Patient Engagement—What Works?

Coulter, Angela

doi:10.1097/jac.0b013e318249e0fd

Cited by 380 publications

(306 citation statements)

References 60 publications

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“…Practitioners can ask the patients what their expectations are for both the treatment process and treatment outcome and whether those expectations are what they think is likely to happen or what they hope to happen. Talking about expectations can open up opportunities for shared decisionmaking between the practitioner and patient, which may result in better patient satisfaction, adherence and treatment outcomes [27,28]. If expectations are unrealistic, then the influencing factors found in this study might be useful targets for changing expectations.…”

Section: Discussionmentioning

confidence: 98%

How do low back pain patients conceptualize their expectations regarding treatment? Content analysis of interviews

et al. 2013

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Purpose The purpose of this study was to gain insight into how low back pain (LBP) patients conceptualize the construct of expectations regarding treatment. Methods This study was nested within a mixed-method randomized clinical trial comparing three primary care interventions for LBP. A total of 77 participants with LBP lasting longer than 6 weeks were included; semi-structured interviews were conducted querying patients about their expectations for treatment. Also factors influencing their expectations were explored. Interviews were administered following enrollment into the study, but prior to study treatment. Two researchers independently conducted a content analysis using NVIVO 9 software. Results LBP patients' expectations could be categorized in two main domains: outcome and process expectations, each with subdomains. Patients expressed expectations in all subdomains both as values (what they hoped) and probabilities (what they thought was likely). In multiple subdomains, there were differences in the nature (positive vs. negative) and frequency of value and probability expectations. Participants reported that multiple factors influenced their expectations of which past experience with treatment appeared to be of major influence on probability expectations. Conclusion and recommendations This study showed that LBP patients' expectations for treatment are multifaceted. Current measurement instruments do not cover all domains and subdomains of expectations. Therefore, we recommend the development of new or improved measures that make a distinction between value and probability expectations and assess process and/or outcome expectations covering multiple subdomains. Some of the influencing factors found in this study may be useful targets for altering patients' treatment expectations and improving health outcomes.

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Section: Discussionmentioning

confidence: 98%

How do low back pain patients conceptualize their expectations regarding treatment? Content analysis of interviews

et al. 2013

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“…At one end of the continuum are intervention studies that examine tools for patient involvement in professional decisions and review articles about the same. This kind of research is most often concerned with patients’ views of medical treatment [9–11]. The research represents a disease-oriented approach to patient involvement [12].…”

Section: Introductionmentioning

confidence: 99%

Patient involvement in healthcare professional practice – a question about knowledge

Aagaard

2017

International Journal of Circumpolar Health

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The concept of patient involvement is ambiguous and contested in the healthcare systems in Western Europe and North America. Current research indicates that patients only feel moderately involved in their treatment and care. This article builds on a study of chronically ill patients’ perspectives on healthcare practice in Greenland. It discusses the significance of including in healthcare practice knowledge of patients’ everyday lives with illness and their own views on their situations. Research was qualitative and ethnographic. Participants were followed with participant observations and qualitative interviews for 2.5 years during hospital stay in the capital Nuuk and in their homes in towns and settlements during 2010–2013. Results show that patients are concerned about how to manage their life with illness on a daily basis. Their everyday life activities demonstrate the resources they have to live with illness. However, procedures for healthcare practice concentrate on treatment of the physical disease. Knowledge about psychosocial needs for care and rehabilitation tend to be excluded. The study points to potential for improving professional practice through healthcare professionals’ active investigation of patients’ everyday lives and values, integration of this knowledge into their professional practice and developing structures for this kind of involvement.

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“…4 A systematic review of engagement strategies found that they improved patients' health and reduced health care use and costs. 5,6 And a recent literature review concluded that patient engagement had a positive impact on health outcomes, medication adherence, and rates of hospital admission. 7 Yet medical staff often fail to recognize the advantages of understanding people's experience of illness-how they reacted to the emergence of symptoms, how they felt about and understood their diagnosis and treatment plan, and how equipped they felt to take responsibility for managing aspects of their own care.…”

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confidence: 99%

Patient Engagement: Four Case Studies That Highlight The Potential For Improved Health Outcomes And Reduced Costs

et al. 2014

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The energy of patients and members of the public worldwide who care about improving health is a huge, but still largely unrecognized and untapped, resource. The aim of patient engagement is to shift the clinical paradigm from determining "what is the matter?" to discovering "what matters to you?" This article presents four case studies from around the world that highlight the proven and potential abilities of increased patient engagement to improve health outcomes and reduce costs, while extending the reach of treatment and diagnostic programs into the community. The cases are an online mental health community in the United Kingdom, a genetic screening program in the United Arab Emirates, a World Health Organization checklist for new mothers, and a hospital-based patient engagement initiative in the United States. Evidence from these and similar endeavors suggests that closer collaboration on the part of patients, families, health care providers, health care systems, and policy makers at multiple levels could help diverse nations provide more effective and population-appropriate health care with fewer resources.

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Patient Engagement—What Works?

Cited by 380 publications

References 60 publications

How do low back pain patients conceptualize their expectations regarding treatment? Content analysis of interviews

How do low back pain patients conceptualize their expectations regarding treatment? Content analysis of interviews

Patient involvement in healthcare professional practice – a question about knowledge

Patient Engagement: Four Case Studies That Highlight The Potential For Improved Health Outcomes And Reduced Costs

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