Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study

Abstract

Objectives Partners of patients with rheumatoid arthritis (RA) often take on supportive roles given the debilitating nature of RA. Our objective was to explore the perspectives, attitudes, and experiences of partners of female patients with RA regarding reproductive experiences and decision making. Methods We conducted a qualitative study involving semi-structured interviews with partners of female patients with RA. We defined a ‘partner’ as an individual within a romantic relationship. Constructivist grounded theory was applied to interview transcripts to identify and conceptualize themes. Results We interviewed 10 partners of female patients with RA (10 males; mean age, 35 [23–56]) of which 40% had at least one child with a female patient with RA and did not desire additional children. We identified four themes representing stages of reproductive decision making: (1) developing an understanding of RA, (2) contemplating future family decision making, (3) initiating reproductive decision making with partner, and (4) reflecting on past reproductive experiences. Participants contemplated their attitudes and perspectives towards pregnancy and employed available information to support their partner’s medication decisions. When reflecting on their reproductive experiences, participants shared the impacts of past reproductive decisions on their romantic relationship and their mental health and wellbeing. Conclusion Our study highlights the need for comprehensive supports for both female patients with RA and their partners at all stages of reproductive decision making. Healthcare providers can identify opportunities for intervention that involves female patients with RA and their partners to minimize stress and its negative impacts on the family.