Partnering with people with dementia and their care partners, aged care service experts, policymakers and academics: A co‐design process

Goeman, Dianne; Corlis, Megan; Swaffer, Kate; Jenner, Valerie; Thompson, Jennifer F.; Renehan, Emma; Koch, Susan

doi:10.1111/ajag.12635

Cited by 25 publications

(44 citation statements)

References 13 publications

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“…However, to our knowledge, combining exercise with immersive virtual reality has not been tested in the RACF, possibly due to the potential for simulator sickness. Future research should also consider the development of VCEs using co-design with people living with dementia and carers (Berry et al, 2019; Goeman et al, 2019) and as a part of intergenerational programming (Lee et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study

et al. 2020

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Social isolation and sedentary behaviour are common in residential aged care facilities (also known as nursing homes or long-term care). Use of new technologies such as virtual and augmented reality are currently under investigation for their potential to provide exciting and engaging activities for older people in residential aged care facilities. However, there is limited evidence on whether these technologies can promote physical activity in a small group setting for people with cognitive impairment. Using mixed methods, we examined the use of a virtual cycling experience in a sample of 10 participants with cognitive impairment living in residential aged care facilities. In a randomised crossover design, participants engaged in a 25-minute, self-paced, facilitated seated virtual cycling experience and a time-matched seated physical activity session in groups of five. All participants completed a brief pre- and post-intervention mood questionnaire. Video analysis was used for both conditions to compare levels of environmental stimulation, apathy and engagement using both the Person–Environment Apathy Rating Scale and the Engagement of a Person with Dementia Scale. A thematic analysis of semi-structured interviews following the virtual cycling experience was also performed. No differences were observed between conditions for all outcomes except for environmental stimulation, where there was a lower response in the intervention than the control condition ( p = 0.032). This was primarily driven by lower scores for the virtual cycling experience than control in physical accessibility ( p = 0.012). Participants reported the virtual cycling experience to be immersive and challenging and reminisced about cycling earlier in life. The activity manager observed that the virtual cycling experience was an overall positive experience and emphasised benefits of safety screening and preparation prior to the activities. The findings of this study support the use of the virtual cycling experience as an immersive and engaging alternative to usual activities, which might encourage higher levels of physical activity in residential aged care facilities.

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Section: Discussionmentioning

confidence: 99%

Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study

et al. 2020

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“… There is a lack of application of awareness of dementia to the workplace setting, and therefore training for employers is needed to support future action. Goeman 30 2019 Australia. Community setting.…”

Section: Methodsmentioning

confidence: 99%

“… 26 , 28 , 29 , 31 , 32 , 36 , 37 , 40 , 43 The majority of articles ( n =12) 25 , 27–30 , 33–35 , 37–39 , 42 included multiple stakeholders, including those living with dementia; there were three studies 26 , 32 , 41 including only people living with dementia, and others solely focused on other stakeholders, for example employers ( n =1), 43 caregivers ( n =1) 40 or health and social care professionals ( n =2). 31 , 36 The papers reviewed were drawn primarily from Canada ( n =6), 25–29 , 41 and the UK ( n =5), 35 , 36 , 38 , 42 , 43 with others from Ireland ( n =2), 31 , 32 Australia ( n =2), 30 , 37 the USA ( n =1), 40 the Netherlands ( n =1), 33 Sweden ( n =1) 34 and Taiwan ( n =1). 39 Most studies ( n =15) 25–27 , 29–31 , 33–35 , 37–40 , 42 , 43 focused on engaging and including those living in the community (which included two studies focusing on attending day provision or clinics within a hospital 35 , 39 ), two studies focused on care homes settings 28 , 32 and two focused on the hospital setting.…”

Section: Methodsmentioning

confidence: 99%

“…How to achieve shared decision making in practice can be challenging for care professionals. Examples of attempts to address this in care practice by professionals can be found in Australia, 30 the Netherlands 33 and Ireland. 31 , 32 Groen-van de Ven et al 33 found that shared decision making with people with dementia was possible, but that it required an adapted process.…”

Section: Methodsmentioning

confidence: 99%

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Dementia Friendly Care: Methods to Improve Stakeholder Engagement and Decision Making

Innes¹,

Smith²,

Bushell³

2021

JHL

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Dementia friendly (DF) is a term that has been increasingly used in the international literature to describe approaches that include and involve people living with dementia within their communities and wider society. How to support the involvement of people living with dementia to achieve dementia friendly care or support outcomes is an area that has begun to receive attention. We begin by introducing the concept of dementia friendly, the policy context and what has already been evidenced via prior reviews and conceptual discussions. We conducted a systematic review following PRISMA guidelines, resulting in the inclusion of nineteen papers that reported on the methods and approaches used to involve people living with dementia in achieving dementia friendly or supportive care outcomes. Five primary themes were identified: the potential of group-based activities to facilitate inclusion and engagement; achieving engagement in decision making; the value of developing tools to help service providers to engage those living with dementia in care decisions; the role of awareness raising and education to support the inclusion of a range of stakeholders in achieving DF support and care outcomes; the need for cultural and contextual sensitivity when seeking to engage stakeholders to achieve positive care outcomes. We conclude by considering how both the underpinning ethos of social citizenship and social inclusion need to be in place alongside a range of approaches that are adapted to fit local contexts and needs to enable the involvement of people living with dementia in achieving dementia friendly care outcomes.

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“…Goeman et al report on co‐design as part of a research process involving people with dementia, their care partners, aged care service experts, policymakers and academics. Lessons are drawn from a project on the key worker role in community settings.…”

mentioning

confidence: 99%

Organising care, practice and participative research: Papers from the cognitive decline partnership centre

2019

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Partnering with people with dementia and their care partners, aged care service experts, policymakers and academics: A co‐design process

Cited by 25 publications

References 13 publications

Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study

Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study

Dementia Friendly Care: Methods to Improve Stakeholder Engagement and Decision Making

Organising care, practice and participative research: Papers from the cognitive decline partnership centre

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