Patient activation among people living with HIV: a cross-sectional comparative analysis with people living with diabetes mellitus

Abstract

Standardized self-management supports are an integral part of care delivery for many chronic conditions. We used the validated Patient Activation Measure (PAM®) to assess level of engagement for self-management from a sample of 165 people living with HIV (PLWH) and 163 people with diabetes. We conducted multivariable logistic regression to assess associations between demographics and PAM® scores. PLWH had high levels of activation that were no different from those of people with diabetes (mean score = 67.2, SD = 14.2 versus 65.0, SD = 14.9, p = 0.183). After adjusting for patient characteristics, only being on disability compared to being employed or a student was associated with being less activated (AOR = 0.276, 95%CI = 0.103-0.742). Our findings highlight the potential for the implementation of existing standardized chronic disease self-management programs to enhance the care delivery for PLWH, with people on disability as potential target populations.

Status and factors associated with patient activation and its relationship with HIV clinic outcomes among Yi minority people living with HIV in Liangshan, China: a cross-sectional study

“…In this study, patient activation status was found to be different from that reported in previous studies. The level of PAM in Yi minority PLWH is much lower than in studies conducted in Western countries, such as the United States (13) and Canada (17). It is concerning that more than 90% of our sample have Level 1 PAM scores.…”

“…The PAM raw score was 29.8 ± 4.1 with a range of 14–45 (corresponding to the transformed score: 39.3 ± 6.0). A comparison of results from this study and previous studies ( 13 , 17 , 27 ) is shown in Figure 1 . In terms of patient activation level, the percentage of participants in Level 1 was as high as 97.8% ( n = 394); the percentage of patients in Level 2 and Level 3 were 1.7% ( n = 7) and 0.5% ( n = 2), respectively.…”

“…Current studies about patient activation have focused on chronic diseases that are not communicable (e.g., chronic obstructive pulmonary disease and diabetes) ( 16 ); Previous studies on patient activation in PLWH from high-income countries have shown that the patient activation level is high and is associated with HIV clinical outcomes, such as CD4 count, viral suppression and adherence ( 13 , 17 ). However, there is a lack of studies reporting the status and factors associated with patient activation and its relationship with HIV clinic outcomes among PLWH from low- and middle-income countries.…”

Ocorrência de pessoas infectadas pelo HIV que realizam tratamento com antirretroviral em uma cidade do sul do Brasil: um desafio aos profissionais de saúde

“…Com a disponibilidade de TARV, o HIV tornou-se uma infecção crônica que requer gestão por parte dos órgãos de saúde ao longo do tempo 16 . Dada a esta situação a prevenção é fundamental, e estratégias devem ser reavaliadas por parte da saúde pública.…”

The Mediating Role of Social Support and Resilience Between HIV-Related Stigmas and Patient Activation Among Young Black Women Living With HIV in the Southern United States: A Cross-sectional Study

“…The Patient Activation Measure (PAM), developed by Hibbard et al, offers a validated instrument to assess patient activation (Hibbard et al, 2005). Yet, few studies have examined patient activation among PLWH (Fiscella et al, 2015; Kendall et al, 2018; Marshall et al, 2013) and, to our knowledge, none have examined patient activation among Black women living with HIV (WLWH).…”