Patient-focused drug development in primary sclerosing cholangitis: Insights on patient priorities and involvement in clinical trials
Michael Li,
Ruth-Anne Pai,
Rachel Gomel
et al.
Abstract:Background:
According to the new AASLD Practice Guidance, all patients with primary sclerosing cholangitis (PSC) should be considered for participation in clinical trials. However, PSC’s rarity has posed challenges to characterizing patient interest in trial participation and identifying predictors of patient willingness to participate in drug trials.
Methods:
PSC Partners Seeking a Cure developed the “Our Voices” survey to inform the development of the… Show more
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