Partner Quality of Life in the Antiarrhythmics Versus Implantable Defibrillators Trial

Jenkins, Louise S.; Powell, Judy; Schron, Eleanor B.; McBurnie, Mary Ann; Bosworth-Farrell, Susan; Moore, Richard W.; Exner, Derek V.

doi:10.1097/01.jcn.0000297378.98754.06

Cited by 18 publications

(34 citation statements)

References 27 publications

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“…Overall, participants reported lower levels of QOL (mean = 18.08 ± 5.50) compared with informal caregivers of patients awaiting lung transplant (mean = 22.81 ± 4.50) [32], caregivers of patients with breast cancer (mean = 22.32 ± 3.40) [33], and caregivers of patients with life-threatening dysrhythmias (mean = 24.20 ± 3.60) [34]. Our finding of moderate levels of QOL is consistent with other studies of QOL in TBI informal caregivers, although direct comparisons are difficult because of the heterogeneity of instruments used to measure study variables.…”

Section: Discussionmentioning

confidence: 99%

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

et al. 2016

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Abstract-Families of Veterans with traumatic brain injury (TBI) are often faced with providing long-term informal care to their loved one. However, little is known about how their perceived health and caregiving burden contribute to their quality of life (QOL). The purpose of this descriptive study was to describe perceived health, somatic symptoms, caregiver burden, and perceived QOL and to identify the extent to which these variables are associated with QOL in female partners/ spouses of Veterans with TBI. Participants completed a written questionnaire including the general health subscale of the 12-Item Short Form Survey version 2, the Patient Health Questionnaire-15, Caregiver Reaction Assessment, and Quality of Life Index. Caregivers reported moderate levels of QOL, and over a quarter of the sample reported high levels of somatic symptoms, particularly fatigue and sleep disturbance. Age, perceived general health, somatic symptoms, the five subscales of caregiver burden (self-esteem, disrupted schedule, effect on finances, lack of family support, and effect on health) predicted QOL and explained 64% of its variance (adjusted r 2 = 0.64, F(8,31) = 9.59). However, only somatic symptoms and the caregiver burden subscales of self-esteem and effect on finances were significant predictors in the model. These findings have implications for development of family-centered interventions to enhance the QOL of informal caregivers of Veterans with TBI.

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Section: Discussionmentioning

confidence: 99%

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

et al. 2016

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“…The most challenging time to partners’ physical and psychological well-being has been shown to be in the first 3 months post-ICD (Dougherty & Thompson, 2009). Essentially, partner physical health may decline (Jenkins et al, 2007) during the first year post-ICD, with partner anxiety remaining higher than that of the ICD patient (Kapa et al, 2010; Magyar-Russell et al, 2011). Partner concerns reflect the physical and emotional demands of caring for the ICD patient, at times manifested as helplessness and overprotectiveness (Palacios-Ceña et al, 2011; van den Broek et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

Comparison of patient and partner quality of life and health outcomes in the first year after an implantable cardioverter defibrillator (ICD)

et al. 2015

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Recovery following an implantable cardioverter defibrillator (ICD) impacts both the patient and partner, often in divergent ways. Patients may have had a cardiac arrest or cardiac arrhythmias, whereas partners may have to perform CPR and manage the ongoing challenges of heart disease therapy. Currently, support for post-ICD care focuses primarily on restoring patient functioning with few interventions available to partners who serve as primary support. This descriptive study examined and compared patterns of change for both patients and partners during the first year post-ICD implantation. For this longitudinal study, the sample included 42 of 55 (76.4 %) patient–partner dyads who participated in the ‘usual care’ group of a larger intervention RCT with patients following ICD implant for secondary prevention of cardiac arrest. Measures taken at across five time points (at hospital discharge and at 1, 3, 6 and 12 months follow up) tracked physical function (SF-12 PCS, symptoms); psychological adjustment (SF-12 MCS; State-Trait Anxiety Inventory; CES-D); relationship impact (Family Functioning, DOII; Mutuality and Interpersonal Sensitivity, MIS); and healthcare utilization (ED visits, outpatient visits, hospitalizations). Repeated measures analysis of variance was used to characterize and compare outcome trends for patients and partners across the first 12 months of recovery. Patients were 66.5 ± 11.3 (mean + SD) years old, predominately Caucasian male (91 %), with Charlson co-morbidities of 4.4 ± 2.4. Partners were 62.5 ± 11.1 years old, predominantly female (91 %) with Charlson co-morbidities of 2.9 ± 3.0. Patient versus partner differences were observed in the pattern of physical health (F = 10.8, p <0.0001); patient physical health improved while partner health showed few changes. For partners compared to patients, anxiety, depression, and illness demands on family functioning tended to be higher. Patient mutuality was stable, while partner mutuality increased steadily (F = 2.5, p = 0.05). Patient sensitivity was highest at discharge and declined; partner sensitivity increased (F = 10.2, p < 0.0001) across the 12-month recovery. Outpatient visits for patients versus partners differed (F = 5.0, p = 0.008) due most likely to the number of required patient ICD visits. Total hospitalizations and ED visits were higher for patients versus partners, but not significantly. The findings highlight the potential reciprocal influences of patient and partner responses to the ICD experience on health outcomes. Warranted are new, sound and feasible strategies to counterbalance partner needs while simultaneously optimizing patient recovery outcomes.

