Patient and Family Engaged Care: An Essential Element of Health Equity

Simon, Melissa A.; Baur, Cynthia; Guastello, Sara; Ramiah, Kalpana; Tufte, Janice; Wisdom, Kimberlydawn; Johnston-Fleece, Michelle; Cupito, Anna; Anise, Ayodola

doi:10.31478/202007a

Cited by 13 publications

(15 citation statements)

References 48 publications

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“… 13 Patient voices are fundamental in informing the specific factors and populations that affect and are affected by virtual care in nuanced ways. 15 , 16 …”

Section: Introductionmentioning

confidence: 99%

“…13 Patient voices are fundamental in informing the specific factors and populations that affect and are affected by virtual care in nuanced ways. 15,16 Since 2019, Kingston Health Sciences Centre (KHSC) and Providence Care Hospital (PCH), the regional hospitals in Southeastern Ontario have adopted virtual care for routine ambulatory specialist care and have pioneered a specialist virtual care model delivered through Ontario Telemedicine Network. 9,11,17,18 The specialist virtual care model included provision of care for the Stroke prevention clinic, Epilepsy, Multidisciplinary Amyotropic Lateral Sclerosis Clinic and Medical Obstetrics Clinic.…”

Section: Introductionmentioning

confidence: 99%

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Virtual Care Access and Health Equity during the COVID-19 Pandemic, a qualitative study of patients with chronic diseases from Canada

et al. 2022

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Objectives The COVID-19 pandemic has led to the widespread uptake of virtual care in Canada; however, virtual care may also create new barriers to health care. The purpose of this paper was to explore patient perceptions and concerns around virtual care access. Methods Between February and April 2020, we conducted semi-structured interviews with participants from four chronic disease clinics (stroke, epilepsy, amyotrophic lateral sclerosis, obstetrics medicine) in a mid-sized academic hospital in Southern Ontario, Canada. Consecutive sampling was done by including the patients receiving virtual care in those months. Caregivers were invited to participate in the event that patients were unable to participate in the interview. Thematic analysis was employed to identify overarching themes, and codes were reviewed and refined using a consensus process. Results We interviewed 31 participants (27 patients, four caregivers) that had taken part in virtual care. Our findings suggested that the COVID-19 pandemic served to isolate participants and had negatively impacted their access to health care. However, virtual care did provide a safe avenue for patients to receive care and served as a reassuring option during the pandemic. Low technological literacy and access were identified as barriers to virtual care. Greater awareness and patient engagement is needed in future research to improve access. Conclusion Certain populations can be disproportionately affected by differential access to virtual care. Future studies should examine how social determinants intersect to impact virtual health care access in different patient populations.

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“… 13 Patient voices are fundamental in informing the specific factors and populations that affect and are affected by virtual care in nuanced ways. 15 , 16 …”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Virtual Care Access and Health Equity during the COVID-19 Pandemic, a qualitative study of patients with chronic diseases from Canada

et al. 2022

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“… 25 , 26 More health systems need to focus quality improvement work on addressing racial disparities to improve patient care, reduce social and structural inequities in health delivery, and focus on population health. 27 , 28 …”

Section: Discussionmentioning

confidence: 99%

“…Although research shows that disparate levels of insurance and health care access are associated with racial disparities in health care, these disparities have decreased since the implementation of the Patient Protection and Affordable Care Act . More health systems need to focus quality improvement work on addressing racial disparities to improve patient care, reduce social and structural inequities in health delivery, and focus on population health …”

Section: Discussionmentioning

confidence: 99%

Patient Perspectives on Care Transitions From Hospital to Home

et al. 2022

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“…Patient-Centered Care (PCC), also referred to as Patient and Family-Engaged Care (PFEC), has gained popularity in recent years as it has been shown to improve patient satisfaction and may contribute to better outcomes, including a reduction in racial and ethnic disparities in health care quality [1] , [2] , [3] . Establishing a ubiquitous culture of PCC across health care systems is vital to ensure that populations have equitable opportunities to achieve and maintain health [4] . Its successful incorporation into clinical practice necessitates, amongst other factors, staff awareness and training.…”

Section: Introductionmentioning

confidence: 99%