Partners in Policymaking: Empowering People

Zirpoli, Thomas J.; Hancox, David R.; Wieck, Colleen; Skarnulis, Edward R.

doi:10.1177/154079698901400208

Cited by 17 publications

(2 citation statements)

References 1 publication

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“…This program was developed for adults with developmental disabilities and parents of young children with disabilities to teach best practices in disability and the competencies of influencing and communication. It has received considerable attention for promoting the empowerment and selfadvocacy of people with disabilities and their families (Zirpoli, Wieck, Hancox, & Skarnulis, 1989. This program is designed to provide information, training, resources, and skill building so that people with disabilities may be empowered to &dquo;pursue their own agenda so that they may obtain the best available services&dquo; (Zirpoli et al, 1994, p. 423).…”

Section: Partners In Policymakingmentioning

confidence: 98%

Leadership and Self-Determination

Johnson

1999

Focus Autism Other Dev Disabl

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This article briefly reviews attributes and elements identified in the literature for promoting the self-determination and self-advocacy of people with disabilities. In addition, to identify which elements of self-determination and self-advocacy are discussed as elements of effective leadership, a small portion of the general leadership literature is also reviewed. Of specific interest is determining which self-determination practices that have emerged in the literature devoted to people with disabilities also appear in the general leadership literature as essential, generic leadership practices. Conceptual distinctions are drawn among the notions of self-determination, self-advocacy, empowerment, and leadership. A number of conclusions are drawn and are supported by the review, suggesting that (a) self-determination and self-advocacy are essential to effective leadership based on the frequency with which attributes of self-determination are identified as elements of effective leadership; (b) leadership involves skills, competencies, and strategies that focus on collective action to achieve common goals, whereas self-determination and self-advocacy typically focus on individual action directed toward personal goals; and (c) effective leadership is fundamentally an exercise in collective self-determination. Recommendations to increase the focus and attention to the

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Section: Partners In Policymakingmentioning

confidence: 98%

Leadership and Self-Determination

Johnson

1999

Focus Autism Other Dev Disabl

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“…Perhaps the best known consumer and family training series is the Partners in Policymaking program, developed by the Minnesota Developmental Disabilities Council in the late 1980s (Zirpoli, Hancox, Wieck, & Skarnulis, 1989). Several studies have reported positive outcomes for the Partners in Policymaking program (Balcazar, Keys, Bertram, & Rizzo, 1996; Cunconan-Lahr & Brotherson, 1996; Reynolds, 2011).…”

Section: Leadership and Advocacy Training Effectivenessmentioning

confidence: 99%

Policy Change Through Parent and Consumer Leadership Education

Schuh

Hagner

Dillon

et al. 2016

Journal of Disability Policy Studies

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This study examines the impact of intensive training in leadership and advocacy skills on the level of knowledge about services and supports, advocacy activity, and the clarity of vision for the future of 123 individuals with disabilities and family members who participated in an annual New Hampshire Leadership Series over 7 years. There was a significant increase in knowledge about services and supports following training in every year, and consistently significant increases in advocacy activity and clarity of vision in Years 4 through 7, with particularly striking improvement associated with the addition of a stronger emphasis on person-centered planning within the curriculum. The implications of a sustained effort to develop a statewide grassroots leadership capacity on policies and practices are discussed.

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