Patient activation in adults with chronic conditions: A systematic review

Abstract

Patient activation is an important aspect of self-management for adults with chronic non cancerous health conditions (CHC). However, there is limited evidence about which measures of patient activation and healthrelated quality of life are most useful to clinicians. This systematic review examined regarding the types of measures used to evaluate a patient’s readiness for self-management including patient activation and healthrelated quality of life (HRQOL). Two such as measurements are the Patient Activation Measure (PAM) and overall PROMIS® Global health. Ten articles were identified which included measurement of patient activation and HRQOL. The results indicate that HRQOL is evaluated with various measurement tools. Most researchers agree that patient activation and the measurement of global HRQOL positively contribute to successful self-management strategies.

Determinants of patient activation and its association with cardiovascular disease risk in chronic kidney disease: A cross‐sectional study

“…We found that older age was independently associated with low activation. Similar findings have been reported in diabetes 8 and other chronic diseases, 4,7,8 and our data support research in CKD by Van Bulk et al 32 in dialysis patients and Zimbudzi et al 19 in non‐dialysis CKD. Data from the UKRR 12 found those aged 25‐44 and those who received transplant had the highest activation.…”

“…We found patients with low activation had lower cardiorespiratory fitness and HRQOL. This supports a plethora of research in older adults and LTCs 4,7–9 . In CKD, data from the UKRR 12 found those who reported better HRQOL had higher activation levels.…”

“…The ‘Patient Activation Measure’ (PAM) is the most widely used instrument for measuring patient activation 6 and was piloted in the NHS through the UK Renal Registry (UKRR). Increased patient activation is associated with improved health outcomes in many LTCs including premature mortality and hospitalization 7,8 . Patient activation is closely related to the engagement of preventive health behaviours with empirical studies indicating activated patients are more likely to attend screenings, check‐ups and immunizations, as well as engage in healthy behaviours such as eating a balanced diet 9,10 …”

“…Increased patient activation is associated with improved health outcomes in many LTCs including premature mortality and hospitalization. 7,8 Patient activation is closely related to the engagement of preventive health behaviours with empirical studies indicating activated patients are more likely to attend screenings, check-ups and immunizations, as well as engage in healthy behaviours such as eating a balanced diet. 9,10 Few studies have administered the PAM to patients with kidney disease, and as such, information regarding the determinants and outcomes in this population is sparse.…”

Nível de ativação e qualidade de vida relacionada à saúde de pessoas em hemodiálise

“…13 Thus, activating adults with chronic non-communicable diseases for patient participation in selfmanagement activities is essential for improving overall health and HRQOL. 14 In a systematic review that identified, through 36 articles, the variables that most influenced the HRQOL of people on renal dialysis, the variable activation was not used. 15 In addition, studies associating patient activation with HRQOL in people with CKD are limited 16,17 and, when considering people on hemodialysis treatment, are even more restricted.…”