Patient-Centered Discussion on End-of-Life Care for Patients with Advanced COPD

Mitzel, Holly; Brown, D.; Thomas, M; Curl, B.; Wild, Mackenzie; Kelsch, Andrea; Muskrat, Judge; Hossain, Abulquasem; Ryan, Ken G.; Babalola, Olawale; Burgard, Madison; Mehedi, Masfique

doi:10.3390/medicina58020254

Cited by 4 publications

(3 citation statements)

References 86 publications

(112 reference statements)

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“…22 However, this comprehensive approach is often overlooked in daily practice and remains limited to symptom control, leaving patients vulnerable and significantly lowering the health-related quality of life. 26,27 The lack of knowledge about ELC for COPD, the limited number of nursing homes and hospices, and the inability to predict life expectancy in COPD and it's devastating symptoms, such as dyspnea and suffocation, which drive patients to the hospital, all contribute to a high number of hospital deaths. 23 While attempts at ELC are increasing in Turkey, there have not been enough official and scientific publications on the place of death.…”

Section: Discussionmentioning

confidence: 99%

“…Current guidelines advocate ELC that not only relieves the symptoms but also improves the quality of life for patients and their caregivers 22 . However, this comprehensive approach is often overlooked in daily practice and remains limited to symptom control, leaving patients vulnerable and significantly lowering the health‐related quality of life 26,27 . The lack of knowledge about ELC for COPD, the limited number of nursing homes and hospices, and the inability to predict life expectancy in COPD and it's devastating symptoms, such as dyspnea and suffocation, which drive patients to the hospital, all contribute to a high number of hospital deaths 23 .…”

Section: Discussionmentioning

confidence: 99%

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An 8‐year observational study of the death places of patients with COPD in Turkey

İdikut,

İnam,

Karadeniz Güven

et al. 2023

Geriatrics Gerontology Int

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AimThe place of death is one of the indicators of the quality of end‐of‐life care, which has become an essential public health issue with the aging of the population and the increase in life expectancy. There is a lack of data regarding the location of deaths caused by chronic obstructive pulmonary disease (COPD), the third‐leading cause of mortality worldwide. This retrospective, cross‐sectional study aimed to investigate the places of death of patients with COPD in Turkey and their trends over the years.MethodsThe study included patients who had a COPD International Classification of Diseases code in the hospital information system and were provided a medication report for this disease in a university hospital's chest diseases outpatient clinic between January 1, 2014, and December 31, 2021. The place and date of death were obtained from the death notification system and recorded as an in‐hospital or out‐of‐hospital death.ResultsA total of 1402 (77.3%) patients died in the hospital and 412 (22.7%) died outside the hospital, and when comparing the pandemic period and before, no significant difference was observed between the places of death. Sixty‐three (49.6%) of 127 patients over the age of 90 years died outside the hospital, and a significant relationship was observed between advanced age and out‐of‐hospital mortality (P < 0.005).ConclusionAccording to our findings, a substantial number of patients with COPD in Turkey die in hospitals. The insufficiency of nursing homes and lack of hospice care cause more hospital deaths. Our data are expected to guide the development of end‐of‐life care policies for patients with COPD in our country. Geriatr Gerontol Int 2023; ••: ••–••.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

An 8‐year observational study of the death places of patients with COPD in Turkey

İdikut,

İnam,

Karadeniz Güven

et al. 2023

Geriatrics Gerontology Int

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“…Being that COPD is an incurable, progressive disease, death tends to occur after a 'prolonged functional decline associated with uncontrolled symptoms, emotional distress and social isolation' [(54), p. 11]. However, a problem is the increasing evidence that the 'end of life needs of those with advanced COPD are not being met by existing services' [(54), p. 11; (55)]. As such, the notion of a 'good death' remains more a hope than standard medical practice for all patients involved (55-57).…”

Section: Social Support Groupsmentioning

confidence: 99%

Health care of the disadvantaged: chronic obstructive pulmonary disease in later life

Nyman

2023

Front. Public Health

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IntroductionChronic diseases have emerged as the foremost causes of death and disability worldwide. This article employs an ethnographic approach to conduct a gerontological investigation of chronic obstructive pulmonary disease (COPD), the third leading cause of global mortality, trailing only cardiovascular diseases and cancers.MethodsThis study is rooted in an extensive amalgamation of biomedical literature and official epidemiological data. Additionally, it offers enriched insights through an extensive ethnographic research methodology, encompassing ethnographic fieldwork, participant observation, interviews, and focus groups.ResultsThe findings expound that individuals grappling with chronic obstructive pulmonary disease often undergo intricate cognitive and emotional experiences, necessitating holistic solutions that consider psychological processes, contextual factors, and subjective age. These challenges extend beyond the purview of a purely medical perspective.ConclusionThis article concludes that the lens of gerontology is invaluable in comprehending chronic obstructive pulmonary disease, particularly due to its association with old age and increased longevity. Among older individuals, diagnosing the condition presents a formidable challenge. Breathlessness, a cardinal symptom, often overlaps with normal age-related declines in pulmonary function, rendering COPD’s insidious onset misconstrued as a consequence of aging-related changes.

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Health implications due to exposure to fine and ultra-fine particulate matters: a short review

Sharma,

Kurmi,

Hariprasad

et al. 2024

International Journal of Ambient Energy

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Patient-Centered Discussion on End-of-Life Care for Patients with Advanced COPD

Cited by 4 publications

References 86 publications

An 8‐year observational study of the death places of patients with COPD in Turkey

An 8‐year observational study of the death places of patients with COPD in Turkey

Health care of the disadvantaged: chronic obstructive pulmonary disease in later life

Health implications due to exposure to fine and ultra-fine particulate matters: a short review

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