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“…97 A comparison of family partners of ventricular arrhythmia patients treated with ICDs versus antiarrhythmic medications found no differences in changes in partner QOL over time, with each group sharing fears about death of their family member. 98 Family members and intimate partners have reported overprotectiveness, stress, anxiety, fear, anger, depression, hopelessness, guilt, and despair after the patient has had a cardiac event and received an ICD. 98 -103 Feelings of helplessness, changes in family roles and life patterns, and lack of family support are factors that strain the family system, making it difficult to sustain the demands needed for successful recovery.…”

Section: Family Member and Intimate Partnermentioning

confidence: 99%

Educational and Psychological Interventions to Improve Outcomes for Recipients of Implantable Cardioverter Defibrillators and Their Families

et al. 2012

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Abstract-Significant mortality benefits have been documented in recipients of implantable cardioverter defibrillators (ICDs); however, the psychosocial distress created by the underlying arrhythmia and its potential treatments in patients and family members may be underappreciated by clinical care teams. The disentanglement of cardiac disease and device-related concerns is difficult. The majority of ICD patients and families successfully adjust to the ICD, but optimal care pathways may require additional psychosocial attention to all ICD patients and particularly those experiencing psychosocial distress. This state-of-the-science report was developed on the basis of an analysis and critique of existing science to (1) describe the psychological and quality-of-life outcomes after receipt of an ICD and describe related factors, such as patient characteristics; (2) describe the concerns and educational/informational needs of ICD patients and their family members; (3) outline the evidence that supports interventions for improving educational and psychological outcomes for ICD patients; (4) provide recommendations for clinical approaches for improving patient outcomes; and (5) identify priorities for future research in this area. The ultimate goal of this statement is to improve the precision of identification and care of psychosocial distress in ICD patients to maximize the derived benefit of the ICD. (Circulation. 2012;126:2146-2172.)Key Words: AHA Scientific Statements Ⅲ anxiety Ⅲ depression Ⅲ implantable cardioverter defibrillator Ⅲ patient education Ⅲ patient outcomes assessment Ⅲ psychological responses Ⅲ quality of life F or patients who receive an implantable cardioverter defibrillator (ICD) for primary or secondary prevention of life-threatening ventricular arrhythmias, the initial experiences related to care for cardiac arrhythmias and ICD therapy are often dramatic. This is especially true if the index event is a sudden cardiac arrest (SCA). Additionally, many patientsThe American Heart Association makes every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.This statement was approved by the American Heart Association Science Advisory and Coordinating Committee on July 26, 2012. A copy of the document is available at http://my.americanheart.org/statements by selecting either the "By Topic" link or the "By Publication Date" link. To purchase additional reprints, call 843-216-2533 or e-mail kelle.ramsay@wolterskluwer.com.The American Heart Association requests that this document be cited as follows: Dunbar SB, Dougherty CM, Sears SF, Carroll DL, Goldstein NE, Mark DB, McDaniel G, Pressler SJ, Schron E, Wang P, Zeigler VL; on behalf of the American Heart As...

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Partner Quality of Life in the Antiarrhythmics Versus Implantable Defibrillators Trial

Cited by 18 publications

References 27 publications

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

Comparison of patient and partner quality of life and health outcomes in the first year after an implantable cardioverter defibrillator (ICD)

Educational and Psychological Interventions to Improve Outcomes for Recipients of Implantable Cardioverter Defibrillators and Their Families

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