Patient-Centered Outcomes in Dermatology

Abstract

Health outcomes can be captured and reported from a number of perspectives, and the patient's perspective is central to successful healthcare delivery and optimizing health outcomes. A patient-centered approach is important in dermatology. We discussed the meaning and application of "patient centeredness," "patient-centered outcome measures (PCOM), " and "patient-reported outcomes (PROs)" in dermatology. We highlighted the important roles that organizations such as the Patient-Centered Outcomes Research Institute (PCORI) and the International Dermatology Outcome Measures (IDEOM) play in advancing patient centeredness in skin diseases. We examined classic patient-reported outcome measures such as the Dermatology Life Quality Index (DLQI) and the Skindex. We also explored patient-centered outcomes in dermatologic surgery. With the development of patientcentered outcome measures, patients are able to express how their skin disease affects their lives in a systematic and valid fashion. These responses are highly valuable in guiding clinical decision-making and improving all aspects of patients' well-being.

Implementing well‐being in the management of psoriasis: An expert recommendation

“…15 This paradigm implies a model of people-centred healthcare (PCHC) and integrated health services, in accordance with the ultimate healthcare goal of restoring patients' well-being and health. 18 In an attempt to provide a comprehensive and personalized care plan to improve patient disease management, 'people-centredness approaches' are increasingly gaining prominence in policy, research and general healthcare practice, [19][20][21][22][23] (and particularly in dermatology) [24][25][26] reflected in practice in different national initiatives. [27][28][29][30] However, initiatives such as the Global Psoriasis Atlas have demonstrated a wide variation in the approach to healthcare of patients with psoriasis, with different stakeholders, decision-making and pharmacological approaches globally.…”