Patient-centred healthcare, social media and the internet: the perfect storm?

Rozenblum, Ronen; Bates, David W.

doi:10.1136/bmjqs-2012-001744

Cited by 134 publications

(104 citation statements)

References 22 publications

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“…They also use the internet to connect with others having similar illnesses, to share experiences, and begin to manage their illnesses by leveraging these technologies. They suggest using natural language processing and sentiment analysis to transform unstructured descriptions of patient experience on social networks, blogs, Twitter and hospital review sites into usable measures of healthcare performance (Rozenblum and Bates, 2013). Valkenburg et al (2006) studied the consequences of friend networking sites (for example, Friendster, MySpace) for adolescents' self-esteem and well-being.…”

Section: Review Of Literaturementioning

confidence: 99%

Social media as a means to overcome stress and depression among women

Revathy¹,

Aram²,

Sharmila³

2018

J. Media Commun. Stud.

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Depression constitutes a serious challenge in personal and public health. Tens of millions of people each year suffer from depression and only a fraction receives treatment (de Choudhury, 2013). Stress and depression drains one of the feel-good factors essential to sustain the energy that gives the impetuous to hope and move forward. Depression in women is made more complex because of factors such as reproductive hormones and social pressures. Social media platforms make the way to connect with the public, disseminating helpful information, and establishing control over their online presence. The study analyzes the stress and depression of women-related information on the select pages of Facebook and videos of YouTube. Social Norms Theory and Agenda Setting Theory are employed as theoretical frameworks. Content analysis of Facebook pages and YouTube videos which deal with stress-and depression-related information related to women were undertaken to measure the type and content of messages. The key findings of the study are as follows: Majority of the social media users suggested traditional methods such as physical exercise and yoga to overcome stress and depression; In YouTube, reality videos were mostly used followed by demonstration, testimonial and animation formats: and social media sets the agenda for women with regard to responses to stress and depression, and helps reinforce and redefine social norms amidst patriarchy.

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Section: Review Of Literaturementioning

confidence: 99%

Social media as a means to overcome stress and depression among women

Revathy¹,

Aram²,

Sharmila³

2018

J. Media Commun. Stud.

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“…The patient"s engagement with their care is now considered a key of patient centred healthcare. 2 Patient-centred healthcare realizes that patients are individuals, each with different needs. Realizing those needs and the organization"s ability to meet them are true quality measures.…”

Section: Patient Centered Health Carementioning

confidence: 99%

A Study of Patient Satisfaction in a Tertiary care Teaching Hospital

Rao¹,

Thota²,

Srinivas³

2014

IOSRJDMS

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“…An increasing stream of literature argues for a more prominent role of patients and caregivers in healthcare delivery [11][12][13][14]. However, this literature does not yet consider the innovation capacity of patients and caregivers.…”

Section: Introductionmentioning

confidence: 99%

Innovation by Patients with Rare Diseases and Chronic Needs

Oliveira

Zejnilović²,

Canhão

et al. 2014

SSRN Journal

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We provide the first empirical exploration of disease-related innovation by patients and their caregivers. Our aims were to explore to what degree do patients develop innovative solutions; how many of these are unique developments; and do these solutions have positive perceived impact on the patients' overall quality of life? In addition, we explored the factors associated with patient innovation development, and sharing of the solutions that the patients developed. Methods: We administered a questionnaire via telephone interviewing to a sample of 500 rare disease patients and caregivers. The solutions reported were pre-screened by the authors for their fit with the self-developed innovation aim of the study. All the reported solutions were then validated for their novelty by two medical professionals. Logistic regression models were used to test the relationships between our key variables, patient innovation and solution sharing.Results: 263 (53%) of our survey respondents reported developing and using a solution to improve management of their diseases. An initial screening removed 81 (16%) solutions for being an obvious misfit to the self-developed innovation aim of the study. This lowered the sample of potentially innovative solutions to 182 (36%). Assessment of novelty and usefulness of the solutions, conducted by two medical evaluators, confirmed that 40 solutions (8%) were indeed novel, while the remaining 142 (28%) were already known to medicine. The likelihood of patient innovation increased as the education level increased (OR 2, p < 0.05), and as their perception of limitations imposed by their disease increased (OR 1.3, p < 0.05). 55 individuals diffused their solutions to some degree, with 50 of these sharing via direct diffusion to other patients. There is a positive relationship between the impact of a solution on the respondents' overall quality of life and likelihood of solution sharing.Conclusions: Given that hundreds of millions of people worldwide are afflicted by rare diseases, patient and their caregivers can be a tremendous source of innovation for many who are similarly afflicted. Our findings suggest that many patients could be greatly assisted by improved diffusion of known solutions and best practices to and among patients and their caregivers.

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Patient-centred healthcare, social media and the internet: the perfect storm?

Cited by 134 publications

References 22 publications

Social media as a means to overcome stress and depression among women

Social media as a means to overcome stress and depression among women

A Study of Patient Satisfaction in a Tertiary care Teaching Hospital

Innovation by Patients with Rare Diseases and Chronic Needs

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