Participation preferences of patients with acute and chronic conditions

Hamann, Johannes; Neuner, Bruno; Kasper, Jürgen; Vodermaier, Andrea; Loh, Andreas; Deinzer, Anja; Heesen, Christoph; Kissling, Werner; Busch, Raymonde; Schmieder, Roland E.; Spies, Claudia; Caspari, Cornelia; Härter, Martin

doi:10.1111/j.1369-7625.2007.00458.x

Cited by 128 publications

(126 citation statements)

References 10 publications

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“…No previous studies of surrogate decision makers have examined these associations. However, several studies of patients (rather than surrogates) suggest that male sex is associated with a preference for less control in medical decision making (27)(28)(29)(30). This discrepancy raises the possibility that the association between sex and decisional authority may be modified by whether one is acting as a surrogate or one is making decisions for oneself.…”

Section: Discussionmentioning

confidence: 99%

An Empirical Study of Surrogates' Preferred Level of Control over Value-laden Life Support Decisions in Intensive Care Units

Johnson

Bautista

Hong³

et al. 2011

Am J Respir Crit Care Med

115

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Rationale: Despite ongoing ethical debate concerning who should control decisions to discontinue life support for incapacitated, critically ill patients, the perspectives of surrogate decision makers are poorly understood. Objectives: To determine (1) what degree of decisional authority surrogates prefer for value-sensitive life support decisions compared with more technical biomedical decisions, and (2) what predicts surrogates' preferences for more control over life support decisions. Methods: This was a prospective study of 230 surrogate decision makers for incapacitated, mechanically ventilated patients at high risk of death. Surrogates reported their preferred degree of decisional authority using the Degner Control Preferences Scale for two types of decisions: a value-sensitive decision about whether to discontinue life support and a decision regarding which antibiotic to prescribe for an infection. Measurements and Main Results: The majority of surrogates (55%, 127/230; 95% confidence interval, 49-62%) preferred to have final control over the value-sensitive life support decision; 40% (91/230) wished to share control equally with the physician; 5% (12/230) of surrogates wanted the physician to make the decision. Surrogates preferred significantly more control over the value-sensitive life support decision compared with the technical decision about choice of antibiotics (P , 0.0001). Factors independently associated with surrogates' preference for more control over the life support decision were: less trust in the intensive care unit physician, male sex, and non-Catholic religious affiliation. Conclusions: Surrogates vary in their desire for decisional authority for value-sensitive life support decisions, but prefer substantially more authority for this type of decision compared with technical, medical judgments. Low trust in physicians is associated with surrogates preferring more control of life support decisions.

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Section: Discussionmentioning

confidence: 99%

An Empirical Study of Surrogates' Preferred Level of Control over Value-laden Life Support Decisions in Intensive Care Units

Johnson

Bautista

Hong³

et al. 2011

Am J Respir Crit Care Med

115

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“…Generally, men and women differ with regard to thinking, solving problems, memory, and sensitivity to danger or threat [13,14]. The literature suggests significant differences concerning health care between men and women with respect to communication styles [15], confiding in crisis [16], coping with illness-related distress [17,18], the use of psychosocial support [16 -21], and their involvement in medical decision making [22,23].…”

Section: Introductionmentioning

confidence: 99%

Gender-Related Needs and Preferences in Cancer Care Indicate the Need for an Individualized Approach to Cancer Patients

et al. 2010

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After completing this course, the reader will be able to:1. Enumerate reasons for a patient-centered model of care and plan changes in your practice/facility consistent with patient-centered care.2. Differentiate between the general preferences of male and female cancer patients and tailor care of individual patients accordingly.This article is available for continuing medical education credit at CME.TheOncologist.com. CME CME ABSTRACTAim. Improving quality of care for cancer patients requires insight into their specific wishes, needs, and preferences concerning cancer care. The Oncologist CME Program is located online at http://cme.theoncologist.com/. To take the CME activity related to this article, you must be a registered user. Symptom Management and Supportive CareThe and attitude of physicians and nurses highest on their list of preferences. There were significant differences between male and female patients concerning preferences in health care in 15 of the 21 scales and in two of the eight single items. Without exception, women found the care aspects mentioned in these scales and items more important than men. Multivariate regression analysis showed that, of all the patient-and diseaserelated factors, gender was the most important independent predictor of patient preferences. Conclusion.Gender impacts cancer patients' needs and preferences and should be taken into account for optimal cancer care. Cancer care might be tailored toward gender, for example, with regard to the means and extent of communication, manner and extent of support, counseling and rehabilitation, consultation length, and physician assignment. The results of this study may guide health care professionals and organizations to develop a gender-specific health care approach to further improve cancer patientcentered care. The Oncologist 2010;15:648 -655

