Patient‐centred management of inflammatory arthritis: more than just disease control

Chou, Louisa; Briggs, Andrew M.; Wluka, Anita E.

doi:10.5694/mja16.01248

Cited by 4 publications

(5 citation statements)

References 14 publications

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“…(2)(3)(4)(5) Optimal management of IA is patient-centred and holistic. (6) This requires patient involvement and provision of information to allow patients to engage in shared decision-making to cope with their disease and actively participate in management. Understanding the patient perspective of their health information needs is essential to provide the right information at the right time and in the right place.…”

Section: Introductionmentioning

confidence: 99%

Patients’ perceived health information needs in inflammatory arthritis: A systematic review

Connelly

Segan

et al. 2019

Seminars in Arthritis and Rheumatism

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Section: Introductionmentioning

confidence: 99%

Patients’ perceived health information needs in inflammatory arthritis: A systematic review

Connelly

Segan

et al. 2019

Seminars in Arthritis and Rheumatism

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“…Given the well established gains in satisfaction, engagement and outcomes where patients have positive experiences with healthcare providers, (65) particularly in chronic disease, (27,(66)(67)(68)(69) healthcare practitioners managing patients with inflammatory arthritis need to make a conscious effort to consider these issues in their practice. (28) This review found many patients emphasizing the importance of seeing specialists and easy access to medical consultation in their arthritis care. (5,57,62) This was commonly motivated by perceived specialism and expertise of specialists in managing the inflammatory arthritis.…”

Section: Discussionmentioning

confidence: 99%

“…Relative to the vast majority of chronic health conditions that are more prevalent with ageing, inflammatory arthritis typically affects younger people, most often when their careers, relationships and families are commencing. (28) The impact of the inflammatory arthritis at these critical life stages are therefore likely to be somewhat different to other health conditions experienced by older people and as such, patients' expectations from health services may differ.…”

Section: Introductionmentioning

confidence: 99%

Patient-perceived health service needs in inflammatory arthritis: A systematic scoping review

Segan

Briggs

Chou

et al. 2018

Seminars in Arthritis and Rheumatism

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“…Fertility treatment (FT) necessitates constant contact for patients with providers and carries a heavy psychological and physical burden [ 1 , 2 ]. We therefore believe that excellent PCC (patient-centered care) is particularly important for patients undergoing FT, similar to the importance and effectiveness of PCC for other chronic diseases [ 3 , 4 ]. Fertility problems significantly reduce quality of life in patients by increasing their anxiety and depression levels [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Patient-centered care in Israeli IVF units: divergent perceptions of patients and providers

Medina-Artom

Adashi

2020

Isr J Health Policy Res

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Background: Patient-centered care is particularly important for patients undergoing fertility treatment because of their emotional involvement and their constant contact with providers. To the best of our knowledge, to date, there have been no rigorous studies of the discrepancies between the patients' perceptions of the care they received and the providers' perceptions of the care that they provided, in specific dimensions and elements of patient-centered care. Objective: To compare provider and patient perceptions of the extent to which care in Israeli IVF units is patientcentered. Methods: A previously validated survey instrument was used to assess the patient and provider perceptions of ten dimensions of patient-centered care: accessibility of providers, provision of information and of explanations, communication skills of providers, patient involvement in the treatment, respect for patient values and needs, continuity and transition in treatment, professional competence, care organization, physical comfort, and emotional support. The patient survey and the provider survey were conducted in 2016-2017; both surveys were carried out in 8 of 25 hospitalbased IVF units in Israel. Seventy-six providers and 524 patients (response rate 79%) participated in the surveys. Findings: The perceptions of patients and providers were similar regarding seven of the ten dimensions of patientcentered care, although there were some differences in patient vs. provider scores by unit. There were three dimensions with substantial provider-patient score differences: Moderate-sized gaps were found relative to the provision of information and explanations (1.96 vs. 2.38, on a 0-3 scale) and respect for patient values and needs (1.92 vs. 2.47). A large gap was observed relative to emotional support (0.96 vs. 2.54). Conclusions: Providers appear to underestimate the needs of fertility treatment patients for information, respect, and emotional support. The observed differences between what patients feel about their care and what providers assume they provide, especially regarding emotional support, indicates a need for ongoing, specific feedback to providers as to the patient-centeredness of the care they provide. The particularly large patientprovider gap relative to the provision of emotional support highlights the importance of increasing the attention paid to the psychological impact of fertility treatment and of giving patients an opportunity to consult a counselor who is familiar with problems associated with fertility treatments.

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Patient‐centred management of inflammatory arthritis: more than just disease control

Cited by 4 publications

References 14 publications

Patients’ perceived health information needs in inflammatory arthritis: A systematic review

Patients’ perceived health information needs in inflammatory arthritis: A systematic review

Patient-perceived health service needs in inflammatory arthritis: A systematic scoping review

Patient-centered care in Israeli IVF units: divergent perceptions of patients and providers

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