Patient and healthcare perspectives on the importance and efficacy of addressing spiritual issues within an interdisciplinary bone marrow transplant clinic: a qualitative study

Sinclair, Shane; McConnell, Shelagh; Bouchal, Shelley Raffin; Ager, Naree; Booker, Reanne; Enns, Bert; Fung, Tak

doi:10.1136/bmjopen-2015-009392

Cited by 26 publications

(21 citation statements)

References 46 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Much of what was discussed by our participants is similar to what has been reported in the literature [8,9,10], but the local context of huge diversity, great inequality, and scarce resources, places particular demands on local hospices. The responses of our participants enable us to add to the discussions raised by the few studies in the global South [11,12,13].…”

Section: Discussionsupporting

confidence: 75%

Spiritual Care Practices in Hospices in the Western Cape, South Africa: The Challenge of Diversity

Mahilall¹,

Swartz

2020

Preprint

View full text Add to dashboard Cite

Background: South Africa is a very diverse middle-income country, still deeply divided by the legacy of its colonial and apartheid past. As part of a larger study, this article explored the experiences and views of representatives of hospices in the Western Cape province of South Africa on the provision of appropriate spiritual care, given local issues and constraints. Methods: Two sets of focus group discussions, with 23 hospice participants, were conducted with 11 of the 12 Hospice Palliative Care Association registered hospices in the Western Cape, South Africa, to understand what spiritual care practices were at play in their hospices against the backdrop of multifaceted diversities. The discussions were analysed using thematic analysis. Results:Two prominent themes emerged: providing relevant spiritual care services in a religiously, culturally, and racially diverse setting, and the organisational context impacting such a spiritual care service. Participants agreed that spiritual care is an important service and that it plays a significant role within the inter-disciplinary team. Participants recognised the need for spiritual care training and skills development, alongside the financial shortfalls. In spite of the diversities and resource constraints, the approach of individual hospices to providing spiritual care remained robust.Discussion:Given the diversities that are largely unique to South Africa, shaped essentially by past injustices, the hospices have to navigate considerable hurdles such as cultural differences, religious diversity, and language barriers to provide spiritual care services, within significant resource constraints. Conclusions:While each of the hospices have established spiritual care services to varying degrees, there was an expressed need for training in spiritual care to develop a baseline guide that was bespoke to the complexities of the South African context. Part of this training needs to focus on the complexity of providing culturally appropriate services.

show abstract

Section: Discussionsupporting

confidence: 75%

Spiritual Care Practices in Hospices in the Western Cape, South Africa: The Challenge of Diversity

Mahilall¹,

Swartz

2020

Preprint

View full text Add to dashboard Cite

show abstract

“…Much of what was discussed by our participants is similar to what has been reported in the literature [24,25,26], but the local context of huge diversity, great inequality, and scarce resources, places particular demands on local hospices. The responses of our participants enable us to add to the discussions raised by the few studies in the global South [15,27,28].…”

Section: Discussionsupporting

confidence: 75%

Spiritual care practices in hospices in the Western Cape, South Africa: The challenge of diversity

Mahilall¹,

Swartz

2020

Preprint

View full text Add to dashboard Cite

Background: South Africa is a very diverse middle-income country, still deeply divided by the legacy of its colonial and apartheid past. As part of a larger study, this article explored the experiences and views of representatives of hospices in the Western Cape province of South Africa on the provision of appropriate spiritual care, given local issues and constraints. Methods: Two sets of focus group discussions, with 23 hospice participants, were conducted with 11 of the 12 Hospice Palliative Care Association registered hospices in the Western Cape, South Africa, to understand what spiritual care practices existed in their hospices against the backdrop of multifaceted diversities. The discussions were analysed using thematic analysis. Results:Two prominent themes emerged: the challenges of providing relevant spiritual care services in a religiously, culturally, linguistically and racially diverse setting, and the organisational context impacting such a spiritual care service. Participants agreed that spiritual care is an important service and that it plays a significant role within the inter-disciplinary team. Participants recognised the need for spiritual care training and skills development, alongside the financial costs of employing dedicated spiritual care workers. In spite of the diversities and resource constraints, the approach of individual hospices to providing spiritual care remained robust.Discussion:Given the diversities that are largely unique to South Africa, shaped essentially by past injustices, the hospices have to navigate considerable hurdles such as cultural differences, religious diversity, and language barriers to provide spiritual care services, within significant resource constraints. Conclusions:While each of the hospices have established spiritual care services to varying degrees, there was an expressed need for training in spiritual care to develop a baseline guide that was bespoke to the complexities of the South African context. Part of this training needs to focus on the complexity of providing culturally appropriate services.

show abstract

“…cording to our open coding approach. The other two meetings were held to ensure the robustness of proposed themes and continuously compared and discussed until consensus was reached by all the researchers [22]. Finally, the research team concluded all the themes and subthemes from both professional and patient focus groups.…”

Section: Discussionmentioning

confidence: 99%

Development of Conceptual Framework from the View of Patients and Professionals on Patient Engagement: A Qualitative Study in Hong Kong SAR, China

Wong¹,

Lui²,

Cheung³

et al. 2018

OJN

View full text Add to dashboard Cite

Objective: To investigate patient engagement to gain understandings of professional and patient's views and inform the development of a patient engagement conceptual framework for further development of a valid and reliable evaluated measure. Method: 17 selected hospitals from Hong Kong East Cluster, Hong Kong West Cluster, Kowloon Central Cluster, Kowloon East Cluster and New Territory East Cluster of Hospital Authority Hong Kong involved in the study. Focus groups were conducted with 37 medical staffs, which included 15 doctors and 22 nurses, and 33 patients. Semi-structured qualitative interview study, with purposive sampling and constant comparative analysis. Results: Data were analyzed using a qualitative approach of latent content analysis. Patient engagement is a multi-dimensional concept. Five hierarchical themes separately from the patient and medical staff's perspectives containing different conceptions and attitudes related to patient engagement have been identified and summarized. Through analyzing both professional and patients' perspectives, a hierarchical framework incorporating patients-professional dynamically fluctuating relationship was built. The framework divides engagement into five levels and five stages. Conclusions: Patient engagement is recognized by more patients and professionals as a means and a cornerstone to build the foundation of patient-centered-care. Our framework encourages that patient engagement related to not only an individual patient's behavior but a reciprocal, dynamic and pluralistic relationship with their professionals and healthcare systems. Understand this relationship can help us better conceptualizing, evaluating, and implementing interventions to improve the population's health.

show abstract

Patient and healthcare perspectives on the importance and efficacy of addressing spiritual issues within an interdisciplinary bone marrow transplant clinic: a qualitative study

Cited by 26 publications

References 46 publications

Spiritual Care Practices in Hospices in the Western Cape, South Africa: The Challenge of Diversity

Spiritual Care Practices in Hospices in the Western Cape, South Africa: The Challenge of Diversity

Spiritual care practices in hospices in the Western Cape, South Africa: The challenge of diversity

Development of Conceptual Framework from the View of Patients and Professionals on Patient Engagement: A Qualitative Study in Hong Kong SAR, China

Contact Info

Product

Resources

About