Patient and physician views on the quality of care in inflammatory bowel disease: Results from SOLUTION-1, a prospective IG-IBD study

Bortoli, A.; Kohn, Anna; Politi, Pierluigi; Marconi, Stefano; Monterubbianesi, Rita; Castiglione, Fabiana; Corbellini, A.; Merli, Manuela; Casella, Giovanni; D’Incà, R.; Orlando, Ambrogio; Bossa, Fabrizio; Doldo, Patrizia; Lecis, P.; Valpiani, D.; Danese, Silvio; Comberlato, Michele

doi:10.1016/j.crohns.2014.07.004

Cited by 28 publications

(18 citation statements)

References 23 publications

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“…Other studies have demonstrated that because of the complexity, impact on the patient's life and lifelong nature of IBD, it should ideally be managed by a multidisciplinary team characterised by continuity of care (Bortoli et al . , Calvet et al . , Louis et al .…”

Section: Discussionmentioning

confidence: 99%

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

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Aims and objectives The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease. Background The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high‐quality care, greater focus must be placed on the individual's own perspective of living with the condition. Design A qualitative exploratory study was conducted based on focus groups. Methods Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19–76 years. The interviews were performed between January–June 2014. Results The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: ‘professional attitudes of healthcare staff’ and ‘structure of the healthcare organisation’. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision‐making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care. Conclusion The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs – but there is room for improvement in terms of quality of care. Relevance to clinical practice A person‐centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high‐quality healthcare organisation for patients with Inflammatory bowel disease.

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Section: Discussionmentioning

confidence: 99%

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

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“…This is not the case in our population, as the Italian IBD patients are in the best conditions to adhere to the therapy as they do not bear most of the economic burden of the disease and receive a high-quality assistance. As a matter of fact, Italian IBD patients report to be overall satisfied with the quality of the healthcare assured [ 34 ].…”

Section: Discussionmentioning

confidence: 99%

Factors Predicting the Adherence to the Therapy of Italian IBD Patients

Bucci

Zingone

Tammaro

et al. 2017

Gastroenterology Research and Practice

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Background Inflammatory bowel diseases (IBD) are chronic gastrointestinal disorders influencing many aspects of the patient's life and accounting for substantial social costs. They require long-term therapies and regular contact with the clinic of reference. Our aim is to investigate therapy adherence and identify predictors of adherence. Methods 151 patients were recruited in IBD clinic at the University of Salerno filled in the modified Morisky Medication Adherence Scale, a standardized questionnaire provided during the visit. Results Overall, 71.5% of the patients report to take all medications regularly. According to the scale, our population showed a 62.5% medium-high adherence to oral 5-ASA, a 72% medium–high adherence to immunomodulators, a 60% medium–high adherence to oral steroids, and 94.9% adherence to biologics. Younger patients tend to be less compliant to the therapy. The main reasons for the low adherence to therapy were the “hassle of sticking to the medication plan” and “their feeling better.” Conclusion. In Italy, where the healthcare system covers most of the expenses for IBD therapy, almost 30% of IBD patients report low compliance to therapy. Healthcare givers should improve the knowledge regarding the disease and favor the development of combined drugs that would simplify the daily medication plan.

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“…Particularly in younger patients, poor HRQoL is often associated with negative illness perception, which is the subjective meaning that patients give to their disease [13]. Another important aspect is the patients' satisfaction with treatment and trust in their healthcare providers, both factors that could affect compliance with the therapy and follow-up visit program and represent a challenging issue for gastroenterologists [14].…”

Section: Introductionmentioning

confidence: 99%

The Reality of Patient-Reported Outcomes of Health-Related Quality of Life in an Italian Cohort of Patients with Inflammatory Bowel Disease: Results from a Cross-Sectional Study

Larussa

Abenavoli

Boccuto

et al. 2020

JCM

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Inflammatory bowel disease (IBD) has a negative impact on patients’ physical and psychological well-being, social performance, and working capacity, thereby worsening their health-related quality of life (HRQoL). Clinicians should take care of the patients’ global health, including the psychological, social, and emotional spheres. We aimed to investigate the reality of patient-reported outcomes of HRQoL in a series of IBD patients. Consecutive Crohn´s disease (CD) and ulcerative colitis (UC) patients in clinical remission were recruited. The survey consisted of the Short Inflammatory Bowel Disease Questionnaire (S-IBDQ), the Hospital Anxiety and Depression Scale (HADS), the Brief Illness Perception Questionnaire (B-IPQ), and a questionnaire dealing with impact of IBD on patients’ lives. Demographic and clinical characteristics were recorded. Of 202 participants (29% CD and 71% UC; 54% male; median age 48 years; mean disease duration 14 ± 11 years), 52% had poor HRQoL, 45% anxiety/depression, and 35% sleep disturbance and a high perception of disease (mean score 42.8 ± 14.3). In the multivariate analysis, a low HRQoL was rather associated with UC than CD (p = 0.037), IBD surgery (p = 0.010), disease duration (p = 0.01), sleep disturbance (p = 0.014), anxiety/depression (p = 0.042), and high illness perception (p = 0.006). IBD affected working performance and social activities in 62% and 74% of patients, respectively. Satisfaction regarding quality of care, biologics, and surgery approach were claimed in 73%, 69%, and 76% of patients, respectively. Although 84% of patients trusted their gastroenterologist, only 66% of them discussed IBD impact on HRQoL during visit. In a series of IBD patients in remission, the low HRQoL was significantly associated with surgery, disease duration, sleep disturbance, anxiety/depression, and high illness perception. Even though patients were satisfied with the quality of their care, it appears that clinicians should pay more attention to patients’ emotional status.

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Patient and physician views on the quality of care in inflammatory bowel disease: Results from SOLUTION-1, a prospective IG-IBD study

Cited by 28 publications

References 23 publications

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Factors Predicting the Adherence to the Therapy of Italian IBD Patients

The Reality of Patient-Reported Outcomes of Health-Related Quality of Life in an Italian Cohort of Patients with Inflammatory Bowel Disease: Results from a Cross-Sectional Study

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