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“…In a comparative study across different chronic conditions, Hamann et al 28 found that people with MS were significantly more likely to prefer making active, shared decisions with health-care professionals. Accommodating preferences may help foster autonomy and a sense of volition, which, in turn, can promote intrinsic motivation to engage in multiple health behaviors.…”

Section: Resultsmentioning

confidence: 99%

A Qualitative Study of Multiple Health Behaviors in Adults with Multiple Sclerosis

Plow¹,

Golding²

2016

International Journal of MS Care

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Background: Evidence regarding inflammatory pathways, elevated cardiovascular risk, and negative effects of secondary conditions on disability progression provide a strong rationale for promoting multiple health behaviors in adults with multiple sclerosis (MS). However, many unanswered questions remain about the best ways to design multiple behavior change interventions for adults with MS. We sought to identify facilitators and barriers to engaging in multiple health behaviors (physical activity, nutrition, and sleep) and to gain further insights into how to develop multiple health behavior change interventions based on preferences of adults with MS. Methods: Focus groups and one-on-one interviews were conducted with 17 participants with MS. Results: Five qualitative themes were identified as either facilitating or hindering engagement in multiple health behaviors: 1) roles, priorities, and preferences; 2) sense of duty; 3) the fatigue and mobility problem; 4) taking control; and 5) resiliency. Participants identified advantages and disadvantages of delivery formats (eg, face-to-face group vs. telephone), frequency of contacts, and intervention strategies based on their individual circumstances and obligations. Participants felt that discussing the benefits of engaging in multiple health behaviors, developing action plans, accommodating preferences, and addressing health problems would be helpful strategies to include in a multiple behavior change intervention. Conclusions: These findings indicate that there may be common facilitators and barriers that can be targeted to promote multiple behavior changes. Future research should explore the best ways to tailor multiple behavior change interventions to preferences, symptoms, psychological traits, and social cognitions. Int J MS Care. 2016;18:248-256. There is now an extensive body of research indicating the need to develop and test multiple health behavior change interventions in people with multiple sclerosis (MS). Research on inflammatory pathways, 1 elevated cardiovascular risks, 2 and negative effects of secondary conditions on disability progression 3 all provide a strong rationale for designing and testing multiple behavior change interventions in adults with MS. Engaging in multiple health behaviors may have cumulative effects on reducing inflammation and secondary conditions. 1,4 Furthermore, expert consensus statements on managing common MS symptoms often make recommendations consistent with engaging in multiple health behaviors. 5,6 However, few studies of people with MS have addressed pertinent questions on how best to promote multiple health behavior changes.Although behavior change interventions have been examined in people with MS, the efficacy and theoretical underpinnings of these interventions to support multiple behavior changes are unclear. Behavior change intervention research in MS has typically focused on self-managing symptoms, promoting wellness, and encouraging physical activity. 7-9 Each of these types of interventions makes implicit assu...

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Participation preferences of patients with acute and chronic conditions

Abstract: Background There is little knowledge as to whether the chronicity of a disease affects patientsÕ desire for participation.

Cited by 128 publications

References 10 publications

An Empirical Study of Surrogates' Preferred Level of Control over Value-laden Life Support Decisions in Intensive Care Units

An Empirical Study of Surrogates' Preferred Level of Control over Value-laden Life Support Decisions in Intensive Care Units

Gender-Related Needs and Preferences in Cancer Care Indicate the Need for an Individualized Approach to Cancer Patients

A Qualitative Study of Multiple Health Behaviors in Adults with Multiple Sclerosis

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