Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions

Lygnegård, Frida; Almqvist, Lena; Granlund, Mats; Huus, Karina

doi:10.1080/17518423.2018.1424266

Cited by 14 publications

(12 citation statements)

References 47 publications

(68 reference statements)

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“…Besides parents, teachers and friends, siblings may have an important role in providing support. For adolescents with neurodevelopmental impairment, factors in the microsystem, for example siblings' support and communication in the family, are of great importance to participation in domestic life and peer relationships (Lygnegård 2018). In disability research, adult siblings of people with intellectual disability are highlighted as an increasingly critical service group that merits more attention (Hodapp et al 2017).…”

Section: Intellectual Disability -Online Access and Supportmentioning

confidence: 99%

Tensions between risk, coping and support: young people with intellectual disability in Sweden and Internet-related support

Borgström

2021

Disability & Society

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Young people with intellectual disability seem to be more vulnerable on the Internet than youth in general. Therefore, it is important to investigate not only their strategies for managing negative online experiences but also how they experience Internet-related support. This study applies a qualitative and interpretative approach drawing on individual and pair interviews with pupils in upper secondary special programme schools in Sweden. A thematic analysis resulted in the following themes: 'a lesson to be learned' , 'the important role of siblings' , 'the dilemma of support' and 'negotiation of control' . With regard to negative online experiences, strategies for managing privacy, safety and risky situations are understood as problem-focused coping and efforts to manage external/internal demands. The central role of social networks is emphasised with regard to Internet-related support. It is concluded that online restrictions may discourage open dialogue. A perspective of positive risk-taking, focusing on opportunities rather than risks, is advocated. Points of interest• This article investigates the participants' perspectives in their own words. The key contribution of the paper is finding out how young people with intellectual disability in Sweden handle negative online experiences and how they experience Internet-related support. • The study highlights a range of themes from lessons learned and sibling relationships to problems of support and control that reflect many social and individual characteristics. • The participants use different coping strategies to handle negative online experiences. They seem to manage privacy and safety on their own and refuse control in risky situations.

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Section: Intellectual Disability -Online Access and Supportmentioning

confidence: 99%

Tensions between risk, coping and support: young people with intellectual disability in Sweden and Internet-related support

Borgström

2021

Disability & Society

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“…Restrictions on participation among adolescents with life-long developmental disabilities, for example ID, have been found in everyday life. Some restrictions faced by them are affected by environmental factors that are similar to those for adolescents without disabilities, for example peer-relations, however in school the effect of disabilities are especially evident (Anaby et al, 2014;Lygnegård, 2018). A recent report shows that adults with ID do not perceive themselves as having equal rights in society and state that expectations of others on themselves as citizens with ID to be active members of society are low (Swedish Agency for Participation, 2020).…”

Section: Adolescents and Young Adults With Id And Participation In Societymentioning

confidence: 99%

Internet use and digital participation in everyday life : Adolescents and young adults with intellectual disabilities

Ågren

2020

Linköping University Medical Dissertations

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Background: Internet use is an integral part of everyday life in contemporary society, especially among young people. It is used to perform activities in everyday life by an increasing proportion of the population. However, knowledge about access to and use of the internet by adolescents and young adults with intellectual disabilities (ID) is scarce. More knowledge is needed about digital competencies and digital participation in their everyday lives. Aim:The overall aim of this thesis was to explore and describe internet access and use, and digital participation in everyday life among adolescents and young adults with intellectual disabilities. Designs and Methods:The thesis is based on results from three studies. In study I, the focus was on access to and use of the internet in the everyday settings of school/work, at home or during t free time. Data was collected through observations, conversations, and follow-up interviews with 15 participants with ID, aged 13-24 years. The data was analysed using qualitative content analysis. In studies II and III, the design was cross-sectional and comparative, using national surveys on media and internet use from the Swedish Media Council, from which comparative data from reference groups could be gained. In study II, the national survey of adolescents on internet access and use was cognitively adapted for adolescents with ID in several steps. This made it accessible to a total selection of pupils with ID, aged 13-20 years, from all the special schools in four diverse municipalities in two different regions of Sweden. In study III, the national survey of parents about opportunities and risks of internet use by their adolescents was used. The surveys were sent to a sample of n=318 adolescents with ID and their caregivers/parents. The responses were higher for the adolescents (n=114) than for the parents (n=99), and the response rate of the adolescents with ID was equivalent as that of the reference group, at 36% and 38% respectively. In study II, chi-square tests were used and, when necessary, Fisher's exact test to analyse the data. In study III, analyses were carried out using Fisher's exact test and logistic regression to control for confounding factors.Results: This thesis show that access to internet-enabled devices is lower for adolescents with ID than for the general population, except for tablets

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“…Research has been conducted on the participation of children and young people in various aspects of life (Lygnegård, Almqvist, Granlund, & Huus, 2018;Lygnegård, Augustine, Granlund, Kåreholt, & Huus, 2018) using the Children and Youth version of the International Classification of Functioning, Disability and Health (Lygnegård, 2018), demonstrating that this classification can be a useful tool in documenting young people's mental health in everyday life activities (SDG 3). Moreover, an interdisciplinary approach is crucial in designing interventions to increase participation in and outside school activities (SDGs 4 and 10), and, related to SDG 3, it is not a diagnosis per se that primarily affects participation but rather factors such as sibling support and family atmosphere.…”

Section: Sustainability In Research the Last Five Yearsmentioning

confidence: 99%

Making sustainability in occupational therapy visible by relating to the Agenda 2030 goals – A case description of a Swedish university

Wagman

Johansson

Jansson

et al. 2020

World Federation of Occupational Therapists Bulletin

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Occupational therapy has a lot to contribute to sustainable development considering the discipline's occupational focus and knowledge. This has been recognised by researchers and professional associations, but there is still a scarcity of research explicitly mentioning sustainability. Relevant contributions may be identified by relating education and research to the Agenda 2030 sustainable development goals. The aim of this article was to describe explicit and implicit inclusion of sustainable development and Agenda 2030 goals in occupational therapy education and research at one Swedish university. Current course syllabi and study guides, as well as research over the past five-year period, were examined and related to sustainability. The results showed that although only a few courses and articles were explicitly related to sustainable development, more course and research content became relevant when this content was compared with the sustainable development goals. It can be concluded that sustainability was more extensively addressed than first visible, but further studies including more universities are warranted.

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Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions

Abstract: Type of impairment or long-term health condition is a weaker determinant of membership in clusters depicting frequency and perceived importance in domestic life or peer relations than dialogue and family environment.

Cited by 14 publications

References 47 publications

Tensions between risk, coping and support: young people with intellectual disability in Sweden and Internet-related support

Tensions between risk, coping and support: young people with intellectual disability in Sweden and Internet-related support

Internet use and digital participation in everyday life : Adolescents and young adults with intellectual disabilities

Making sustainability in occupational therapy visible by relating to the Agenda 2030 goals – A case description of a Swedish university

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