Patient educational needs and challenges in psoriatic arthritis

Adebajo, Adewale; Akintayo, Richard Oluyinka

doi:10.1097/bor.0000000000000801

Cited by 2 publications

(2 citation statements)

References 42 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Misaligned treatment satisfaction between patient and physician is linked to greater impairment of work productivity and higher disease burden [ 14 ]. Treatment adherence is also a problem, with rates as low as 57.7% [ 15 ]. Since PsA impacts many aspects of a patient’s life, treatment recommendations and targets must go beyond simply addressing the musculoskeletal symptoms [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

Elevating the Standard of Care for Patients with Psoriatic Arthritis: ‘Calls to Action’ from a Multistakeholder Pan-European Initiative

Verbinnen,

Monte-Boquet,

Parow

et al. 2024

Rheumatol Ther

View full text Add to dashboard Cite

Introduction Psoriatic arthritis (PsA) is a complex, progressive, and often debilitating disease. Despite recent advances in treatment, numerous unmet needs in patient care persist. Rheumacensus is a multistakeholder, pan-European initiative designed to identify ways to elevate the standard of care (SoC) and treatment ambition for patients with PsA, using the perspectives of three key stakeholder groups: patients, healthcare professionals (HCPs) and payors. Methods Rheumacensus followed three phases: an insights-gathering workshop to identify current unmet needs in PsA and an area of focus for the project, a modified Delphi process to gain consensus on improvements within the agreed area of focus, and a Consensus Council (CC) meeting which used consensus statements as inspiration to generate ‘Calls to Action’ (CTA)—practical measures which, if implemented, could elevate the SoC for patients with PsA. Results The Rheumacensus CC consisted of four patient representatives, four HCPs and four payors. All 12 members completed all three Delphi e-consultations. The shared area of focus that informed the Delphi process was “ patient empowerment through education on the disease and treatment options available, to enable patient involvement in management ”. Four key themes emerged from the Delphi process: patient empowerment, patient knowledge and sources of education, patient–HCP consultations, and optimal initial treatment. Statements within these themes informed 12 overarching CTA, which focus on the need for a multistakeholder approach to implementing a paradigm shift towards patient-centred care and improved outcomes for patients with PsA. Conclusion Rheumacensus has identified shortcomings in the current SoC for patients with PsA and provides a foundation for change through practical CTA. It is hoped that all stakeholders will now take practical steps towards implementing these CTA across Europe to elevate the SoC for patients with PsA. Supplementary Information The online version contains supplementary material available at 10.1007/s40744-024-00664-3.

show abstract

Section: Introductionmentioning

confidence: 99%

Elevating the Standard of Care for Patients with Psoriatic Arthritis: ‘Calls to Action’ from a Multistakeholder Pan-European Initiative

Verbinnen,

Monte-Boquet,

Parow

et al. 2024

Rheumatol Ther

View full text Add to dashboard Cite

show abstract

“…Information has to be delivered in an empathetic but also convincing manner. With growing shortage of specialists and time constraints, concise, and self-explanatory tools supporting the patient-physician communication may become increasingly important (4)(5)(6)(7). Recommendations to improve patient education especially at crucial time points, such as diagnosis or initiation of therapy, have been formulated by a EULAR taskforce (3).…”

Section: Introductionmentioning

confidence: 99%

Cinematic rendering in rheumatic diseases—Photorealistic depiction of pathologies improves disease understanding for patients

Pachowsky¹,

Morf

Simón

et al. 2022

Front. Med.

View full text Add to dashboard Cite

BackgroundPatient education is crucial for successful chronic disease management. Current education material for rheumatic patients however rarely includes images of disease pathologies, limiting patients’ disease understanding. Cinematic rendering (CR) is a new tool that allows segmentation of standard medical images (DICOMs) into pictures that illustrate disease pathologies in a photorealistic way. Thus CR has the potential to simplify and improve the explanation of disease pathologies, disease activity and disease consequences and could therefore be a valuable tool to effectively educate and inform patients about their rheumatic and musculoskeletal disease (RMD).ObjectivesTo examine the feasibility of creating photorealistic images using CR from RMD patients depicting typical rheumatic disease pathologies and, in a second step to investigate the patient-perceived educational potential of these photorealistic images in clinical routine.MethodsWe selected conventional, high-resolution (HR) and positron emission tomography (PET) computed tomography (CT) images of patients with rheumatoid arthritis (RA), psoriatic arthritis (PsA), axial spondyloarthritis (axSpA), and giant cell arteritis (GCA) that showed typical respective disease pathologies. These images were segmented using CR technique. In a prospective study, physicians used CR-enhanced and conventional original images to explain the depicted pathognomonic pathologies to patients with the respective rheumatic disease. Patients were then asked to complete a questionnaire evaluating the perceived usefulness of being presented with CR-enhanced images to better understand their underlying disease.ResultsCR images were successfully generated from above mentioned CT methods. Pathologies such as bone erosions, bony spurs, bone loss, ankylosis, and PET-based inflammation could be visualized in photorealistic detail. A total of 79 patients (61% females) with rheumatic diseases (RA 29%, PsA 29%, axSpA 24%, GCA 18%) were interviewed and answered the quantitative questionnaire. Mean age was 55.4 ± 12.6 years. Irrespective of disease, all patients agreed or highly agreed that CR-based images help to improve disease understanding, should be shown at disease onset, provide a rationale to regularly take medication and would like to have access to their own CR-enhanced images.ConclusionConventional disease images can successfully be turned into photorealistic disease depictions using CR. Patients perceived CR images as a valuable addition to current patient education, enabling personalized disease education and potentially increased medication adherence.

show abstract

Patient educational needs and challenges in psoriatic arthritis

Cited by 2 publications

References 42 publications

Elevating the Standard of Care for Patients with Psoriatic Arthritis: ‘Calls to Action’ from a Multistakeholder Pan-European Initiative

Elevating the Standard of Care for Patients with Psoriatic Arthritis: ‘Calls to Action’ from a Multistakeholder Pan-European Initiative

Cinematic rendering in rheumatic diseases—Photorealistic depiction of pathologies improves disease understanding for patients

Contact Info

Product

Resources

About