Patient and family engagement: a survey of US hospital practices

Herrin, Jeph; Harris, Kathleen G.; Kenward, Kevin; Hines, Stephen C.; Joshi, Maulik; Frosch, Dominick L.

doi:10.1136/bmjqs-2015-004006

Cited by 109 publications

(103 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Thematic analysis was undertaken manually to identify, analyse and report patterns in the qualitative data . Transcripts were independently read by two researchers (UC, RH) who, once familiar with the breadth and depth of content, undertook a focused line by line analysis.…”

Section: Methodsmentioning

confidence: 99%

Beyond translation: Engaging with culturally and linguistically diverse consumers

Harrison

Walton

Chitkara

et al. 2019

Health Expectations

View full text Add to dashboard Cite

Background:In the context of an effective consumer engagement framework, there is potential for health-care delivery to be safer. Consumers from culturally and linguistically diverse (CALD) backgrounds may experience several barriers when trying to engage about their health care, and they are not acknowledged sufficiently in contemporary strategies to facilitate patient engagement. Methods: Four focus group discussions were facilitated by bilingual fieldworkers inArabic, Mandarin, Turkish and Dari in a district of Sydney, Australia that has a high proportion of CALD consumers. Each group included 5-7 health-care consumers who, using a topic guide, discussed their experiences of barriers and facilitators when engaging with health-care services in Australia. Thematic analysis was undertaken to identify, analyse and report patterns in the data. Results:In all, 24 consumers participated. Six inter-related themes emerged: navigating the health system; seeking meaningful interpretation; understanding and managing expectations; respectful professional care; accessing services; and feeling unsafe. Conclusions:The incorporation of strategies such as professional interpreters and migrant health workers may go some way to addressing the needs of culturally or linguistically diverse consumers and facilitate communication, but do not sufficiently address the range of barriers to consumer engagement identified in this work.Understanding consumer experience in the context of the complex factors that may be associated with poor engagement and poor outcomes such as health literacy, cultural, educational and linguistic background, and health-care setting or condition, may contribute to better understanding about how to deliver quality health care to these patients. K E Y W O R D Sconsumer engagement, focus group research, health-care quality, migrants, patient engagement

show abstract

Section: Methodsmentioning

confidence: 99%

Beyond translation: Engaging with culturally and linguistically diverse consumers

Harrison

Walton

Chitkara

et al. 2019

Health Expectations

View full text Add to dashboard Cite

show abstract

“…In the UK, government policy states that "involving patients and the public isn't always easy and can take time but, done well, has been shown to be highly effective in developing services that better meet patient needs and lead to better health outcomes" [27]. There is evidence to suggest that patient engagement in the redesign of health care services is linked to fewer adverse events, better patient self-management, fewer diagnostic tests, decreased use of health care services, and shorter lengths of stay in hospitals [28]. Experience-based design is a user-focused design process with the goal of making user experience accessible to allow design of a better patient and staff experience [29].…”

Section: Co-led Redesignmentioning

confidence: 99%

“…A national survey of hospitals in the United States [28] reports that of the 1457 hospitals that responded, 7% include patients and family members in the education and content development when training clinical staff, 21% had a patient and family advisory council that had met within the previous 12 months and 23% had patient and family advisory councils [28]. This type of patient and/or family involvement is not necessarily for health care redesign purposes, although it does provide an opportunity for patients and families to give input regarding various hospital activities.…”

Section: Use Of Patient Engagement Within Redesign and Co-led Redesigmentioning

confidence: 99%

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Prior¹,

Campbell²

2018

J Participat Med

View full text Add to dashboard Cite

The involvement of patients and their families in the redesign of healthcare services is an important option in providing a service that addresses the patients' needs and improves health outcomes. However, it is a resource-intensive approach, and it is currently not clear when it should be used, and what should be the reasoning behind this decision. Some health systems of international standing have created a patient engagement program as a selling point. This paper discusses how co-led redesign can be beneficial in improving health service and more effectively engaging patients. Potential barriers for patient involvement are discussed. Patient involvement can be integrated into the health system at three main levels of engagement: direct care, organizational design and governance, and policy-making. The aim of this paper is to describe how co-led redesign is compatible with different levels of patient involvement and to address the challenges in delivering a co-led redesign in healthcare. Co-led redesign not only involves the collection of quantitative data for assessing the current systems but also the collection of qualitative data through patient, family, and staff interviews to determine the barriers to patient satisfaction. Co-led redesign is a resource-rich process that requires expertise in data collection and a clinical group that is devoted to implementing recommended changes. Currently, a number of countries have utilized co-led redesign for many different types of healthcare services. Resource availability and cost, process time, and lack of outcome measures are three major limiting factors.

show abstract

“…We found “consulting and decision‐making” as another role of the companions. Studies showed that companions can participate in care coordination . They are able to promote patients' understanding during consultation .…”

Section: Discussionmentioning

confidence: 99%

Informal caregivers in hospitals: Opportunities and threats

Amiresmaili

Emrani

2018

Health Planning & Management

View full text Add to dashboard Cite

This study shows some roles for informal caregivers including mental supports, consultation, decision-making, and care roles. Concerning the shortage of manpower in Iran's hospitals, nurses have less time to take care of each patient; therefore, using informal caregivers as an implicit strategy to overcome nursing shortage and to reduce hospital costs seems to be beneficial. We suggest that an appropriate plan is necessary to make use of them for filling this gap to some extent, as well as providing training sessions and facilities for companions acting as informal caregivers.

show abstract

Patient and family engagement: a survey of US hospital practices

Cited by 109 publications

References 13 publications

Beyond translation: Engaging with culturally and linguistically diverse consumers

Beyond translation: Engaging with culturally and linguistically diverse consumers

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Informal caregivers in hospitals: Opportunities and threats

Contact Info

Product

Resources

About