Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go

Caneiras, Cátia; Jácome, Cristina; Mayoralas-Alises, Sagrario; Calvo, José R.; Fonseca, João; Escarrabill, Joan

doi:10.3390/jcm8040555

Cited by 16 publications

(13 citation statements)

References 55 publications

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“…Most patient experience surveys administered routinely in hospitals are restricted to adults, such as the Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) in the US, the National Health Service Patient Survey Programme (NPSP) in the UK, and the Chinese Patient Experience Questionnaire (CPEQ) survey in China (5)(6)(7)(8). Standardized questionnaires and methods used to measure children's experience in hospitals in different cultural contexts have been less investigated historically (9,10).…”

Section: Introductionmentioning

confidence: 99%

Reliability and validity of an instrument to assess pediatric inpatients’ experience of care in China

Hu¹,

Yuan²,

Ren³

et al. 2021

Transl Pediatr

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Background: The Child Hospital Consumer Assessment of Healthcare Providers and Systems (Child HCAHPS) is a standard instrument to measure pediatric inpatients' experience of care. Currently, no Chinese version of the Child HCAHPS exists for Chinese patients. Therefore, this study aimed to create a Chinese version of the Child HCAHPS and investigate its validity and reliability in a Chinese setting.Methods: Using the approach recommended in guidelines from the Agency for Healthcare Research and Quality for translating HCAHPS surveys, we produced a Chinese version of the Child HCAHPS. A twomonth field test with seven hospitals across five provinces in China was performed to assess its validity.Construct validity was assessed using confirmatory factor analysis. We evaluated convergent validity by factor loading, average variance extracted (AVE), and construct reliability (CR). Cronbach's alpha and corrected item-total correlation (CITC) were used to reflect hospital-level unit reliabilities for the survey's item composites. The correlation of the measure score with the overall rating was calculated to evaluate criterion validity.Results: An overall response rate of 63% was achieved, and 2,258 respondents completed the questionnaire.Confirmatory factor analysis showed a comparative fit index (CFI) of 0.905, a non-normed fix index of 0.886, and a root mean square error of approximation (RMSEA) of 0.089. Most items had factor loadings over 0.7. Cronbach's alpha coefficient on the overall level was 0.981, and all measures' CITC exceeded 0.6, demonstrating good to excellent hospital-level reliability of the composite and single-item measures. All composite measures had good to excellent internal consistency reliability (0.716 to 0.994). Item-to-composite correlation ranged from 0.510 to 0.997. Composite-to-composite correlations ranged from 0.488 to 0.997.According to the survey result, for all the 18 composite or single-item measures, mean top-box scores ranged from 56% ("Involving teens in care") to 87% ("Informed in Emergency Room"). Conclusions:The Chinese version of the Child HCAHPS demonstrated acceptable validity and reliability.The application of this tool can help benchmark ongoing healthcare improvement initiatives in China.

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Section: Introductionmentioning

confidence: 99%

Reliability and validity of an instrument to assess pediatric inpatients’ experience of care in China

Hu¹,

Yuan²,

Ren³

et al. 2021

Transl Pediatr

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“…In recent years, the number of patients receiving home respiratory therapy (HRT) for chronic respiratory failure (e.g., COPD, neuromuscular diseases, and obstructive sleep apnoea) has greatly increased. Although moving healthcare from hospitals/health units to home might decrease the associated burden for health providers, less is known about how the patients perceive home healthcare [150]. Moreover, the impact of HRT on healthcare associated infections is not well characterized for the Portuguese population.…”

Section: Envihealthmicro Labmentioning

confidence: 99%

Towards a Global Perspective of Environmental Health: Defining the Research Grounds of an Institute of Environmental Health

et al. 2020

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Environmental health is at the intersection between health and the environment. However, it still has a recent (and narrow) history as a scientific area, mainly addressing human biomonitoring and toxicological issues. Only recently additional environmental ‘layers’, other than the traditional chemical, biological and physical environmental determinants, have been considered. This broader perspective of environmental health also encompasses digital, psychosocial, political, socioeconomic and cultural determinants, all of them relevant when considering human health from a planetary health paradigm. This reflects the progressive adoption of a systemic perspective regarding the impact of gains for human health and well-being towards a sustainable environment. It also implies a multi-method and participatory approach to understand the intertwined relationship between environmental changes and human health. In this paper, the broader approach to environmental health is discussed in order to ‘set the stage’ for introducing the Institute of Environmental Health (ISAMB) of the Lisbon School of Medicine, Portugal. Each of the research groups and labs that compose ISAMB are presented, as well as their main lines of research. Present and planned contributions of ISAMB to advance knowledge on environmental health and for promoting human health gains in an environmentally sustainable way are also discussed.

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“…Home respiratory therapies (HRT), such as long-term oxygen therapy and home mechanical ventilation, are prescribed to improve the health-related quality of life of patients with respiratory disorders such as chronic obstructive pulmonary disease (COPD), pulmonary fibrosis, cystic fibrosis, bronchiectasis, neuromuscular diseases, among others. HRT are one of the most important home healthcare services [1] and patients needing HRT are increasing [2]. This adds to HRT high complexity, characterized by the chronicity of the patient condition itself, the need of patients' and carers' training and the involvement of variety of healthcare professionals [3,4].…”

Section: Introductionmentioning

confidence: 99%

“…In order to achieve this, health care must be safe, effective, timely, efficient, equitable and people-centered" [5]. A necessary step in the process of maintaining and improving quality is to monitor and evaluate the quality of healthcare in routine clinical practice [2].…”

Section: Introductionmentioning

confidence: 99%

The Portuguese Model of Home Respiratory Care: Healthcare Professionals’ Perspective

et al. 2021

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Patients’ and carers’ views regarding the Portuguese model of home respiratory care were recently described, yet the complementary perspective of healthcare professionals (HCPs) is still to be investigated. Thus, this study explored HCPs experience in the management of patients needing home respiratory therapies (HRT), and their perspective about the Portuguese model. A phenomenological descriptive study, using focus groups, was carried out with 28 HCPs (median 42 y, 68% female) with distinct backgrounds (57% pulmonologists, 29% clinical physiologists, 7% physiotherapists, 7% nurses). Three focus groups were conducted in three regions of Portugal. Thematic analysis was performed by two independent researchers. HCPs have in general a positive view about the organization of the Portuguese model of home respiratory care, which was revealed in four major topics: Prescription (number of references, n = 171), Implementation and maintenance (n = 162), Carer involvement (n = 65) and Quality of healthcare (n = 247). Improvements needed were related to patients’ late referral, HRT prescription (usability of the medical electronic prescription system and renewals burden), patients’ education, access to hospital care team, lack of multidisciplinary work and articulation between hospital, primary and home care teams. This study describes the perspective of HCPs about the Portuguese model of home respiratory care and identifies specific points where improvements and reflections are needed. This knowledge may be useful to decision makers improve the current healthcare model.

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Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go

Cited by 16 publications

References 55 publications

Reliability and validity of an instrument to assess pediatric inpatients’ experience of care in China

Reliability and validity of an instrument to assess pediatric inpatients’ experience of care in China

Towards a Global Perspective of Environmental Health: Defining the Research Grounds of an Institute of Environmental Health

The Portuguese Model of Home Respiratory Care: Healthcare Professionals’ Perspective

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