Patient engagement in the inpatient setting: a systematic review

Prey, Jennifer E.; Woollen, Janet; Wilcox, Lauren; Sackeim, Alexander; Hripcsak, George; Bakken, Suzanne; Restaino, Susan; Feiner, Steven; Vawdrey, David K.

doi:10.1136/amiajnl-2013-002141

Cited by 215 publications

(178 citation statements)

References 76 publications

(81 reference statements)

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“…[29][30][31][32][33][34][35][36] There is still only a rudimentary understanding of how PHRs can contribute to improving inpatient experience and increasing patient engagement in the hospital setting. [37] 5.1 Implications…”

Section: Discussionmentioning

confidence: 99%

Patient Experiences Using an Inpatient Personal Health Record

Woollen¹,

Prey²,

Wilcox³

et al. 2016

Appl Clin Inform

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SummaryObjective: To investigate patients' experience using an inpatient personal health record (PHR) on a tablet computer to increase engagement in their hospital care. Methods: We performed observations and conducted semi-structured interviews with 14 post-operative cardiac surgical patients and their family members who received an inpatient PHR. Themes were identified using an inductive coding scheme. Results: All participants responded favorably to having access to view their clinical information. A majority (85.7%) of participants used the application following an initial training session. Patients reported high satisfaction with being able to view their hospital medications and access educational materials related to their medical conditions. Patients reported a desire to view daily progress reports about their hospital stay and have access to educational information about their postacute recovery. In addition, patients expressed a common desire to view their diagnoses, laboratory test results, radiology reports, and procedure notes in language that is patient-friendly. Conclusion:Patients have unmet information needs in the hospital setting. Our findings suggest that for some inpatients and their family members, providing personalized health information through a tablet computer may improve satisfaction, decrease anxiety, increase understanding of their health conditions, and improve safety and quality of care. BackgroundBeing a patient in the hospital is an anxiety-inducing experience. Poor communication and lack of access to information can have detrimental effects on a patient's psychological wellbeing and coping abilities [1][2][3][4][5]. Policymakers [6, 7] and patient advocates [8,9] are increasingly focusing on this problem. This study investigates how an inpatient personal health record (PHR) may help address the information needs of patients and improve their engagement and experience in the hospital.Provision of medical information and education about care can allay a patient's uncertainty and stress [10][11][12][13][14][15]. Further, sharing information has been shown to reduce patient requests for clinicians' time, foster a sense of control and empowerment while promoting self-efficacy and ownership of illness [16][17][18], and lead to increased participation as an informed partner in making health decisions [19][20][21][22]. Previous research suggests that patients want to use PHRs and believe that they will be valuable [23]. Moreover, patients believe that their adherence to treatment regimens will improve if they have the opportunity to read and understand their health information [24,25]. However, patients are not typically given the opportunity to review their health information in the hospital. For example, in a survey of hospitalized patients conducted by Cumbler and colleagues, 90% of respondents said they wanted to review their hospital medication list for accuracy, but only 28% said they were given the opportunity to do so [26]. Without access to a documented care plan, patients ar...

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Section: Discussionmentioning

confidence: 99%

Patient Experiences Using an Inpatient Personal Health Record

Woollen¹,

Prey²,

Wilcox³

et al. 2016

Appl Clin Inform

View full text Add to dashboard Cite

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“…This counterintuitive finding implies that the patients' self-abasement or inability to express themselves given the unbalanced power relations with health-care staff and low health literacy. Patient engagement is conceptualized as patients' self-awareness and ability to express their physical and emotional needs, thus resulting in better orientated professional interventions [37]. Discussing preferences and views or disagreeing with a recommendation are communication skills used in everyday life, but for many patients these may be novel in the context of a medical consultation [38] [39], which could impede the development of effective self-coping strategies for disease management [37].…”

Section: Discussionmentioning

confidence: 99%

Views and Experience on Patient Engagement in Healthcare Professionals and Patients—How Are They Different?

Wong¹,

Lui²,

Cheung³

et al. 2017

OJN

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A patient-centered approach is used to build a therapeutic alliance between patients and the healthcare professionals in care process which should be supported by a good engagement of both parties. The study aimed to explore the gap between healthcare professionals and patients on patient engagement in hospital. It was a cross-sectional survey. 2774 doctors and nurses from Department of Medicine of public hospitals completed the self-administered questionnaire and 1042 patients discharged from corresponding wards completed the telephone interviews. Participants were interviewed using structural questionnaires. The Mann-Whitney test or Pearson's chi-square test was used to analyze the agreement between health-care professionals and patients on the views and experiences of patient engagement. A difference was considered to be statistically significant when the p-value was <0.05. Although both groups valued the importance of patient engagement, there was a discrepancy on understanding, views and experiences. More healthcare professionals particularly in nursing were concerned about the possible negative impact of the engagement. The majority of healthcare professionals reported that they engaged well with patients, and perceived more difficulties than patients did. The findings highlighted the mutual understanding of patient engagement, involvement and challenges encountered by both groups in Department of Medicine, which was crucial in efforts to provide meaningful patient engagement in regards to jurisdictions, health system, specialty, discipline and background of patients. It provided insight that a collaborative strategy involving both healthcare professional and patients might be an alternative approach to improving patient engagement.

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“…Research suggests that well-designed collaborative technologies speed up the development of common ground by allowing teams to share knowledge, manage actions, and make decisions efficiently [8]. While improving patient access to health information leads to increased patient participation in health-related decision-making, it is not merely the access to data that creates this outcome [9]. It is the development of common ground between patients and clinicians that makes superior patient engagement possible.…”

Section: Background and Related Workmentioning

confidence: 99%

Guidelines to Incorporate a Clinician User Experience (UX) into the Design of Patient-Operated mHealth

Tunnell

Faiola

Bolchini

2017

Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems

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This interactivity demonstration paper highlights how a patient-operated mHealth solution can be designed to improve clinician understanding of a patient's health status during a first face-to-face encounter. Patients can use smartphones to retrieve difficult-to-recall-from memory personal health information. This provides an opportunity to improve patient-clinician collaboration. To explore this idea, a mixed method study with 12 clinicians in a simulated encounter was conducted. A smartphone personal health record was prototyped and used for an experimental study. Communication, efficiency, and effectiveness was improved for clinicians who experienced the prototype. Study outcomes included a validated set of design guidelines for mHealth tools to support better patient-clinician communication.

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Patient engagement in the inpatient setting: a systematic review

Abstract: Background

Cited by 215 publications

References 76 publications

Patient Experiences Using an Inpatient Personal Health Record

Patient Experiences Using an Inpatient Personal Health Record

Views and Experience on Patient Engagement in Healthcare Professionals and Patients—How Are They Different?

Guidelines to Incorporate a Clinician User Experience (UX) into the Design of Patient-Operated mHealth

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