Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging

Hassol, Andrea; Walker, James M.; Kidder, David; Rokita, Kim; Young, David; Pierdon, Steven; Deitz, Deborah; Kuck, Sarah; Ortíz, Eduardo

doi:10.1197/jamia.m1593

Cited by 354 publications

(297 citation statements)

References 12 publications

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“…Portal use has been associated with education level in a largely white population. 22 Patient-provider relationships are another important factor that would be best studied through qualitative studies or surveys. For example, it is not clear to what extent patient use of a portal is intrinsically motivated and what extent it is the result of encouragement by providers.…”

Section: Limitations and Strengthsmentioning

confidence: 99%

Use of an Electronic Patient Portal Among Disadvantaged Populations

et al. 2011

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Section: Limitations and Strengthsmentioning

confidence: 99%

Use of an Electronic Patient Portal Among Disadvantaged Populations

et al. 2011

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“…When asked to rank order the key information elements that they would like to see within the EPHR, 38% (n = 25) of family members indicated their number one choice as patient test results. Other elements in the chart that ranked as the top choice for family members were clinical doctor's notes by 26.1% (n = 17) of family members, medication lists (15%; n = 10), and upcoming appointments (5%; n = 3). Although, only 11% (n = 7) of family members selected nurses notes as their first choice, almost 20% (n = 13) of respondents had it listed as either their second or third most important access item.…”

Section: Resultsmentioning

confidence: 99%

“…Communication concerns have been identified in several other studies that have examined the patients' perspective. [21,[26][27][28][29] For example, Tang and Lansky (2005) and Hassol et al (2004) reported that information access can be accompanied by specific barriers linked to the in-person nature of the exchange. [21,26] Tang and Lansky (2005) indicated that information can often go undelivered because of the "barriers" placed by an in-person access requirement, which may be avoided with an EPHR.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, other studies have reinforced the utility of an EPHR as a tool developed to help patients and their loved ones remain informed about strategies surrounding their care. [12,20,21,[23][24][25][26][27][28][29] This was depicted in a 2005 survey of patient users of an EPHR in a family group practice where patients indicated that they found that having timely access to their test results and other information from their medical records made them feel like they were active participants in their own care. [21] Another study indicated that an EPHR helped patients get answers to simple questions quickly and enabled them to remember what a physician said at their last appointment.…”

Section: Discussionmentioning

confidence: 99%

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Family attitudes towards an electronic personal health record in a long term care facility

Nippak

Isaac

Geertsen

et al. 2015

JHA

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Objective: To explore the perceptions of family members regarding the importance of an electronic personal health record (EPHR) called MyChart as a healthcare information source to support the care of their loved ones within a long term care (LTC) facility in Toronto, Ontario. Methods: One hundred and fifty eight family members of the patients in six LTC units at the hospital were given a survey to determine their perceptions regarding the utility of the content items within an EPHR that was recently adopted by the LTC institution. Results: The response rate was 41% (n = 65). Many family members (n = 48) felt it was important to have access to their loved one's EPHR. Respondents ranked test results (38%; n = 25), doctor's clinical notes (26%; n = 17), medication lists (15%; n = 10) and upcoming appointments (11%; n = 7) as the number one most important content item that they would want to have access to. In addition to the standard content items found within an EPHR, family members requested electronic access to a variety of additional medical content items that are not currently offered within the EPHR, such as status alerts. Overall, they felt that an EPHR would enhance communication between the care team and the family, however 30% of family members identified concerns linked to security and confidentiality of the electronic health record information. Conclusions: Family members felt that an EPHR would be an important tool in the LTC facility to assist with information exchange between care providers and the family. It is important to consider that the additional information requested beyond what is traditionally found in an EPHR as well as the specific communication concerns raised, may be limited to a LTC setting.

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“…Patients like email as a form of communication for many things such as asking questions they forgot to ask at their appointment, asking simple questions that do not require a full visit, or reminders for preventative care [3]. E-mail has been employed in limited cases as a means for prescription refill requests, appointment booking, or even routine clinical follow-up.…”

Section: Introductionmentioning

confidence: 99%

Online Social Networking: A Primer for Radiology

2011

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Online social networking is an immature, but rapidly evolving industry of web-based technologies that allow individuals to develop online relationships. News stories populate the headlines about various websites which can facilitate patient and doctor interaction. There remain questions about protecting patient confidentiality and defining etiquette in order to preserve the doctor/patient relationship and protect physicians. How much social networking-based communication or other forms of E-communication is effective? What are the potential benefits and pitfalls of this form of communication? Physicians are exploring how social networking might provide a forum for interacting with their patients, and advance collaborative patient care. Several organizations and institutions have set forth policies to address these questions and more. Though still in its infancy, this form of media has the power to revolutionize the way physicians interact with their patients and fellow health care workers. In the end, physicians must ask what value is added by engaging patients or other health care providers in a social networking format. Social networks may flourish in health care as a means of distributing information to patients or serve mainly as support groups among patients. Physicians must tread a narrow path to bring value to interactions in these networks while limiting their exposure to unwanted liability.

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Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging

Cited by 354 publications

References 12 publications

Use of an Electronic Patient Portal Among Disadvantaged Populations

Use of an Electronic Patient Portal Among Disadvantaged Populations

Family attitudes towards an electronic personal health record in a long term care facility

Online Social Networking: A Primer for Radiology

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