2019
DOI: 10.1002/jgc4.1128
|View full text |Cite
|
Sign up to set email alerts
|

Patient perspectives on the process and outcomes of psychiatric genetic counseling: An “Empowering Encounter

Abstract: Genetic counseling (GC) for individuals with mental illness (MI) has been shown to improve patient outcomes, such as increased empowerment and self‐efficacy. However, we do not understand how the process of GC results in these improvements or what aspects of the process are critical. In this qualitative study, we explored the process and outcome of psychiatric GC from the patient's perspective. Ten Canadian adults with a diagnosed MI were interviewed prior to, and 1 month following, psychiatric GC. Interview t… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
2
1

Citation Types

1
59
0

Year Published

2019
2019
2024
2024

Publication Types

Select...
8

Relationship

5
3

Authors

Journals

citations
Cited by 46 publications
(61 citation statements)
references
References 26 publications
1
59
0
Order By: Relevance
“…Individuals may believe that a change in behavior is important; however, the current literature does not provide evidence that receiving genotypic information is strongly associated with behavior change. On a promising note, some evidence suggests that education about nondeterministic nature of genetic influences can mitigate negative effects on self-agency (Lebowitz & Ahn, 2018), which aligns with evidence that the delivery of genetic feedback in conjunction with effective educational materials and support can promote positive patient outcomes (Austin, 2019;Inglis et al, 2015;Semaka & Austin, 2019).…”
Section: Impact Of Receiving Genotypic Informationmentioning
confidence: 66%
“…Individuals may believe that a change in behavior is important; however, the current literature does not provide evidence that receiving genotypic information is strongly associated with behavior change. On a promising note, some evidence suggests that education about nondeterministic nature of genetic influences can mitigate negative effects on self-agency (Lebowitz & Ahn, 2018), which aligns with evidence that the delivery of genetic feedback in conjunction with effective educational materials and support can promote positive patient outcomes (Austin, 2019;Inglis et al, 2015;Semaka & Austin, 2019).…”
Section: Impact Of Receiving Genotypic Informationmentioning
confidence: 66%
“…Why should we combat these biases? Genetic counseling can make a real difference for those who live with psychiatric disorders and their families (Hippman et al, ; Inglis et al, ; Semaka & Austin, ). Counseling on psychiatric disorders has the power to educate patients on the causes of these conditions, correct misinformation patients may be harboring, and encourage patients to monitor early signs and symptoms of psychiatric disorders.…”
Section: Discussionmentioning
confidence: 99%
“…After reading vignettes about and imagining having received genetic counseling, participants anticipated significant reductions in feelings of guilt, stigma, shame, feeling differentially treated, and feeling looked down upon. Data from previous studies suggest that our participants' anticipated outcomes of genetic counseling may be realistic-specifically, in the context of other psychiatric conditions, genetic counseling has been shown to reduce stigma and shame, and to increase empowerment (Austin & Honer, 2004, 2007Costain et al, 2014;Inglis et al, 2015;Semaka & Austin, 2019). Given that people with eating disorders report avoiding or postponing seeking or using treatment because of stigma and shame (Becker et al, 2010), and/or guilt and the belief that they should be able to help themselves (Thompson & Park, 2016), this finding could suggest important clinical utility for genetic counseling for eating disorders.…”
Section: Discussionmentioning
confidence: 97%