“…There is substantial literature outlining the value of integrating the consumer perspective into research design and implementation centering around impacts on quality (Brett et al, 2014;Daveson et al, 2015;Scholz et al, 2019;Woolf, Zimmerman, Haley, & Krist, 2016), appropriateness (Brett et al, 2014;Canadian Institutes of Health Research, 2011;Cancer Australia & Cancer Voices Australia, 2011;Scholz et al, 2019), relevance (Daveson et al, 2015;National Health & Medical Research Council, 2016;Scholz et al, 2019;Woolf et al, 2016), impact (Canadian Institutes of Health Research, 2011;National Health & Medical Research Council, 2016;Scholz et al, 2019;Woolf et al, 2016), improved outcomes and experiences for patients and families (Cancer Australia & Cancer Voices Australia, 2011;National Health & Medical Research Council, 2016), ethical respect for vulnerable populations (Woolf et al, 2016) and developing a research active nation (Daveson et al, 2015;National Health & Medical Research Council, 2016). However, barriers to such participation have also been noted, including a lack of clarity about the purpose and role of a consumer representative (Ball et al, 2019;Nathan, Johnston, & Braithwaite, 2011;National Health & Medical Research Council, 2016), inadequate preparation for consumer representatives (Ball et al, 2019;Consumer Health Forum of Australia, 2015;National Health & Medical Research Council, 2016;Woolf et al, 2016), tokenism (Ball et al, 2019;National Health & Medical Research Council, 2016), and tension in relation to the balance between lay and clinical perspectives…”