Patient and public experience and views on digital systems for sharing records for health and care preferences at the end of life
J. Birtwistle,
AM Russell,
S. Relton
et al.
Abstract:ObjectiveTo explore patient and public experiences of and priorities for the use of shared patient health records for advance care planning.MethodsA convergent-parallel mixed method design was used. An online national survey of patients and the public gathered data on experiences and views of sharing health and advance care planning information to support care at the end of life. Descriptive statistics were used to analyse rating scale responses (5 or 10-point scale) and thematic analysis applied to free-text … Show more
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