Patient- and Family-Centered Care as an approach to reducing disparities in asthma outcomes in urban African American children: A review of the literature

Abstract

Background Patient- and family-centered care (PFCC) has the potential to address disparities in access and quality of healthcare for African American pediatric asthma patients by accommodating and responding to the individual needs of patients and families. Study Objectives To identify and evaluate research on the impact of family–provider interventions that reflect elements of PFCC on reducing disparities in the provision, access, quality, and use of healthcare services for African American pediatric asthma patients. Methods Electronic searches were conducted using PubMed, CINAHL, and Psyclnfo databases. Inclusion criteria were peer-reviewed, English-language articles on family–provider interventions that (a) reflected one or more elements of PFCC and (b) addressed healthcare disparities in urban African American pediatric asthma patients (≤18years). Results Thirteen interventions or programs were identified and reviewed. Designs included randomized clinical trials, controlled clinical trials, pre-and post-interventions, and program evaluations. Conclusions Few interventions were identified as explicitly providing PFCC in d pediatric asthma context, possibly because of a Iack of consensus on what constitutes PFCC in practice. Some studies have demonstrated that PFCC improves satisfaction and communication during clinical interactions. More empirical research is needed to understand whether PFCC interventions reduce care disparities and improve the provision, access, and quality of asthma healthcare for urban African American children. Electronic databases used PubMed, CINAHL, and Psyclnfo

Umbrella review of family‐focused care interventions supporting families where a family member has a long‐term condition

“…The reviews encompassed a range of LTCs, patient groups, settings and interventions and differed in terms of design (Table 2). The review designs were systematic quantitative reviews (Canter, Christofferson, Scialla, & Kazak, 2019; Deek et al, 2016; Harper et al, 2015; Kuhlthau et al, 2011; McBroom & Enriquez, 2009; Torenholt, Schwennesen, & Willaing, 2014), Cochrane systematic review (Justo et al, 2007), meta‐analyses (Hartmann, Bazner, Wild, Eisler, & Herzog, 2010; Martire, 2005; Martire, Lustig, Schulz, Miller, & Helgeson, 2004; Martire, Schulz, Helgeson, Small, & Saghafi, 2010), a mixed method review (Elvish, Lever, Johnstone, Cawley, & Keady, 2013), integrative reviews (Östlund & Persson, 2014; Van Horn, Fleury, & Moore, 2002) and a narrative synthesis (Urban, Beery, & Grey, 2004). The range of review designs is expanding (Grant & Booth, 2009); an important aspect of the review reported here is that the included reviews followed explicit and reproducible methods to identify, evaluate and summarize the findings of included studies.…”

“At a loss of what to do”: a qualitative analysis of parents’ online discussion forums about their administration of asthma inhalers to their young children

“…Only when parents gain confidence and trust from healthcare professionals then can they start gaining working knowledge and reduce some of their confusion. A patient-and family-centred care (PFCC) approach has the potential to advance the quality of asthma care and management (15). Within the framework of care, clinicians play a crucial role in respecting caregivers' values in care decisions and their roles in improving care practices (16).…”

Family asthma management in urban children and its association with sleep outcomes

“…This subscale assesses the degree of appropriateness of the family's actions to address respiratory symptoms, their use of an asthma action plan, and monitoring of the child's symptoms (McQuaid et al, 2005). Racial disparities exist in healthcare quality for NLB children with asthma (Harper et al, 2015). For example, NLB children are less likely to receive an asthma action plan than NLW children (Akinbami et al, 2016).…”