Patient Education in Inflammatory Bowel Disease does not Influence Patients Knowledge and Long-Term Psychosocial Well-Being

Bregenzer, N.; Lange, Anita; Fürst, Alois; Groß, V.; Schölmerich, Jürgen; Andus, T.

doi:10.1055/s-2004-813867

Cited by 37 publications

(21 citation statements)

References 9 publications

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“…Our findings are in agreement with those of other studies that also showed no amelioration of HRQoL or depression and anxiety [20,31,[34][35][36][37][38][39][40][41] . Most of them had very small samples, which might have made the detection of differences difficult [20,34,35,[37][38][39][40][41] . Furthermore, some studies analyzed only within-group effects [37][38][39] .…”

Section: Discussionsupporting

confidence: 93%

“…Whereas some authors provided evidence for long-term improvements of symptoms [45] and disease course [36,46] , our study did not find such beneficial effects, which is in line with previous findings [19,35,38] .…”

Section: Discussionsupporting

confidence: 92%

“…We also demonstrated a significant improvement in the perceived level of disease-related knowledge and satisfaction with it. This is in line with findings of other studies on IBD patient education, except for one that did not yield effects on knowledge [31,[33][34][35] . The attendees of our seminar also highly appreciated the program.…”

Section: Discussionsupporting

confidence: 92%

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Beneficial Effects of Education on Emotional Distress, Self-Management, and Coping in Patients with Inflammatory Bowel Disease: A Prospective Randomized Controlled Study

et al. 2016

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Background: Patients with inflammatory bowel disease (IBD) suffer from various physical as well as psychological impairments, and patient education may help improve their well-being. Therefore, we developed a manualized education program for IBD patients addressing medical and psychological issues. This study aimed to evaluate it in a large controlled trial. Methods: A total of 181 IBD outpatients participated in a prospective, randomized, waitlist-controlled trial; assessments were made before as well as 2 weeks and 3 months after intervention. Analysis of covariance was used to assess intervention effects on disease-related worries and concerns (primary outcome), fear of progression, coping with anxiety, health competencies, health-related quality of life (HRQoL), perceived disease activity, symptoms of depression and anxiety, disease-related knowledge, and coping strategies. Participants' satisfaction with the program was also evaluated. Results: At 2 weeks and 3 months after intervention, we found significant large effects of our education program on skill and technique acquisition, knowledge, and coping with IBD. Moreover, we found significant medium effects on disease-related worries and concerns, fear of progression, coping with anxiety, constructive attitudes and approaches, as well as coping with disease-related negative emotions. The number of coping strategies used was significantly higher at 3 months. We did not find any effects on perceived disease activity, HRQoL, positive and active engagement in life, or symptoms of anxiety and depression. The program was rated very favorably by the attendees. Conclusion: Our education program contributed to improvements in psychological distress, self-management skills, and coping and was appreciated by its attendees.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 92%

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Beneficial Effects of Education on Emotional Distress, Self-Management, and Coping in Patients with Inflammatory Bowel Disease: A Prospective Randomized Controlled Study

et al. 2016

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“…Inadequate treatment results can be minimized by spending some time communicating with CD patients 35 and by applying a sophisticated psychological treatment program (not only for information or education 36,37 ) that focuses on changing patients' coping capabilities and illness behavior. 23,24 Interestingly, these effects of a psychological intervention on high care utilization do not seem to be specific for CD but are also found in patients with other chronic diseases like asthma 38 or rheumatoid arthritis.…”

Section: Discussionmentioning

confidence: 99%

Psychological treatment may reduce the need for healthcare in patients with Crohnʼs disease

Deter

Keller

Wietersheim

et al. 2007

Inflammatory Bowel Diseases

127

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“…Such interventions have included educational pamphlets, workshops, conferences, and computer discs (Barlow, Cooke, Mulligan, Beck, & Newman, 2010;Bregenzer et al, 2005 ;Quan, Present, & Sutherland, 2003). In a review of the literature on effectiveness of purely educational interventions, Barlow et al (2010) concluded that these alone did not provide sufficient evidence in the improvement of psychological and behavioral outcomes in IBD patients.…”

Section: Literature Reviewmentioning

confidence: 99%

Evaluation of an Ongoing Psychoeducational Inflammatory Bowel Disease Support Group in an Adult Outpatient Setting

McMaster

Aguinaldo

Parekh

2012

Gastroenterology Nursing

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Previous studies assessing efficacy of support groups for patients with inflammatory bowel disease showed mixed results in terms of attendance and overall effectiveness. In this study, researchers evaluated the use of an ongoing open psychoeducational support group for adult patients with inflammatory bowel disease in an outpatient tertiary setting. The sample consisted of 18 adults who have attended more than 2 meetings of the support group. Topics addressed in the support group include complementary medicine, diet and nutrition, the psychological impact of inflammatory bowel disease, medication and side effects, and insurance/disability. Participants were asked to complete the Client Satisfaction Questionnaire, Multidimensional Support Scale, 11 general demographic questions, and a brief open-ended qualitative questionnaire developed by the researchers. Results demonstrated that participants reported very high satisfaction with the support group and rated the adequacy of peer support from others with inflammatory bowel disease higher than support from family/friends and professionals. A majority of group members reported joining the group for mutual support and education; this expectation was met through the psychoeducational structure of the group. This study demonstrates the potential for success of an ongoing psychoeducational inflammatory bowel disease support group for adult patients and their caregivers.

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Patient Education in Inflammatory Bowel Disease does not Influence Patients Knowledge and Long-Term Psychosocial Well-Being

Cited by 37 publications

References 9 publications

Beneficial Effects of Education on Emotional Distress, Self-Management, and Coping in Patients with Inflammatory Bowel Disease: A Prospective Randomized Controlled Study

Beneficial Effects of Education on Emotional Distress, Self-Management, and Coping in Patients with Inflammatory Bowel Disease: A Prospective Randomized Controlled Study

Psychological treatment may reduce the need for healthcare in patients with Crohnʼs disease

Evaluation of an Ongoing Psychoeducational Inflammatory Bowel Disease Support Group in an Adult Outpatient Setting

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