Patient and caregiver involvement in a multicentre clustered hemodialysis trial

Abstract

Ahmed Al-Jaishi for their instrumental involvement in the MyTEMP clinical trial. They also thank all MyTEMP investigators, and other key individuals, for their roles in the development and continuation of the trial.

The effect of group logo therapy on the burden of hemodialysis patients’ caregivers

“…wide range of physical, psychological, economic and social problems (4). These patients are physically and mentally disabled to do their daily care and need caregivers to take care of them (5).…”

“…Therefore many caregivers report loneliness, depression and poor physical and mental health, followed by work burnout and poor quality of care. These are often due to prioritizing patients' physical, psychological and social needs over caregivers' needs (4,12). However less attention is often paid to caregivers and the focus is mostly on patients.…”

“…Previous studies also determined the validity of the instrument to be desirable (22). The reliability of the instrument was 0.86 using Cronbach's alpha (4). Moreover, in other studies, the reliability was determined to be 77% (22) and 94% (23) using the test-retest method (Figure 1).…”

“…In the content validity of the instrument, all the items had a desirable CVI (content validity index) between 0.7 and 1 (4). Previous studies also determined the validity of the instrument to be desirable (22).…”

“…The instrument consists of 22 items focusing on personal, social, emotional and economic burden that were completed through interviews with the caregivers. The caregivers' response for each item was measured on a 5-point Likert scale (never to always) which is scored from zero to four; never (0), rarely (1), sometimes (2), often 3and always (4). Finally, the total scores of caregiver burden ranged from 0 to 88.…”