Patient Engagement in Oncology Practice: A Qualitative Study on Patients’ and Nurses’ Perspectives

Abstract

Patient engagement has gained increasing attention in cancer care as it is widely acknowledged as an essential element of high-quality care. There are limited data on how oncology nurses might apply techniques that encourage patient engagement. Therefore, this study aims to understand which nursing strategies can favour patient engagement in oncological care from patients’ and nurses’ perspectives. We conducted a qualitative study involving oncology patients and oncology nurses. Patients were interviewed, while nurses were involved in focus groups (FGs). Both interviews and FGs were analysed by the means of thematic analysis. We interviewed six patients and conducted two FGs, involving 17 nurses. Five themes were identified from patients’ interviews: effective information, having the opportunity to choose, being considered a person, trusted relationship with nurses, and receiving support and advice. Additionally, five themes were identified from the FGs: the nurse–patient relationship, personalisation of care, information style, engagement strategies, and the team. The participants highlighted the importance of comprehensive information in order for patients to feel more involved. Great importance was given to the nurse–patient relationship, which must be based on trust and mutual respect. Both nurses and patients emphasised the importance of person-centred care. A more systematic implementation of suggestions from the participants in this study is desirable for the future.

Barriers, facilitators, and priority needs related to cancer prevention, control, and research in rural, persistent poverty areas

“…Critical priorities for cancer prevention and control in persistent poverty areas included patient education, which is consistent with prior research highlighting the beneficial effects of tailored and/or personalized education in facilitating patient engagement, especially for uptake of screenings [ 42 – 45 ]. Comprehensive workflows and improved communication were also identified as priority needs and are consistent with research demonstrating the need for improved cancer care coordination to improve outcomes across the cancer control continuum [ 46 – 48 ].…”

From incivility to outcomes: tracing the effects of nursing incivility on nurse well-being, patient engagement, and health outcomes

“…In summary, filling these gaps through robust empirical research is crucial. Such research is essential not only to transform current anecdotal and observational understandings into data-driven insights but also to develop effective strategies to mitigate the negative impacts of incivility [ 47 , 48 ]. These insights are vital to promoting a healthier, more respectful, and efficient healthcare environment, ultimately enhancing nurses’ well-being and patient care quality [ 3 , 5 ].…”