Patient reported outcome measures (PROMS) for body image in dermatology: A systematic review

Abstract

Introduction It is widely acknowledged that negative body image perception is linked to anxiety, depression, and body dysmorphic disorder. However, there is no gold standard, body image related patient reported outcome measure in use, specific for dermatologic disease, despite evidence to suggest a high prevalence of mental health problems relating to body image in this group of patients. Aim The aim of this study was to perform a review of body image Patient Reported Outcome Measures (PROMs) used in dermatology and to evaluate their effectiveness. Methods Searches were performed in the major databases. Two investigators independently performed full text evaluation by applying an established checklist to evaluate the conceptual model, content validity, reliability, construct validity, scoring and interpretability and respondent burden. Results Six different PROMs were identified of which only one was fully validated. There was a significant lack of patient involvement in the development of PROMs in this context. Conclusions We therefore encourage further research in this field to improve the quality of evidence to better understand the relationship between mental health and dermatologic disease.

Identifying Core Outcome Domains in Chronic Skin Disease Using the Best-Worst Scaling Method

“…To our knowledge, among the current PROMIS measures, there are no existing measures that capture body image or appearance. In addition, a systematic review of PROMs evaluating body image in dermatology found a small number of available PROMs investigating body image in dermatology and few with thorough evaluation of their content validity and measurement properties . Thus, there may be an unmet need for an adequately developed and validated measure to evaluate body image among patients with skin disease.…”

Psychodermatology—A special edition of Skin Health and Disease

“…In this special edition of Skin Health and Disease we aim to showcase the breadth and depth of psychodermatology research, covering genetic and acquired skin diseases, involving patients across the entire age spectrum suffering from primary skin or psychiatric diagnoses. 6 , 7 , 8 , 9 , 10 , 11 , 12 , 13 , 14 , 15 , 16 , 17 , 18 , 19 Furthermore, we report the potential of medications to trigger autoimmune blistering disease in patients with neuropsychological disorders. 6 The issue also includes robust prospective epidemiological data from national registries examining associations between mental health and psoriatic arthritis in patients with psoriasis as well as charting the development of psychodermatology clinics and liaison services 7 and the establishment of patient reported outcomes measures for body image in dermatology is detailed.…”

“…6 The issue also includes robust prospective epidemiological data from national registries examining associations between mental health and psoriatic arthritis in patients with psoriasis as well as charting the development of psychodermatology clinics and liaison services 7 and the establishment of patient reported outcomes measures for body image in dermatology is detailed. 8 Finally, Frewen et al show how psychodermatology can even get under the skin of healthcare professionals. 9 Specialised, multi-disciplinary clinics seem best placed to meet the growing need for psychodermatological service provision.…”

“…In this special edition of Skin Health and Disease we aim to showcase the breadth and depth of psychodermatology research, covering genetic and acquired skin diseases, involving patients across the entire age spectrum suffering from primary skin or psychiatric diagnoses 6–19 . Furthermore, we report the potential of medications to trigger autoimmune blistering disease in patients with neuropsychological disorders 6 .…”

“…Furthermore, we report the potential of medications to trigger autoimmune blistering disease in patients with neuropsychological disorders 6 . The issue also includes robust prospective epidemiological data from national registries examining associations between mental health and psoriatic arthritis in patients with psoriasis as well as charting the development of psychodermatology clinics and liaison services 7 and the establishment of patient reported outcomes measures for body image in dermatology is detailed 8 . Finally, Frewen et al .…”