Participation Restrictions and Satisfaction With Participation in Partners of Patients With Stroke

Abstract

To investigate participation restrictions and satisfaction with participation in partners of patients with stroke. Design: Cross-sectional study. Setting: Five rehabilitation centers and 3 hospitals in The Netherlands. Participants: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multicenter randomized controlled trial. Interventions: Not applicable. Main Outcome Measures: Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of RehabilitationeParticipation. Results: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (ie, patient), and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (rZ0.65; P<.001), although this relation between participation restrictions and satisfaction with participation differed for the various activities. Differences between satisfied partners with participation restrictions and dissatisfied partners concerned anxiety (UZ93.0; PZ.026), depression (UZ81.5, PZ.010), and the number of restrictions experienced (UZ50.0; P<.001). Conclusions: There is great variety in restrictions experienced by partners regarding different activities and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke.

Caregiving, Participation, and Quality of Life of Closest Next of Kin of Persons Living with Spinal Cord Injury in Norway

“…Frequency subscale was used to measure the frequency of, and time spent on participation in different activities (23). The USER-Participation showed good validity (23), can also be used in people without physical disabilities, such as next of kin, and the 3 scales can be used separately (24). The English version of the USER-Participation was translated into Norwegian using the same guidelines (16).…”

Differences in Societal Participation Across Diagnostic Groups: Secondary Analyses of 8 Studies Using the Utrecht Scale for Evaluation of Rehabilitation-Participation

“…20,21 Another study analyzed data from partners of stroke patients, and was excluded for that reason. 22 Nine datasets were sent through a secured data-transfer to the first author and warehoused in a secured digital environment.…”

Burden, anxiety and depressive symptoms in partners – course and predictors during the first two years after stroke

“… 2–5 In turn, such psychological distress can lead to reduced outcomes such as decreased quality of life, participation and life satisfaction. 6 However, it is not clear how burden, anxiety and depressive symptoms develop in partners from the moment of stroke through the long-term caregiving situation over the years. This knowledge is necessary to be able to properly support partners through psychosocial interventions.…”