Patient and Caregiver Congruence

Retrum, Jessica H.; Nowels, Carolyn T.; Bekelman, David B.

doi:10.1097/jcn.0b013e3182435f27

Cited by 81 publications

(60 citation statements)

References 25 publications

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“…This dyadic disconnect resulted in poor patient outcomes and was consistent with our findings. In addition, this study supports the finding of Retrum et al (2013), who found that incongruence and lack of communication in the patient–caregiver dyads affected HF disease management, perceived care needs, and EOL planning.…”

Section: Discussionsupporting

confidence: 88%

“…As dyads interact in the role of patient and caregiver, these interactions are interdependent (Rusbult & Van Lange, 2003) and may show congruence and incongruence. Congruence is defined as consistent perceptions between the dyad regarding various aspects of the patient’s illness (Retrum, Nowels, & Bekelman, 2013). Incongruence in the dyad is defined as differences in decisions, behaviors, and attitudes.…”

Section: Introductionmentioning

confidence: 99%

“…This dyadic disconnect in perceptions between the dyad could potentially influence illness management and joint health care decision making. A qualitative study by Retrum et al (2013) examined the congruence or incongruence in the narratives of HF dyads ( n = 17). The researchers found both congruence and incongruence within the dyads and reported that incongruence was more likely to result in increased reports of dyadic conflict or distress.…”

Section: Introductionmentioning

confidence: 99%

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Patient and Caregiver Incongruence in Advanced Heart Failure

et al. 2014

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The important role of caregivers in heart failure (HF) management is well documented, but few studies have explored HF patient–caregiver dyads when dyadic incongruence is evident. The purpose of this study was to determine the prevalence of incongruence between HF patient–caregiver dyads, areas of incongruence, and the impact on individuals in the dyadic relationship. Data were collected as part of a longitudinal qualitative study examining the palliative care needs of HF dyads. Interviews with dyads determined to be incongruent were further analyzed. Of the 100 dyads, 47 were identified as being incongruent. Dyads were found to be incongruent in illness management, health care issues, and end-of-life decisions. Dyads that were incongruent reported more psychosocial issues and distress within the dyad and individually. Further research is needed to determine the impact of incongruence and whether interventions to modify incongruence will lead to improved HF patient and caregiver outcomes and experiences.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Patient and Caregiver Incongruence in Advanced Heart Failure

et al. 2014

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“…Within this growing body of research, studies are focused on understanding patient and caregiver appraisal of the illness context and factors that contribute to incongruent appraisals (Cano, Johansen, & Franz, 2005;Lobchuk, Kristjanson, Degner, Blood, & Sloan, 1997;Lyons, Zarit, Sayer, & Whitlatch, 2002;Retrum, Nowels, & Bekelman, 2013). To date, however, few studies have examined the consequences of incongruence.…”

Section: Literature Reviewmentioning

confidence: 99%

Incongruence between stroke survivor and spouse perceptions of survivor functioning and effects on spouse mental health: a mixed-methods pilot study

McCarthy

Lyons

2014

Aging & Mental Health

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“…For this reason, HF patient/informal caregiver dyads are currently undergoing careful examination in the cardiovascular nursing literature. 5–8 Recent dyadic studies have uncovered gradients of individual contributions and expertise in dyadic self-care, 5 incongruence between patient and caregiver perceptions of self-care 6,8 and the impact of self-care on dyadic quality of life. 7 This new focus on HF dyads comes with an associated need to study how dyadic dynamics influence self-care in greater depth.…”

Section: Introductionmentioning

confidence: 99%

Caregivers’ Heart Failure Knowledge Is Necessary but Not Sufficient to Ensure Engagement With Patients in Self-care Maintenance

Buck

Hupcey

Mogle

et al. 2017

J Hosp Palliat Nurs

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The chronic illness literature suggests that patient–informal caregiver dyads who are relationally oriented (share decisions and activities) are more efficient and effective than those who are not. But this is currently unknown in heart failure (HF). Our aim was to examine differences between individually and relationally oriented HF dyads relative to patient symptom management scores. This was a cross-sectional study of 55 dyads (spousal/adult child/relative) analyzed using Actor-Partner Interdependence Model techniques. Dyad orientation was measured by the Dyadic Symptom Management Type scale, and symptom management by Self-care of HF Index. On average, patients were older, white males with younger, female caregivers. Whether the dyads were individually oriented or relationally oriented did not make a difference. However, dyads’ agreement on that orientation and the caregivers’ HF-related knowledge impacted caregiver engagement in self-care maintenance or adherence and monitoring behaviors. It is assumed that caregivers will engage in HF care. Our study suggests that caregivers will engage if they agree with the patient on who is providing that care and are knowledgeable. The Dyadic Symptom Management Type scale is a 1-item question that can be administered in the clinical setting by a palliative care nurse in less than 2 minutes to assess agreement and target teaching.

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Patient and Caregiver Congruence

Cited by 81 publications

References 25 publications

Patient and Caregiver Incongruence in Advanced Heart Failure

Patient and Caregiver Incongruence in Advanced Heart Failure

Incongruence between stroke survivor and spouse perceptions of survivor functioning and effects on spouse mental health: a mixed-methods pilot study

Caregivers’ Heart Failure Knowledge Is Necessary but Not Sufficient to Ensure Engagement With Patients in Self-care Maintenance

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