Patient activation with knowledge, self‐management and confidence in chronic kidney disease

Johnson, Margaret; Zimmerman, Lani; Welch, Janet L.; Hertzog, Melody; Pozehl, Bunny; Plumb, Troy J.

doi:10.1111/jorc.12142

Cited by 57 publications

(68 citation statements)

References 23 publications

(44 reference statements)

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“…Lack of understanding about kidney disease identified in this phase seems to be consistent with that of other research conducted in the U.S. (Johnson et al, 2016;Welch et al, 2016;, Australia (Enworom & Tabi, 2015;Gray, Kapojos, Burke, Sammartino, & Clark, 2016;Wembenyui, 2017), Peru (Anaya et al, 2016), and Iran (Qobadi, Besharat, Rostami, & Rahiminezhad, 2015). This phase found that Vietnamese people had limited knowledge about CKD.…”

Section: Phase One: Translation and Validation Of Instruments 63supporting

confidence: 76%

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Self-Management Program for People with Chronic Kidney Disease in Vietnam: A Pragmatic Randomised Controlled Trial

Nguyen¹

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Section: Phase One: Translation and Validation Of Instruments 63supporting

confidence: 76%

“…It is possible that knowledge is a prerequisite for changing behaviour to improve health outcomes of people with CKD (Welch et al, 2016;Wu, Hsieh, Lin, & Tsai, 2016).…”

Section: Self-efficacymentioning

confidence: 99%

Self-Management Program for People with Chronic Kidney Disease in Vietnam: A Pragmatic Randomised Controlled Trial

Nguyen¹

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“…CKD has a major effect on the individual level by increasing the morbidity and mortality of patients and also increasing healthcare costs and the demand for healthcare services on a national level [1]. With this increasing rate of CKD, increased awareness and understanding of the overall CKD burden is needed, which may lead to improvement in the knowledge, trust, and involvement in selfmanaging the disease [9]. Haemodialysis (HD) is the most common method of treatment, with approximately 90.6% of patients undergoing it.…”

Section: Introductionmentioning

confidence: 99%

Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

et al. 2018

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Background: Chronic kidney disease (CKD) is one of the main public health issues. It increases the morbidity and mortality of patients. Treatment includes multiple aspects such as dialysis and lifestyle modifications. The primary goal of this study was to determine factors associated with self-efficacy and health-related quality of life (HRQoL) among haemodialysis (HD) patients. Methods: A cross-sectional descriptive correlation study was conducted on CKD patients undergoing HD at 12 different dialysis centres in Palestine. Self-efficacy was assessed by the Self-Efficacy for Managing Chronic Disease Six-Item Scale (SEMCD-6), and HRQoL was assessed using the Five-level EuroQol Five-Dimensions (EQ-5D-5L) tool. Multiple linear regression analysis was carried out to assess the association of factors with each of the SEMCD-6 and HRQoL scale scores. Results: A total of 283 HD patients were included in the study. A correlation test revealed moderately positive association between the EQ-5D and SEMCD-6 scores (r = 0.497, p value < 0.001). In multiple linear regression analysis, age, living status, and number of co-morbid diseases were negatively associated with SEMCD-6 scores (β = − 2.66, p = 0.016; β = − 5.71, p = 0.033; β = − 1.84, p = 0.006, respectively). Furthermore, there is a positive association between educational level and SEMCD-6 score with QoL score (β = 0.05, p = 0.017; β = 0.01, p < 0.001, respectively), while there is a negative association between the number of co-morbid diseases and QoL score (β = − 0.07, p = 0.001).Conclusions: This study assessed factors associated with impaired self-efficacy and HRQoL in HD patients. The results show that impaired self-efficacy was associated with the elderly, patients living with family, and patients with a high number of co-morbid diseases. Furthermore, this study found that the worst HRQoL was associated with patients with a low education level, lower levels of self-efficacy, and a high number of co-morbid diseases.

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“…Covariates for adjustment were chosen according to clinical significance and possible effect on portal adoption (1,(3)(4)(5)(6)(7)(8)10,11,(13)(14)(15)29,31,33,34,36,(54)(55)(56)(57)(58)(59)(60)(61)(62)(63). Sociodemographic variables were age, sex, race, marital status, insurance status, neighborhood median household income, tobacco use, and follow-up duration.…”

Section: Statistical Analysesmentioning

confidence: 99%

“…Patient activation (the "knowledge, skills and confidence" needed to actively engage in care) (12) is a critical feature of CKD management, wherein BP self-monitoring, dietary modification, medication adherence, nephrotoxin avoidance, and patient-provider collaboration are essential (13)(14)(15)(16). Enabling patients with CKD to easily access their medical information is a novel approach to facilitate patient engagement and activation (17).…”

Section: Introductionmentioning

confidence: 99%

Disparities in Electronic Health Record Patient Portal Use in Nephrology Clinics

Jhamb

Cavanaugh

Bian

et al. 2015

Clinical Journal of the American Society of Nephrology

126

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Background and objectives Electronic health record (EHR) patient portals allow individuals to access their medical information with the intent of patient empowerment. However, little is known about portal use in nephrology patients. We addressed this gap by characterizing adoption of an EHR portal, assessing secular trends, and examining the association of portal adoption and BP control (,140/90 mmHg).Design, setting, participants, & measurements Patients seen between January 1, 2010, and December 31, 2012, at any of four university-affiliated nephrology offices who had at least one additional nephrology follow-up visit before June 30, 2013, were included. Sociodemographic characteristics, comorbidities, clinical measurements, and office visits were abstracted from the EHR. Neighborhood median household income was obtained from the American Community Survey 2012.Results Of 2803 patients, 1098 (39%) accessed the portal. Over 87% of users reviewed laboratory results, 85% reviewed their medical information (e.g., medical history), 85% reviewed or altered appointments, 77% reviewed medications, 65% requested medication refills, and 31% requested medical advice from their renal provider. ConclusionWhile portal adoption appears to be increasing, greater attention is needed to understand why vulnerable populations do not access it. Future research should examine barriers to the use of e-health technologies in underserved patients with CKD, interventions to address them, and their potential to improve outcomes.

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Patient activation with knowledge, self‐management and confidence in chronic kidney disease

Abstract: Background: Chronic kidney disease is a growing health problem on a global scale. The

Cited by 57 publications

References 23 publications

Self-Management Program for People with Chronic Kidney Disease in Vietnam: A Pragmatic Randomised Controlled Trial

Self-Management Program for People with Chronic Kidney Disease in Vietnam: A Pragmatic Randomised Controlled Trial

Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

Disparities in Electronic Health Record Patient Portal Use in Nephrology Clinics

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