Patient information needs in upper gastrointestinal cancer: what patients and their families want to know

Otutaha, Bacil; Srinivasa, Sanket; Koea, Jonathan

doi:10.1111/ans.14565

Cited by 16 publications

(8 citation statements)

References 16 publications

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“…The results of this study show that it is important for the next of kin to be involved in the whole care process. These results are similar to those of previous studies in which the importance of relatives in the patient's care is emphasised (Leino-Kilpi et al, 2016;Madsen et al, 2019;Otutaha et al, 2019). Family members are often a great support for patients, and they often undertake many responsibilities during the disease period.…”

Section: Discussionsupporting

confidence: 90%

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In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care

et al. 2020

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The study aimed to explore the experiences of participation among the next of kin of patients who had surgery for upper abdominal tumours. This study had a qualitative research design and data were analysed by thematic analysis. Eleven qualitative interviews were conducted with next of kin to patients who had surgery for liver, bile duct or pancreatic malignancy. The following themes emerged: from the shadows to an important role and an inviting and inhibiting environment for participation. Next of kin were a central part of their loved one’s care but often in the shadows. The next of kin described how they were not always invited and often they had to struggle to get involved. Next of kin often have a major psychosocial role to supporting the patient during and after discharge, and therefore need to be invited and involved in the whole care process.

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Section: Discussionsupporting

confidence: 90%

“…Honest communication is of great importance (Otutaha et al, 2019;Yang et al, 2018). Environments are perceived as very positive when relatives can share their experiences, obtain information and knowledge from healthcare professionals and be involved in patient care.…”

Section: Discussionmentioning

confidence: 99%

In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care

et al. 2020

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“…Upper gastrointestinal cancers are the most common leading causes of cancer mortality worldwide ( 1 ), accounting for 13.7% of all cancer-related deaths ( 2 ). Every year, about 1.5 million people are diagnosed with gastric or esophageal cancers ( 3 , 4 ) posing tremendous challenges to the healthcare system due to their aggressive presentation ( 5 ). As a new minimally invasive technique, endoscopic mucosal dissection (ESD) is used to treat gastrointestinal (GI) superficial neoplasias ( 6 , 7 ).…”

Section: Introductionmentioning

confidence: 99%

The influence of family support during endoscopic submucosal dissection on patient's anxiety

Gao

Gan²,

Huang³

et al. 2022

Front. Public Health

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BackgroundPsychological problems may promote peptic ulcers. Ulcer-like wounds can be formed after gastric endoscopic submucosal dissection (ESD). The influence of family support on the healing of gastric ESD-induced ulcers remains largely undetermined.ObjectiveIn the present study, we aimed to assess the Hospital Anxiety and Depression Scale (HADS) scores and the incidence of post-ESD complications in patients with family support in the care process and those in the non-relative group.Materials and methodsA total of 191 patients aged between 30 and 70 years who received gastric ESD were evaluated with the Chinese version of HADS. Differences in depression and anxiety between the two groups were compared using the chi-square test and t-test. Multivariable logistic regression models were used to examine whether anxiety and depression were the risk factors for post-ESD complications.ResultsThe mean values of HADS-A (4.61 ± 2.89 vs. 5.56 ± 3.07, p = 0.042) and HADS-D (4.14 ± 3.03 vs. 4.97 ± 2.61, p = 0.048) scores were significantly lower in patients with accompanying relatives compared with those in the non-relative group. Besides, through the pre-ESD and post-ESD self-contrast, the scores of anxiety and depression in the relative-group were 0.57 and 0.56, respectively (p < 0.001), while those in the non-relative group were increased by 1.43 and 1.49, respectively (p < 0.001). Multivariable logistic regression analysis revealed that HADS-A, HADS-D scores, and age were significantly correlated with post-ESD abdominal pain (P < 0.05).ConclusionsThe occurrence and degree of adverse emotions such as psychological anxiety and depression in patients who received gastric ESD with accompanying relatives during hospitalization may were reduced, and the incidence of gastric post-ESD abdominal pain may was also decreased.

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“…Upper gastrointestinal cancers are the most common leading causes of cancer mortality worldwide [1], accounting for 13.7% of all cancer-related deaths [2]. Every year, about 1.5 million people are diagnosed with gastric or esophageal cancers [3,4] posing tremendous challenges to the healthcare system due to their aggressive presentation [5]. As a new minimally invasive technique, endoscopic mucosal dissection (ESD) is used to treat gastrointestinal (GI) super cial neoplasias [6,7].…”

Section: Introductionmentioning

confidence: 99%

The Influence of Family Support During Endoscopic Submucosal Dissection (ESD) on Patient’s Anxiety

Gao

Gan

Huang

et al. 2021

Preprint

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Background: Psychological problems, such as anxiety and depression, may promote peptic ulcers. The influence of family support on the healing of gastric endoscopic mucosal dissection (ESD)-induced ulcers remains largely undetermined. Objective: In the present study, we aimed to assess the Hospital Anxiety and Depression Scale (HADS) scores and the incidence of post-ESD complications in patients with family support in the care process and those in the non-relative group.Materials and Methods: A total of 191 patients aged between 30 and 70 years who received gastric ESD were evaluated with the Chinese version of HADS. Differences in depression and anxiety between the two groups were compared using the chi-square test and t-test. Multivariable logistic regression models were used to examine whether anxiety and depression were the risk factors for post-ESD complications.Results: The mean values of HADS-A (4.61±2.89 vs. 5.56±3.07, p=0.042) and HADS-D (4.14±3.03 vs. 4.97±2.61, p= 0.048) scores were significantly lower in patients with accompanying relatives compared with those in the non-relative group. Besides, through the pre-ESD and post-ESD self-contrast, the scores of anxiety and depression in the relative-group were 0.57 and 0.56, respectively (p < 0.001), while those in the non-relative group were increased by 1.43 and 1.49, respectively (p < 0.001). Multivariable logistic regression analysis revealed that HADS-A, HADS-D scores, and age were significantly correlated with post-ESD complications (p < 0.05). Conclusions: The occurrence and degree of psychological anxiety and depression in patients who received gastric ESD with accompanying relatives during hospitalization were reduced, and the incidence of post-ESD complications was also decreased.

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Patient information needs in upper gastrointestinal cancer: what patients and their families want to know

Abstract: For effective treatment of UGIC patients, physicians and surgeons must address issues pertaining to quality of life, finance and relationships and may require specific training, or administrative support, in these areas.

Cited by 16 publications

References 16 publications

In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care

In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care

The influence of family support during endoscopic submucosal dissection on patient's anxiety

The Influence of Family Support During Endoscopic Submucosal Dissection (ESD) on Patient’s Anxiety

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