reported Outcomes

Ramey, Nicholas A.; Butt, Zeeshan; Burkat, Cat N.; Rose, John G.; Lucarelli, Mark J.

doi:10.1097/iop.0000000000000070

Cited by 7 publications

(4 citation statements)

References 87 publications

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“…Although I do not believe this should simply be a checklist exercise, we have attempted in the past to review the measurement properties of common generic and targeted HRQOL measures used in specific medical/surgical fields, including kidney transplantation (Butt, Yount, Caicedo, Abecassis, & Cella, 2008), liver transplantation (Jay, Butt, Ladner, Skaro, & Abecassis, 2009), hand transplantation (Jensen et al, 2012), and oculofacial surgery (Ramey, Butt, Burkat, Rose, & Lucarelli, 2014). The common denominator across those surveys is a general underreporting of relevant psychometric information in the medical literature.…”

Section: Other Factors To Considermentioning

confidence: 99%

In pursuit of empirically supported assessment for use in medical settings.

Butt¹

2016

Clinical Psychology: Science and Practice

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Psychological assessment in the medical setting presents many opportunities and challenges. On the question of what constitutes empirically supported assessment practice, there are few clear answers and perhaps fewer exemplars. The goal of this article was not to review the current status of empirically supported assessment in medical settings, but rather to highlight some areas of measurement innovation that may move this field toward its promise of a more stable evidence base supporting the use of patient-reported outcome measures for clinical research, patient education, and clinical care. In addition, assessment in the medical setting provides one very unique opportunity that many psychologists are not honed in on: the use of psychological assessment to assess quality health care. This is an emerging reality that poses significant methodological puzzles and opens doors for those committed to psychological assessment.

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Section: Other Factors To Considermentioning

confidence: 99%

In pursuit of empirically supported assessment for use in medical settings.

Butt¹

2016

Clinical Psychology: Science and Practice

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“…A systematic review of PROMs for eyelid, orbit, and lacrimal disorders, conducted in 2013, identified ten generic and 32 disease-specific instruments and assessed their content domains and psychometric quality 90. The SF-36 and NEI-VFQ-25 were the most frequently used generic instruments, and thyroid eye disease was the most studied condition.…”

Section: Impact Of Proms By Ophthalmic Subspecialtymentioning

confidence: 99%

“…A neuro-ophthalmic module was developed for the NEI-VFQ 94. This was assessed for content and quality by Ramey et al and considered to perform reasonably well by classical test criteria 90. Generic instruments including NEI-VFQ and SF-36 have been used in an RCT in idiopathic intracranial hypertension (IIH) patients,95 and in a study of neurofibromatosis (NF) type 2 96.…”

Section: Impact Of Proms By Ophthalmic Subspecialtymentioning

confidence: 99%

<p>The use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice</p>

Braithwaite¹,

Calvert²,

Gray³

et al. 2019

PROM

101

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This review article considers the rising demand for patient-reported outcome measures (PROMs) in modern ophthalmic research and clinical practice. We review what PROMs are, how they are developed and chosen for use, and how their quality can be critically appraised. We outline the progress made to develop PROMs in each clinical subspecialty. We highlight recent examples of the use of PROMs as secondary outcome measures in randomized controlled clinical trials and consider the impact they have had. With increasing interest in using PROMs as primary outcome measures, particularly where interventions have been found to be of equivalent efficacy by traditional outcome metrics, we highlight the importance of instrument precision in permitting smaller sample sizes to be recruited. Our review finds that while there has been considerable progress in PROM development, particularly in cataract, glaucoma, medical retina, and low vision, there is a paucity of useful tools for less common ophthalmic conditions. Development and validation of item banks, administered using computer adaptive testing, has been proposed as a solution to overcome many of the traditional limitations of PROMs, but further work will be needed to examine their acceptability to patients, clinicians, and investigators.

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“…[3][4][5][6][7][8][9] Ramey et al performed a systematic review of outcome measures reported by all oculoplastic patients and were able to identify only two validated lacrimal surgery questionnaires, the Nasolacrimal Duct Obstruction Symptom Score (NLDO-SS) and the Lac-Q questionnaire, both of which are speci c to DCR surgery. [10][11][12] Therefore, this prospective study aimed to investigate the changes in tear meniscus parameters following external DCR surgery in patient with NLDO. Additionally, we assessed the association between these changes and improvements in quality of life outcomes.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of the relationship between tear meniscus changes and quality of life outcomes after external dacryocystorhinostomy

Doran,

Ayintap,

Aytogan

2024

Int Ophthalmol

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This study aims to investigate the effects of external dacryocystorhinostomy (DCR) surgery on tear meniscus parameters and assess its relationship with improvements in quality of life (QoL) in patients with nasolacrimal duct obstruction (NLDO). MethodsThis prospective study included 30 patients diagnosed with NLDO who underwent external DCR surgery.Tear meniscus (TM) parameters, including height, depth and area, were measured using anterior segment optical coherence tomography (OCT). Lacrimal symptom questionnaire (Lac-Q), Munk scores and Glasgow bene t inventories (GBI) were collected. Statistical analysis was performed to evaluate the correlation between tear meniscus changes and improvements in QoL. ResultsTM height, depth and area decreased from preoperative median measurements (0.09 mm 2 , 0.37 mm, 0.56 mm) to postoperative median measurements (0.03 mm 2 , 0.21 mm, 0.30 mm) (p < 0.001). Lacrimal symptom scores and Munk scores showed signi cant improvement at 3 months postoperatively (p < 0.001). The GBI scores also demonstrated a signi cant improvement, indicating a positive impact on the patients' QoL. (p < 0.001). A statistically signi cant correlation was found between the change in TM parameters and LacQ lacrimal symptom scores. ConclusionExternal DCR surgery leads to signi cant improvements in tear meniscus parameters and quality of life outcomes in patients with NLDO. The decreased in TM height and TM area indicates improved tear lm dynamics and decreased tear volume, which positively impact the patients' ocular comfort and overall well-being. This study highlights the importance of tear meniscus evaluation as a potential market for assessing the success of DCR surgery and its impact on patients' QoL.

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Patient-Reported Outcomes

Cited by 7 publications

References 87 publications

In pursuit of empirically supported assessment for use in medical settings.

In pursuit of empirically supported assessment for use in medical settings.

<p>The use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice</p>

Evaluation of the relationship between tear meniscus changes and quality of life outcomes after external dacryocystorhinostomy

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