Patient-reported and proxy-reported outcome measures for the assessment of health-related quality of life among patients receiving enteral feeding

Abstract

The objective is to systematically review the psychometric properties and the clinical utility of patient-reported outcome measures (PROMs) and proxy-reported outcome measures that assess health-related quality of life (HRQoL) among patients receiving enteral feeding to make recommendations for use in clinical practice and research. The purpose of this systematic review is to evaluate the psychometric properties and the clinical utility of:The research question is: What are the psychometric properties and the clinical utility of these measures? We will summarize evidence on the following properties: validity (content validity, criterion-related validity, construct validity, floor and ceiling effects), reliability (reproducibility and internal consistency) and responsiveness and clinical utility (interpretability and feasibility to complete the PROM and the proxy-reported outcome measure).

Does the premature loss of primary anterior teeth cause morphological, functional and psychosocial consequences?

“…23 Since the young age of patients may be a limiting factor for the application of direct questionnaires, authors should develop studies using proxyreported measures to assess a young patient's qualit y of life through reports by parents. 55 The approach using proxies, such as the Early Childhood Oral Health Impact Scale (ECOHIS), 56 can provide relevant information on how parents conceive their child's perception of premature loss on quality of life. 56 Since young children are practical and simplistic in dealing with issues related to their oral health, some concerns are commonly restricted to the parents' perceptions.…”

Assessing cultural appropriateness of patient-reported outcome measures for Aboriginal people with diabetes: study protocol

“…Patient-Reported Outcome Measures (PROMs) are used to assess health-related QOL in some health settings. PROM surveys are completed by patients attending a health service 6 to provide information about how health services affect a patient's QOL and health conditions. The data is used to inform a holistic approach to patient-centred care 7 and in most cases a diseasespecific measure is combined with a QOL survey.…”

Patient-Reported Outcomes (PROs) in HIV Infection: Points to Consider and Challenges

“…PROs focus primarily on specific aspects of health and treatment that can only be elicited through specific questions, such as psychological concepts or non-specific symptoms that are not obvious to the observer (anxiety, fatigue, etc. ), and reveal their frequency and severity, as well as their impact on patients' quality of life [4][5][6][7][8][9]. In addition, PROs also allow the assessment of other important aspects, such as adherence to ART, possible risky sexual behaviors, stigmatization, and depression [10].…”